@mewarrior1.bsky.social
Wife, mum, Severe ME, 💙✝️♿️Fibromyalgia Observe small things, don't rush, love & forgive #loveyourself #loveothers ❤️ #chronicillnesswarrior1 on X & IG Opinions are my own 🤓
@kennylcbio.bsky.social
🥼🧪🧠 on pause due to Long Covid (2020) w PEMs /MCAS / SFN (biopsy)/ hyperactive platelets, microclots & endothelial damage. Keeping the faith ✨#TeamClots Here to follow science updates & other LC/ME fellows stories.
@unrealarthur.bsky.social
ME Patient-ly Waiting for Biomedical Research | Volunteer @crunchme.bsky.social #GreatestMEdicalScandal @unreal_arthur
@patt.bsky.social
dev @skyswipe.bsky.social /swe/cs/math/stats/trading/anime Join the Skyswipe iOS Beta → https://testflight.apple.com/join/QbKx1amM
@emilyesfraser.bsky.social
Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
@rhymeswithvery.bsky.social
ACT I: Books, bookstores, publishing, the Bay Area, my dog, trees, rocks, crows, large bodies of water. ACT II: #FcktheNIH, post-vaccine syndrome, #ME, other new health disasters, good people, disability justice. ACT III:
@riemerville.bsky.social
Salty | #LongCovid,#POTS & #ME | Books, Music, Food, Art #ATXRE | Excuse my typos We are living in a choose-your-own dystopian novel
@paulaknight.bsky.social
Author, illustrator, comics memoir THE FACTS OF LIFE (Myriad) Kidlit Books x3 Writing illustration comics poetry photography Disabled nonambulatory bedridden 7yr #pwME No DMs pls https://linktr.ee/paulajknight https://ko-fi.com/bedscape She/Her
@longcovidadvoc.com
A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time... 💙📚Home to the #pedanticzebra book club. https://www.longcovidadvoc.com/ 🛍️ https://longcovidadvoc.shop/
@peaksandwaves00.bsky.social
Love the outdoors, reading books, cosy fires and wildlife. Experienced hiker. Amateur forager. Scotland. Trying to survive with dysautonomia and chronic illness from Covid.
@hopestarmasacre.bsky.social
your least favorite autists favorite autist // disabled as fuck with Extremely Severe ME, POTS & feral MCAS // pronouns are they/them ✡️ 🇲🇽🏳️🌈
@lessorfewer.bsky.social
PhD geography: money & finance • Life mostly on hold from Long Covid 03/2021 • 개리말고 가리 ________________ 🇮🇪 | https://linktr.ee/g_a_r_y
@naomidharvey.bsky.social
Zoologist & veterinary research. She/her. 22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️ Patient Expert in ME/CFS, POTS and syndromic Long Covid. Please excuse my typos.
@himmatb.bsky.social
Writer + editor on pause due to Long Covid/vaccine. Very severe and fully bedbound. ME/CFS | POTS | hEDS. he/him
@irishmecfsassoc.bsky.social
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association NB: Posts should not be considered advice Registered Charity Number 20100254 CHY 22039 #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
@mefoggydog.bsky.social
Award-winning #socialenterprise in #UK. Working for #socialchange for the #MECFS community. Linktree - http://bit.ly/408o6LI
@diatoma.bsky.social
Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid
@emilyrj.bsky.social
Digital journalism. Design, news/book edits, linguistics, data, tech. Medical + academic research. Disability in news, media and accessibility design consults. @emily_rj on Twitter #CripTheVote #Iowa ♿️🏳️🌈📚
@nelehelena.bsky.social
I'll "tweet" here about the things I don't like if the other app goes down
@emmiskyten.bsky.social
Sustainability science studies on hold because of POTS + Long covid / suspected ME. Previously interesting, now mostly into resting. Here to connect with other sick people and for science stuff.
@faithie.bsky.social
SevereME/vax injured. Can't read, write, watch, walk or talk much. Just me, my bed & my swollen brain. Trying to stay sane. Roy Kent is my spirit animal.
@fstevenchalmers.bsky.social
Retired person, was in tech industry for 37 years Self and family got multiple chemical sensitivity from a sick house incident in the mid 1990s Heretic, with a heretical research hypothesis on the nature of MCS and a dozen other complex chronic illnesses
@ellecarnitine.bsky.social
immunocompromised • made & kept sick by the state • 🇵🇸🇵🇸🇵🇸
@kschnickelfritz.bsky.social
Sometimes inappropriate. Knitting and chocolate addict. Political when the mood takes me. Sick and tired. ME, LongCovid, POTS, Lyme
@ciarawrightphd.bsky.social
Long Covid March 2022, life on pause as Functional Medicine Nutritionist, Scientist, Mountain Runner. Loves trees, houseplants, dogs, profanity. Liberal Atheist, she/her
@julesahouston.bsky.social
Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights. I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new. #CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
@arianek.bsky.social
Co-founder Textillia.com! ✂️💕• SFU Geog • Public health/urban planning/open source nerd • Sick AF #Sjogrens #Dysautonomia #IVIG #IatrogenicIllness • ♿️🌈🇦🇲🦆🐶🖖📚💌🌿 • Vancouver • she/her • C4C🇨🇦 FB: https://www.facebook.com/groups/care4complexcanada/
@dualiejulie.bsky.social
(She/her) In LongCOVID/M.E. hell looking for a way out! First wave Longhauler. Former engineering student. Trying to get my personality back from the disease. Very cute dog.
@aurorastormg3.bsky.social
miss / her 👗 hibernating in my igloo 🥶 LEGO Space 🌷 zoology 🐸 MTB ⚽️ Zara Larsson 🎧 Care Bears - Dream Bright bear 🩵 Dysautonmia/ HaT / Systemic Mastocytosis 🍉 🥝 🍌 jelly & lime spiders. Product of Tasmania 🌧️
@bluecry.bsky.social
She/her living with Long Covid/ME/POTS/MCAS. 😷 "It is no measure of health to be well adjusted to a profoundly sick society."
@osayko.bsky.social
Theater/film/book lover. Lipstick hoarder. Ukrainian-American. Life on pause due to #LongCOVID of the #MECFS / #POTS / #MCAS variety. Left-ish libertarian-ish. Suffering NY Rangers fan. Audiobook connoisseuse.