@topazstudioscom.bsky.social
Grandma 🪷 Retired • 3 #chronic illnesses since 2020 #ESKD #longCOVID #immunocompromised #pericarditis #myocarditis 💙 Volunteer @renegaderesearch.bsky.social 🥩 #carnivore
@aryback.bsky.social
ME researcher at the University of Edinburgh. Clare Francis Research Fellow, funded by Action for ME.
@ellybrosius.bsky.social
Pets, nature, physics, health, sewing, crafts, ME/CFS/OI/LC science & symptoms, medicinal metaphors, gratefulness practice. Volunteer for Renegade Research including R50, NoVA ME/CFS, OI & Long Covid Support Group, MEAction NC.
@tilmanandris.bsky.social
Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs
@dragonflydreams-za.bsky.social
Diagnosed with #MyalgicEncephalomyelitis in 1990. Bed bound since 2017. Design personalized gifts & ME awareness t-shirts, etc. online. www.zazzle.com/store/dragonfliesanddreams. Typing is hard so not very active on social media. Johannesburg, South Africa
@rthm.bsky.social
RTHM connects you with a digital care team specializing in Long COVID and ME/CFS that provides access to therapies based on the latest research. https://direct.rthm.com/?utm_source=bs&utm_medium=link&utm_campaign=bio&utm_id=profile&utm_term=web&utm_conten
@renegaderesearch.bsky.social
Renegade Research (RR) is a non-profit 501c3 decentralized organization pioneering patient and caregiver led research focused on ME/CFS and LongCovid... Website: https://renegade-research.org 💙 Project: @remissionbiome.bsky.social
@resiapretorius.bsky.social
Distinguished professor, Stellenbosch University and Honorary professor, University of Liverpool.
@ashleyhultman.bsky.social
#TeachMETreatME #hEDS #MyalgicEncephalomyelitis #MESpine #CCI #POTS #longCovid #AuDHD #endo • Capitol Hill, AFL-CIO, and AFT alum • She/her
@sabinehermisson.bsky.social
PD Dr. (religion, empirical education research) mother of Mila who suffers from very severe ME/CFS (Bell 0) https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf Vienna, Austria #CleanAir
@emilyesfraser.bsky.social
Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
@thesicktimes.bsky.social
A nonprofit news site chronicling the #LongCOVID crisis. Founded by journalists @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social Website: thesicktimes.org Newsletter: thesicktimes.org/newsletter Donate: the-sick-times.fundjournalism.org
@wheelerdax.bsky.social
Queer, enby (they/them), wheelchair using scientist ♿🌈 M.E/CFS, endometriosis, autism, mental health issues (and more!). Gamer 🎲🎮 Pagan. Work in cancer research. 🧬 Yorkshire. @WheelerDax on X.
@kaufmanmd.bsky.social
Physician/Internist focused on complex illness including Long Covid, ME/CFS, dysautonomia/POTS, MCAS, connective tissue disorder, and of course SIBO/Leaky Gut. And sadly, the ongoing coup.
@davetuller1.bsky.social
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
@virusesimmunity.bsky.social
We study antiviral immunity and viral disease pathogenesis. We are developing mucosal vaccine strategies to prevent infection and transmission. #COVID19 #longCOVID #vaccines
@mvgutierrezmd.bsky.social
Professor & Chair of Rehab Med at UT Health San Antonio | Mom, runner, #LatinasInMedicine, #Physiatry, #LongCOVID
@rorpreston.bsky.social
Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙 #MECFS #LongCovid #IACC #PAIS 📍 https://crunchme.org/
@medicine.stitches.today
From the experience of @stitches.today, we bring you the best papers in medicine, daily in your inbox - for free! Subscribe 👉 www.stitches.today/medicine
@sannibenke.bsky.social
Originally a creator of colorful things but all i have left is my sword of words written in the dark. Former psychologist. Mom x 2. Life on hold by very severe #mecfs. Here to join the #pwme community. Sharing #bookrewievs and #liMEricks.
@diktgymnasiet.bsky.social
Visual Artist and Writer #ME #pwME #LongCOVID #ZeroCOVID #Crip #ChronicIllness #DisabilityJustice #ContemporaryArt #ConcretePoetry #VisualPoetry #PostdigitalPoetry #PoeticWeb http://www.diktgymnasiet.com
@honeycrisp.bsky.social
AuDHD napstronaut, cat lady, co-owner of #HMFC, doula, photographer, editor, & chronic illness collector, hyperfocused on my ME/CFS + MCAS courtesy of COVID. I have a song, a story, & a pair of Converse for every occasion. Tha mi ag ionnsachadh Gàidhlig.
@katha1970.bsky.social
Here for research and info on #Migraines #MECFS #LongCovid #MCAS #MCS #ChronicPain #MetabolicHealth #Neuroscience #Psychology #MedicalGaslighting, posts German & English, hobby songwriter
@mikeseumarathons.bsky.social
I run marathons around Europe raising funds for Invest In ME's biomedical research projects to cure ME. 32 countries so far. £51k raised. Next race: #33 Belfast, N.Ireland (04.05.25) www.mikeseumarathons.eu www.justgiving.com/mikeseumarathons
@investinmeresearch.bsky.social
An independent UK charity finding, funding, facilitating biomedical research into ME and providing better education and awareness of this disease in UK & Europe (charity nr. 1153730) www.investinme.org
@unitetofight.bsky.social
LongCovid & ME/CFS conference project. We’re a small group of affected people living with LC & ME/CFS, alongside dedicated supporters. #UniteToFight2024 www.youtube.com/@unitetofight2024
@polybiorf.bsky.social
501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
@scheibenbogen.bsky.social
Immunologist and ME/CFS researcher @Charité https://cfc.charite.de/
@grachstephanie.bsky.social
Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers | https://t.co/TkYm2MXvir
@lisamccorkell.bsky.social
formerly a patient-led research collaborative co-lead, always a co-founder | MPP | she/her | natures 10 in 2022
@brianvastag.sciencemastodon.com.ap.brid.gy
Occasional science reporter at The Washington Post and elsewhere. Disabled by complex chronic post-viral illness. Living on #Kauai #Hawaii. Sometimes […] [bridged from https://sciencemastodon.com/@brianvastag on the fediverse by https://fed.brid.gy/ ]
@neurostingl.bsky.social
Facharzt für Neurologie ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
@kunstjonas.bsky.social
Professor of Communication and Psychology at BI Norwegian Business School and the University of Oslo Past Yale, Harvard, UiB. Editor-in-Chief at Advances.in Father. Views are my own.
@wilhelminaj.bsky.social
Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
@mattmaiocco.bsky.social
NBC Sports Bay Area. Covering the San Francisco 49ers for a few years now. Check out my YouTube channel.
@sunsopeningband.bsky.social
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
@mhornig.bsky.social
Translational MD-scientist, mom, 🎶 | Bklyn born + bred Pathogen/microbe-host interactions + 🧠outcomes across the life course | gut-immune-🧠 axis #ASD #ADHD #PANS/#PANDAS #OCD affective disorders/#TRD Alzheimer’s #MECFS #LongCOVID All posts = my views
@wigglethemouse.bsky.social
49ers and Swindon Town supporter. Engineer. #MEcfs has got in the way of having a life and doing much of anything really. Housebound and mostly bed bound but longing to do so many things.
@rachelriggs.bsky.social
Author of IN GOOD HEALTH: Uncomplicated, Allergen-Aware Recipes For a Nourished Life instagram.com/the.rachel.riggs #EDS #MECFS #Food #paleo #glutenfree #dairyfree
@curelongcovid.bsky.social
Program Manager of The Covid Recovery Center at Brigham and Women’s Hospital in Boston MA. Opinions are my own. Here to advocate and educate (she/her) 💕
@faithox.bsky.social
Faithless from X. Severe ME & MCAS. Used to teach and write. From Otautahi, NZ. Running out of hope. Looking for some more.
@daniellebeckman.bsky.social
Neuroscientist into virology & microscopy. Also a nerd that loves history, movies, books and video games! In a mission to help cure #LongCovid Long Covid Advisory Team: https://whn.global/long-covid-advisor. daniellebeckman.com