@emilyesfraser.bsky.social
Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
@thesicktimes.bsky.social
A nonprofit news site chronicling the #LongCOVID crisis. Founded by journalists @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social Website: thesicktimes.org Newsletter: thesicktimes.org/newsletter Donate: the-sick-times.fundjournalism.org
@ilkokowalczuk.bsky.social
Wollte immer Historiker werden, ich arbeite dran:"Seltsam,im Nebel zu wandern!/Leben ist Einsamsein."
@patientled.bsky.social
Patient-Led Research for #LongCovid! http://patientledresearch.com
@katha1970.bsky.social
Here for research and info on #Migraines #MECFS #LongCovid #MCAS #MCS #ChronicPain #MetabolicHealth #Neuroscience #Psychology #MedicalGaslighting, posts German & English, hobby songwriter
@postviraltrials.bsky.social
News and information about interventional trials for Long Covid, ME/CFS, POTS, and other post-viral illnesses. Message or tag me if you’re in a trial or otherwise have information to share.
@scheibenbogen.bsky.social
Immunologist and ME/CFS researcher @Charité https://cfc.charite.de/
@richardvallee.bsky.social
I play language. Mostly irreverent. Debugger. AI. Global warming. Integrity. Health. Science. Chronically ill punk rocker. I think about the future a lot.
@claguenjc36.bsky.social
Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise incl CV/fatigue/mental health/ME/Longcovid/EDI/all views my own she/her
@edyong209.bsky.social
Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him 📷 Canon R6mkii + RF 800mm Edyong.me
@bildungabersicher.net
Für Infektionsschutz in Schulen und Kitas #Schattenfamilien #OffLabelimpfung #MecfsKids #LongCovidKids Kontakt: [email protected] Impfanfragen: [email protected]
@stephenmia.bsky.social
Former Skier, Cyclist, Climber, Hill Walker, Diagnostic Radiographer and functioning human. Now - ME, POTS, LC, Vax Injury - Pro Vax - Still finding the joy
@danwyke.bsky.social
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
@bmhughes.bsky.social
Concerned citizen • Prof Psych • Writer • Galway • he/him A blog: https://thesciencebit.net/ A bio: https://brianmhughes.com/ A book: https://bloomsburycp3.codemantra.com/viewer/63721f10ee35880001aafadc 📷 https://www.photoblogism.net
@mecfsnanoneedle.bsky.social
Severe #MECFS Patient Bedridden. No energy to speak. #MECFSDiagnosticBiomarkers Drug companies need a #MECFS and #LongCovid diagnostic blood test for successful clinical trials. https://mecfsdiagnosticbiomarkers.substack.com/
@wld.bsky.social
Long COVID und MEcfs seit 2022, #WirLiegenDasLeben #MEawareness #DavosStandard #CleanAir #MillionsMissing
@simonmcg.bsky.social
Sometimes try to explain and comment on ME researchh, or even contribute to it. And I advocate for more and better research.
@catchawave.bsky.social
Familienmensch aus Schweinfurt 👨👩👧👧 Macht irgendwas mit Punkten in München 🔵 Stern des Südens ❤️🤍 Nothing in life is quite as important as you think it is while you're thinking about it. (Daniel Kahneman)
@cyruxime.bsky.social
Energetically compromised (bedridden) by severe #MECFS. All systems operating at minimum capacity & overloaded. In a previous life: comp sci x math, powerlifting. #LongCovid ally.
@sabrinapoirier.bsky.social
#CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis + #MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability (Unceded) #Canada https://linktr.ee/sabrinapoiriercanada
@twoshaws.bsky.social
#MyalgicEncephalomyelitis #pwME #SevereME #HyperPOTS #MCAS #PEM #PostExertionalNeuroImmuneExhaustion #PostExertionalSymptomExacerbation 😷
@purplespeedwell.bsky.social
Mostly bedridden with #MyalgicEncephalomyelitis, a devastating illness with little funding and no treatment. Toronto, Canada Ally of #pwLC #pwME #LongCovid #POTS #MCAS #MEcfs
@talmandaniel.bsky.social
Curious & exhausted peace seeker, co-host of Post-Exertional Mayonnaise podcast, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
@phoenixme.bsky.social
Bed-bound activist with severe ME/CFS. ME/CFS, chronic illness, #AusPol, #USPol, climate justice, social justice, crochet, cats, sci fi. Views expressed are my own. If I had any spoons, I'd be dangerous. Boonwurrung country, Australia
@campact.de
Campact ist eine Kampagnen-Organisation, mit der über 3,5 Millionen Menschen entschlossen für progressive Politik eintreten und unsere Demokratie verteidigen. Impressum: http://bit.ly/1gqravN Datenschutz: http://campact.org/some
@drdanielloy.bsky.social
Ehemann, Jurist. #MECFS. Team #SIGNforMECFS. Team #GOfundMECFS. One of the #MillionsMissing.
@rahmstorf.bsky.social
Climate scientist, professor of Physics of the Oceans in Potsdam. Opinions my own.
@zdfmagazin.bsky.social
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@pponsch.bsky.social
ME/CFS seit 2018 #MECFS #Lyme #Fibromyalgie #millionsmissing #MEawareness
@chantalbritt.bsky.social
Science journalist/comms, researcher, chronically impatient & difficult patient. Long covid, ME, ProVaxx, AntiGlobuli @ BFH, Long Covid Switzerland, Europe, Kids Switzerland, ENOVAT, SPO, EUPATI Ex Bloomberg, Swissinfo, SAKK, ESCMID, SCAHT, 3RCC
@katztoffelbrei.bsky.social
Just a teacher who loves Pokémon and Kurzgesagt. #LongCovid #MECFS since 09/2021 Dunking on political topics with autistic pettyness and humor. We live in the darkest timeline, but might laughter at the absurdity be humankind's final resources.