Biomedical Scientist before virus in 97’ triggered ME; a body that no longer worked, lost job I loved. Supporting campaigning for change, for proper diagnosis & management #ME/CFS https://youtu.be/RiwX9Y0NbiQ
@meresearchuk.bsky.social
ME Research UK is a charity which funds scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS (charity number SC036942)
@meactionuk.bsky.social
Our movement fights for recognition, education, and research so that one day all people with ME (myalgic encephalomyelitis) will have access to rapid diagnosis, and compassionate, effective care.
@scienceforme.bsky.social
We are an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and the carers, clinicians, scientists and advocates who support us. This account is maintained on a part-time basis by patients.
@earthcurateds.bsky.social
Featuring stunning High Difination content curated by the World's greatest photographers&Artists
@redditspaceviewes.bsky.social
Welcome,this account is devoted high-quality image of space,sharing quality astrophotography science &Technology
@naomidharvey.bsky.social
Zoologist & veterinary research. She/her. 22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️ Patient Expert in ME/CFS, POTS and syndromic Long Covid. Please excuse my typos.
@lisamccorkell.bsky.social
formerly a patient-led research collaborative co-lead, always a co-founder | MPP | she/her | natures 10 in 2022
@janetdafoe.bsky.social
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
@julierehmeyer.bsky.social
Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
@drseanmullen.bsky.social
Research Director of the #Exercise #Technology & #Cognition Lab | #Movement #Neuroscience | Husband | Dad | #MartialArtist | #FlowArtist | #Tennis Teaching Pro | Advocate for Persons with Long Covid
@fioname.bsky.social
Victoria, Australia. Former professional wordsmith. 14+ years living with the hell of myalgic encephalomyelitis (ME/CFS). Prone to so-called left-wing views & bingeing good TV 🤓
@trishgreenhalgh.bsky.social
Prof of Primary Care Health Sciences, Oxford. Researching digital health/ inequities, covid prevention (masks/ air quality). Wild swimmer. Mum to Rob (marine bio) & Al (doc). She/her. https://scholar.google.com.au/citations?user=QDCqsJwAAAAJ&hl=en&oi=ao
@apeskygirl.bsky.social
Tree hugger with ME/CFS since 1992. #MEAction volunteer. Patient Advocate. OMF & Stanford Study Participant. ME/CFS • ND • POTS • EDS • One of the Millions Missing. Former Copywriter and Art Director. Now I watch squirrels and make things.
@verlorenezeit.bsky.social
Industrial engineer with severe M.E. Art, astronomy, writing, podcasts, thunderstorms.
@birbsarereal.bsky.social
Forty-something retired biologist and ME advocate. Lover of birds and yarn. Former athlete. Wife. For kindness, empathy, inclusion, and accessibility. She/her. Crochet artist; https://www.ravelry.com/stores/stitches-by-sarah
@benhmecfs.bsky.social
ME/CFS patient advocate, Open Medicine Foundation science correspondent. Bedbound. Former: exercise physiology, biochemist in training, athlete-Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
@livingnexisting.bsky.social
Reaching out to others with #ME/CFS. Learning to live a new life after Sepsis
@tanteros.bsky.social
Not much energy / too many migraines. Nature keeps me going #pwME #MillionsMissing
@hopefullizzy.bsky.social
30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice✨ Bristol, UK
@sabrinapoirier.bsky.social
#CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis + #MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability (Unceded) #Canada https://linktr.ee/sabrinapoiriercanada
@moleyme.bsky.social
Lancashire Lass with #MECFS likes flowers 🌸trees 🌳nature 🌱climate ⛈️ justice for all 👩🦽 interested in #longcovid prefer to interact a with community of kind humans ! . North West England . Feel like a Mole in an #MECFS hole trying to dig my way out!♿️
@sazzi91.bsky.social
creativity, baking👩🍳 tv 💻 nature 🌷 chronically ill; ME/CFS since 2002 🐌 🇪🇺 IG: @sazzi_crafts #MillionsMissing
@cgatist.bsky.social
Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
@dialoguesmecfs.bsky.social
https://www.dialogues-mecfs.co.uk Website with videos created by Natalie Boulton & Josh Biggs with a Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of #ME/CFS and a longer film explores the wider context and history.
@ellaminnow.bsky.social
Former: climber, dancer, teacher Current: mom, existing with LC, PhD’ing as best as I can after learning to read fluently again.
@johnamuir.bsky.social
Retired exercise scientist, welfare and public health worker. Primary focus - rehabilitation & sport science/medicine.
@longcovidkids.bsky.social
UK-based international charity supporting & advocating for children & young people with #LongCovid & related conditions. #LongCovidKids #LongCovid #PaediatricLongCovid #LongCovidAwareness
@julesahouston.bsky.social
Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights. I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new. #CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
@luckytran.com
Public Health, Climate Justice, and Science Communication. Bylines in the Guardian, Washington Post, and more. WHO Fides member. Grist 50 Fixer. Opinions my own and do not reflect those of my employer. http://linktr.ee/luckytran
@bethmazur.bsky.social
#pwME and science/data nerd. co-founder #MEAction. Mostly post about #millionsmissing, #MEcfs, #LongCovid, #microbiome, #MCAS, #POTS, #citizenscience, and #healthequality. CS @MIT
@oceandreaming50.bsky.social
Former surfer and scuba diver. Lover of the ocean and environment. 24yrs ME, POTS, TN #pwME #millionsmissing #MEScience Location: Australia
@irishmecfsassoc.bsky.social
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association NB: Posts should not be considered advice Registered Charity Number 20100254 CHY 22039 #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
@eleanoralbaugh.bsky.social
Crafter by necessity to stay occupied whilst dealing with health issues. MCAS PoTS Hypothyroidism (need T3 for life) ME. Please entertain me and lets connect. In a previous life xcountry skier, hen and beekeeper, keen gardener and HCW. Alt text required.
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Université de Montréal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter
@dualiejulie.bsky.social
(She/her) In LongCOVID/M.E. hell looking for a way out! First wave Longhauler. Former engineering student. Trying to get my personality back from the disease. Very cute dog.
@cortjohnson.bsky.social
Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
@taylorpartdeux.bsky.social
28 | Chemist | Disabled | ME/LC/RA/CPP | AuDHD | RKC ❤️ | #FreePalestine 🇵🇸| Chess player ♟️| Expert of my own experience |
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@drjogreer.bsky.social
Mum, Carer, Myalgic Encephalomyelitis (ME) Advocate, Educational Psychologist
@joannesmith.bsky.social
ME since 1991.Owned by Shih Tzu called Teddy 🐾 Interested in ME advocacy & research.Dogs inc.welfare eg #LucysLaw .Wildlife. Books. Bit of Politics. #pwME Twitter Handle @_joannesmith
@joyk8.bsky.social
Medically retired palliative care RN, #pwME since 2001. #MECFS #POTS #MCAS #EDS Enthusiastic gardener, baker, and candlestick maker.
@sannara.bsky.social
#MECFS #MILLIONSMISSING #MEAwareness #PEM #POTS #MCAS #PostCovid #LongCovid #TeamWissenschaft #GdB https://www.mecfs.de/was-ist-me-cfs/
@owasow.bsky.social
Asst Prof, UC Berkeley, Political Science. Study protests, stats & race: 1/ Agenda Seeding http://j.mp/agenda-seeding 2/ Race as a Bundle of Sticks http://j.mp/bundle-of
@danwyke.bsky.social
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
@dxrevisionwatch.bsky.social
Formerly monitoring/reporting on developments with ICD-11, ICD-10-CM, DSM-5, SNOMED CT & other classification and terminology systems