@jceoltasmith.bsky.social
Background #RetiredOccupationalTherapist due to #LongCovid background in vocational rehabilitation & PhD research includes #DWP policy, provision & front line practice. Not fully active here yet.
@emmawooller.bsky.social
@richardvallee.bsky.social
I play language. Mostly irreverent. Debugger. AI. Global warming. Integrity. Health. Science. Chronically ill punk rocker. I think about the future a lot.
@paulkeeble.co.uk
ME since 2017 (Mild), 2019 Moderate , 2020 Severe Long Covid since March 2020 (V Severe) Funcap55 = 1.9 ( (Severe)
@dxrevisionwatch.bsky.social
Formerly monitoring/reporting on developments with ICD-11, ICD-10-CM, DSM-5, SNOMED CT & other classification and terminology systems
@lymenews.bsky.social
The #LymeDisease community's leading source for news, insight and advocacy. Publisher of The Lyme Times, creator of MyLymeData. A 501(c)(3) organization. Tick-Borne Diseases, Infection Associated Chronic Conditions #IACC, #OneHealth
@bendyhedsandco.bsky.social
For Awareness & Support of #Hypermobility #hEDS/HSD #POTS #ME/CFS #MESpine #Stenosis #MCAS & co. #PANS/PANDAS & #LongCovid ally #MedEd for EDS/HSD & co ๐ conditions go to:- ๐ https://gptoolkit.ehlers-danlos.org/ ๐ #NEISVoid
@scienceforme.bsky.social
We are an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and the carers, clinicians, scientists and advocates who support us. This account is maintained on a part-time basis by patients.
@tapanuiflu.bsky.social
Myalgic Encephalomyelitis since 1983 Tapanui Flu epidemic | #ME | #PwME | #LongCovid ally | Covid cautious Grandmother | Ex social scientist | Mostly housebound | On welfare Website: tapanuiflu.blog Aotearoa | New Zealand
@sarahbarleymc.bsky.social
Ill health retired ๐FHEA๐Christian. Chair, Pride in Belper ๐ณ๏ธโ๐๐ณ๏ธโโง๏ธ. Volunteer Long Covid SOS. JNC. Married to my Wife. โค๏ธLong Covid-autoimmune/immunocompromised
@arisonsned.bsky.social
Cat and Dog botherer. Young persons counsellor retired. Want my bike and my health back ๐ฉต
@sheencr.bsky.social
Immunologist and science communicator based at UoM fascinated by our immune response to threats (pathogens, pollution) & microbiome. Member IndependentSage person most likely to share random dog and nature pics ๐งช๐ฉโ๐ฌ #AcademicSky #SciCom #ImmunoSky
@erinbiba.bsky.social
Freelance Science Journalist. Fact Checker. NatGeo, BBC, SciAm, NBC News, PopSci, WIRED, and others. Hire me to fact check your book. I post about Jewish stuff, disability, Star Trek, and The Buffalo Bills. Jersey girl.
@trishgreenhalgh.bsky.social
Prof of Primary Care Health Sciences, Oxford. Researching digital health/ inequities, covid prevention (masks/ air quality). Wild swimmer. Mum to Rob (marine bio) & Al (doc). She/her. https://scholar.google.com.au/citations?user=QDCqsJwAAAAJ&hl=en&oi=ao
@ruperthigham.bsky.social
๐งโ๐@UCL |โ๏ธValues-based leadership |โEducational dialogue & agency | ๐Humane intelligent responses to global threats |๐ Carer for #LongCovid-affected family
@daniellebeckman.bsky.social
Neuroscientist into virology & microscopy. Also a nerd that loves history, movies, books and video games! In a mission to help cure #LongCovid Long Covid Advisory Team: https://whn.global/long-covid-advisor. daniellebeckman.com
@kirsties.bsky.social
UK #pwME #pwLC #MECFS #LongCovid #PEM (post-exertional malaise) as well as #Politics and other related chat. I use lists to manage my chats here. Feel free to use them or ask to be added https://writingandme.com/
@kprather.bsky.social
Aerosols, airborne, air quality, clouds-climate, health, viruses, bioaerosols, public speaker, environmental justice. โค๏ธ โค๏ธ gardening, cooking, empathy. https://airborne.ucsd.edu https://kprather.scrippsprofiles.ucsd.edu/
@anilvanderzee.bsky.social
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS #art2cureME #pwme #millionsmissing
@cbme-mark.bsky.social
Severe ME/CFS with added Long Covid. Running a support group in Cambridge, UK. Pronouns: depends how the day pans out
@paulaknight.bsky.social
Author, illustrator, comics memoir THE FACTS OF LIFE (Myriad) Kidlit Books x3 Writing illustration comics poetry photography Disabled nonambulatory bedbased 6yr #pwME No DMs pls https://linktr.ee/paulajknight https://ko-fi.com/bedscape She/Her
@ruthbrooker.bsky.social
Teller of stories. Drinker of wine. Parent to small boys and trying not to lose my brains. Travel by bike. Magazine writer on pause. Clean Air Campaigner #CleanAirforKids
@natpearson.bsky.social
#Hampshire #SafeAirSchools #Climate #Nature #LongCovid Devoted mother | Founder SafeAirSchools.org | Proud Kingโs College London alumna | Founding Member Long Covid Kids | Passionate about healthcare | Leave nobody behind | Neurodivergent
@elhopkins.bsky.social
Composer who is currently working on a Song Cycle. Posting about: Music, COVID safety, Clean Air, Climate Change & wildlife. #Covidisairborne #FBCV #Vaccinessavelives #WearARespie ffp2/3 โ to mask bans #TransparencyCovid Voting Green Party ๐
@ahandvanish.bsky.social
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
@lisamccorkell.bsky.social
formerly a patient-led research collaborative co-lead, always a co-founder | MPP | she/her | natures 10 in 2022
@danwyke.bsky.social
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
@salwitcher.bsky.social
Working to promote a safe #InclusiveNewNormal by maximising ongoing learning arising through the Covid pandemic and responses to it. #Masketeer
@jljcolorado.bsky.social
Dist. Prof. Chem. & CIRES, Univ. Colorado. #HighlyCited2022, Fellow AAAR & AGU. http://Bit.ly/TenSR http://Bit.ly/ATRVs Aerosols, pollution #EndFossilFuels #COVIDisAirborne. Views are my own
@natebear1.bsky.social
Disease, climate, ecology, tech, empire, other stuff. About me and where I write about these things: http://donotpanic.news
@swastrosarah.bsky.social
Speaking up for everyone affected by severe/very severe #ME. Medical science has everything to learn about human biology from the post infection disease ME. #MEKills backstory https://x.com/swastrosarah?lang=en-GB
@emilyesfraser.bsky.social
Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
@tatianatrifan.bsky.social
Life is full of surprises, but never when you need one. Completely allergic to any form of racism, sexism, genderism. #StandWithUkraine Views are my own
@untonuggan.bsky.social
angry mast cells (HaT and #MCAS) + #POTS + neurodivergent. โฟ queer. white. emperor of typos. brain fog zone โ ๏ธ. they/them ๐ถ iii'm still masking ๐ถ working on porting more of my body science infodumps and such to: liminalnest.wordpress.com #NEISvoid
@thewhn.bsky.social
Bringing people, science, and compassion together to solve world problems and protect health. Let's #EndThisPandemic together.
@jennyjones.bsky.social
๐ด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ๐ด๓ ง๓ ข๓ ฅ๓ ฎ๓ ง๓ ฟ๐ฌ๐ง๐ช๐บRejoin Votes for 16yo Save our publicly funded NHS& public orgs Internatl legisltn to outlaw media misinfo Transparency&accountability Truth&justice UK nds political&media reform& legislation Music movement nature lit art & kindness- sanity essentials
@dom2023.bsky.social
ME since 2016. Have been working on microbiome since 2021. Finally got a test in 2023 with symptoms at 90% (first time in five years). Discovered four biomarkers in my sample correlated with 90%. Hope to maintain 90% in 2023/4.
@nmjk.bsky.social
The State of Me, HarperCollins, 2008 | Shortlisted Bridport Flash Fiction Prize 2012 & 2023 | Love books, tulips, jazz, birds, French films | Novella-in-progress | Had ME since 1983 https://www2.societyofauthors.org/soa-member/nasim-marie-jafry/
@drbevans.bsky.social
Professor of Human Geography at Uni of Liverpool, research on chronic illness, energy limiting conditions, fat embodiment. Feminist, Fat Activist, Spoonie, PwME, Friend, Sister, Daughter, Person. Hobbies: SF, cats, knitting/crochet. she/her or they/their ๐ณ๏ธโโง๏ธ
@drericding.bsky.social
Public health warnings & health policy. Epidemiologist & health economist. Chair and Faculty at NECSI. Former 16 years at Harvard. DC & Virginia. Bio & contact: necsi.edu/eric-feigl-ding A story: bit.ly/raisealarm ๐: drericding.substack.com/subscribe
@cvcev.bsky.social
๐๐ผ๐ฟ๐ฒ ๐ฃ๐ฎ๐ฟ๐๐ถ๐ฐ๐ถ๐ฝ๐ฎ๐ป๐ in the ๐จ๐ ๐๐ผ๐๐ถ๐ฑ-๐ญ๐ต ๐๐ป๐พ๐๐ถ๐ฟ๐ #FBCV (follow back CV) and JOIN us on FB โโ ๐ธcv_cev โ๏ธ@cv_cev www.clinicallyvulnerable.org
@weselymd.bsky.social
Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, Dementia, Delirium, PICS. Fighting misinformation. Posts my own. Still learning.
@katybrc.bsky.social
Myalgic Encephalomyelitis - M.E + POTS for 38 years Donor to the UK MEcfs Biobank for 10 years & @DecodeMEstudy Please watch http://dialogues-mecfs.co.uk/videos/ London, UK No DMs please #pwME
@taylorlorenz.bsky.social
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