@erisataxia.bsky.social
Pansexual witch, poet, feminist ~chronic illness- generalized dysautonomia, POTS, heds, mcas ~ alpha gal syndrome ~ poetry, books, writing, art 📚 📖 ~ chaos and clowning 🤡 ~ fnord ~ screaming into the void
@kmdenmark.bsky.social
Mostly just crocheting these days. Former USAF and maternity RN. #ME/CFS
@danwyke.bsky.social
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
@aspiraldance.bsky.social
Queer (Pan Ace) 🏳️🌈 Disabled* ♿️ & Neurodiverse ♾️ Christian Pagan ✝️ Writer & Blogger 👩💻 www.aspiraldance.com *ME/CFS, Fibro, hEDS, Migraine, Dysautonomia, Endo, Asthma, Anxiety, OCD... the list goes on.
@mecfsskeptic.bsky.social
Exploring the history of psychosomatic medicine and research on myalgic encefalomyelitis/chronic fatigue syndrome (ME/CFS). https://mecfsskeptic.com/
@stephenmia.bsky.social
Former Skier, Cyclist, Climber, Hill Walker, Diagnostic Radiographer and functioning human. Now - ME, POTS, LC, Vax Injury - Pro Vax - Still finding the joy
@annafromukraine.bsky.social
Telling the truth about my beautiful country Ukraine. Subjective, emotional but honest.
@rippermd41.bsky.social
My life runs by the Murphy’s Law of illness: If something can go wrong, it will go wrong. Latest one is #MECFS but the laundry list is long. Live in New England
@yewleea.bsky.social
Independent Political Reporter, Voice of United24 Ukraine Briefly, Host of multiple news podcasts. Ukrainian 🇺🇦
@georgetakei.bsky.social
I’ve boldly gone into the clear blue yonder. Follow for more recipes and tips.
@mikeseumarathons.bsky.social
I run marathons around Europe raising funds for Invest In ME's biomedical research projects to cure ME. 32 countries so far. £51k raised. Next race: #33 Belfast, N.Ireland (04.05.25) www.mikeseumarathons.eu www.justgiving.com/mikeseumarathons
@susand1408.bsky.social
I have #MECFS, Fibromyalgia, Peripheral neuropathy, Asthma, POTS, Vasovagal syncope and a ton of other things. Mum of 1 Son, Husband of 20 yrs
@amyboylanwrites.bsky.social
Freelance #copywriter. PhD Geology. Life on ⏸ 1st 🌊 #LongCovid #PoTS #MCAS #LongCovidKids #CovidIsAirborne 😷
@shellchat.bsky.social
Reformed journo/editor, now working in health comms. Fighter of injustice in all its forms. Advocate for better research & support for ppl w uninvited friends POTS, ME/CFS, MCAS, LC, EDS, SjD, AnkSp plus other misunderstood AI conditions.
@kimduke.bsky.social
Long Covid MCAS POTS Vax injured Still wearing a mask!; Spoonie, Politics but it sucks now, cats. Thr*ads kimduke62, P*st & Spo*tible & the bird KimDuke, Slava Ukraini!, cynical AF, profanity, especially now. Dark humor to survive. RESIST
@sazzi91.bsky.social
creativity, baking👩🍳 tv 💻 nature 🌷 chronically ill; ME/CFS since 2002 🐌 🇪🇺 IG: @sazzi_crafts #MillionsMissing
@moleyme.bsky.social
Lancashire Lass with #MECFS likes flowers 🌸trees 🌳nature 🌱climate ⛈️ justice for all 👩🦽 interested in #longcovid prefer to interact a with community of kind humans ! . North West England . Feel like a Mole in an #MECFS hole trying to dig my way out!♿️
@kris007tine.bsky.social
Humour, laughs, and sarcasm is my oxygen. Severe ME, one of the #MillionsMissing🩰 #ENDmecfs2025🧬
@carriemcginn.bsky.social
Infection-associated chronic illness advocate | Life sidelined by #LongCovid #MECFS #POTS | #PatientPartner | MSc | Mom | She/Her | 🇨🇦 #Canada #Quebec #CovidConscious #StillMasking #MyalgicEncephalomyelitis #pwME #EMSFC #CovidLongue #CovidLong #pwLC
@itsmepz.bsky.social
Music 🎶 Film 🎞️ Long form journalism 🧐 Hot Chips 🍟 Happiest by the sea 🌊 Here to hang with chronically ill & socially isolated peeps and advocate for better care for #pwME. Living small with ME on unceded Whadjuk Noongar country ("Australia")
@cinnamonrollalong.bsky.social
#pwME #MECFS #pwLC #LongCovid #PoTS #Dysautonomia #MCAS #LongCovidKids #CovidisNotOver #CovidisAirborne
@sabinehermisson.bsky.social
PD Dr. (religion, empirical education research) mother of Mila who suffers from very severe ME/CFS (Bell 0) https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf Vienna, Austria #CleanAir
@tingting1407.bsky.social
Looking behind the obvious || Tingting is my nickname || Pro science || #MECFS #POTS #MCAS || Former management consultant & university guest lecturer || Posts in English & German || Jazz Funk lover
@livingnexisting.bsky.social
Reaching out to others with #ME/CFS. Learning to live a new life after Sepsis
@themeeplife.bsky.social
#pwME since 2004, when I was 22. Homebound, mostly bed bound. Currently battling breast cancer. #postviral #MECFS / #POTS / probably #MCAS #actuallyautistic I make websites. G+ person.
@ruthlampard.bsky.social
Looking out for blessings: in wildlife, nature, & kindness. Lead Chaplain with AfME Healthcare: views my own. Living w ME & LongCovid. Virtual Pilgrim. Fan of rewilding, life too. Usually moderate to mild in views, occasionally sharp. No DMs, will block
@chronicmyalgice.bsky.social
Dutch | life derailed due to #IBD & #MECFS | sofa bound | wants to raise awareness about post infectious diseases | one of the #MillionsMissing
@taylorpartdeux.bsky.social
28 | Chemist | Disabled | ME/LC/RA/CPP | AuDHD | RKC ❤️ | #FreePalestine 🇵🇸| Chess player ♟️| Expert of my own experience |
@bluezebra30.bsky.social
M.E. since 1976. In the golden rolling hills of California. Looking at screens sets my eyeballs on fire so there will be pauses.
@annakwood.bsky.social
Physicist, education researcher, gardener, bird watcher/photographer, chronic illness/ME
@sibylledahrendorf.bsky.social
former filmmaker II torn from life due to complex chronic illness II #CranioCervicalInstability #MCAS #SmallFiber #PoTS #FluoroQuinoloneToxicity #FlagylToxicity #Lyme #ME II https://sibylledahrendorf.jimdofree.com II Wer unter meinen Posts pöbelt ➜ Block
@kirsties.bsky.social
UK #pwME #pwLC #MECFS #LongCovid #PEM (post-exertional malaise) as well as #Politics and other related chat. I use lists to manage my chats here. Feel free to use them or ask to be added https://writingandme.com/
@kristinwrites.bsky.social
Poet, Wife, Mom, LongCovid/MECFS Sufferer. Looking to connect and learning to advocate. Cofounder of #CripCoop. EIC, Poetry @epistemiclit.Bsky.social, @whirligiglit.bsky.social. Micropoetry chapbook Lift the Mask available widely. www.kristinhoulihan.com
@benhmecfs.bsky.social
ME/CFS patient advocate, Open Medicine Foundation science correspondent. Bedbound. Former: exercise physiology, biochemist in training, athlete-Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
@sleepyamy.bsky.social
Pile of poor coping mechanisms in a malfunctioning meatsack. POTS, EDS, probable ME/CFS and more 🙃 Nature lover, bird watcher, politically left. @amy_is_tired on The Other Place. Mask up! 😷 For my music, follow @amyclaromusic.bsky.social
@kschnickelfritz.bsky.social
Sometimes inappropriate. Knitting and chocolate addict. Political when the mood takes me. Sick and tired. ME, LongCovid, POTS, Lyme
@ninasteinkopf.bsky.social
Former HSEQ Chief Executive. Have survived Myalgic Encephalomyelitis (ME) since 2010. Patient advocate and writer. www.melivet.com Anti-genocide.
@kjkrathwohl.bsky.social
Out of spoons lady of perpetual rest w Infection-Associated Chronic Illness 20+ yrs #MECFS, #FM, #Lyme & Co, #LongCovid 🌻 Advocate for bodily autonomy & Counting every vote 🌻 Art 🌻 Form. USPS, arts org 🌻 #MillionsMissing
@evitorialpage.bsky.social
I live in a house. #MECFS #CCI #hEDS former global health/comms/tech
@himmatb.bsky.social
Writer + editor on pause due to Long Covid/vaccine. Very severe and fully bedbound. ME/CFS | POTS | hEDS. he/him
@irishmecfsassoc.bsky.social
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association NB: Posts should not be considered advice Registered Charity Number 20100254 CHY 22039 #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
@maryeilmicdom.bsky.social
Sport, history, language, law & humour | Living with and writing about #ME #POTS #IST #Asthma #Dysautonomia | #Celtic 🍀 | #LifeWriting at merrydholl.wordpress.com 🏴