UniteToFight
LongCovid & ME/CFS conference project. We’re a small group of affected people living with LC & ME/CFS, alongside dedicated supporters.
#UniteToFight2024
www.youtube.com/@unitetofight2024
@scheibenbogen.bsky.social
Immunologist and ME/CFS researcher @Charité https://cfc.charite.de/
@mecfs.at
💛 Österreichische Ges. für #MECFS ⚡ NEWS zu #MECFS #pwME #myalgicE 👇 Informationen, Spenden, Kontakt http://linktr.ee/oeg_mecfs https://mecfs.at/
@chantalbritt.bsky.social
Science journalist/comms, researcher, chronically impatient & difficult patient. Long covid, ME, ProVaxx, AntiGlobuli @ BFH, Long Covid Switzerland, Europe, Kids Switzerland, ENOVAT, SPO, EUPATI Ex Bloomberg, Swissinfo, SAKK, ESCMID, SCAHT, 3RCC
@apresj20.bsky.social
Compte officiel #ApresJ20 Association Covid Long France visant à favoriser la Reconnaissance, les Soins, la Recherche et la Communication sur le #LongCovid
@isabelrb.bsky.social
CEO | Renegade Research | Project Director of Remission Biome NBC-HWC, AIP-C @remissionbiome.bsky.social
@kinderdocnina.bsky.social
Pediatrician, MD, Believe in science, takes SARSCOV2 as serious as it should be treated, Can‘t believe that science is that ignorant
@workwellfoundation.bsky.social
#Nonprofit clinical #research providing 2-day #CPET #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses. workwellfoundation.org
@bettinagrande.bsky.social
Psychologische Psychotherapeutin mit Praxis in Heidelberg; Charité #PAIS Care Berlin. Aktiv in der Aufklärung über und gegen die Psychologisierung von #MECFS #PEM #PENE. Über an ME/CFS angepasste Psychotherapie: https://doi.org/10.3390/medicina59040719
@susscrofa.bsky.social
Bin KEINE Auskunftsstelle für alle Fragen hinsichtlich Pandemie oder Medizin. Wer solche Fragen an mich stellt, wird blockiert.
@dialoguesmecfs.bsky.social
https://www.dialogues-mecfs.co.uk Website with videos created by Natalie Boulton & Josh Biggs with a Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of #ME/CFS and a longer film explores the wider context and history.
@longcovidsupport.bsky.social
UK Charity Keeping people with #LongCovid at the centre • Support • Research • Advocacy • Education • #ResearchLongCovid #TreatLongCovid #CureLongCovid www.longcovid.org https://linktr.ee/longcovidsupport 📧info@longcovid.org
@neurostingl.bsky.social
Facharzt für Neurologie ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
@longcovidkids.bsky.social
UK-based international charity supporting & advocating for children & young people with #LongCovid & related conditions. #LongCovidKids #LongCovid #PaediatricLongCovid #LongCovidAwareness
@thesicktimes.bsky.social
A nonprofit news site chronicling the #LongCOVID crisis. Founded by journalists @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social Website: thesicktimes.org Newsletter: thesicktimes.org/newsletter Donate: the-sick-times.fundjournalism.org
@longcovidadvoc.com
A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time... https://www.longcovidadvoc.com/ 🛍️ https://longcovidadvoc.shop/
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@patientled.bsky.social
Patient-Led Research for #LongCovid! http://patientledresearch.com
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@edyong209.bsky.social
Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him 📷 Canon R6mkii + RF 800mm Edyong.me
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Université de Montréal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter
@davetuller1.bsky.social
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
@erictopol.bsky.social
physician-scientist, author, editor https://www.scripps.edu/faculty/topol/ Ground Truths https://erictopol.substack.com SUPER AGERS https://www.simonandschuster.com/books/Super-Agers/Eric-Topol/9781668067666
@mgalvosas.bsky.social
Cough as a Digital Biomarker and First Digital Therapeutic (DTx) for chronic cough @ hyfe.com, coughpro.com | prev. founder of wandering prevention tech for dementia | interested in Digital Health | my opinions
@nickyproctor.bsky.social
New here... Writing up my PhD in coach learning and development. Love learning, family, ancestry and tolerance. Campaigning for better healthcare for ME #Biggest Medical Scandal of 21st Century
@proftimstephens.bsky.social
Professor of International Law, University of Sydney Law School. www.sydney.edu.au/law/about/our-people/academic-staff/tim-stephens.html orcid.org/0000-0001-9678-2227
@putrinolab.bsky.social
@julimaelle.bsky.social
Ex-Fotografin 📸 & Musikerin 🎶, jetzt 1 v #Millionsmissing wg #MECFS & #Fibromyalgie. Leidenschaft still on. #noAfD #wirsindmehr
@fvrhijn.bsky.social
MD | rheumatology resident #ME due to #LongCovid Nonbinary 🌈🌈🌈🌈 | views are mine.
@d2p.bsky.social
Paediatric Radiologist, Aotearoa New Zealand Following more immunologists than radiologists #MECFS #LongCOVID and a bit of #MacDev #iOSDev he/him https://ddp.nz | https://dysimmune.nz
@banhamgemma.bsky.social
Nephrologist. Interests vasculitis/immune mediated kidney disease, dysautonomia, mast cells. Translational medicine/therapeutics PhD. Views own
@ben-no.bsky.social
#medibubble #twankenhaus #teamWissenschaft #wirsindmehr Woher haben eigentlich die Schweden ihre Immunschuld?
@martinruecker.bsky.social
investigativjournalist | www.martin-ruecker.com | Threema: TUFVC84Z
@chrzacharias.bsky.social
ME/CFS seit 2019. Ich setze mich für bessere Aufklärung, Versorgung und Forschung ein, die aufgrund jahrzehntelanger falscher Einordnung als psychische Krankheit bisher kaum stattgefunden hat.
@naomidharvey.bsky.social
Zoologist & veterinary research. She/her. 22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️ Patient Expert in ME/CFS, POTS and syndromic Long Covid. Please excuse my typos.
@verhac.bsky.social
ME/CFS, Long Covid & PAIS | science & physiotherapy | #SaubereLuft #CleanAir | 📍Vienna
@dmz.bsky.social
DMZ DIE MITTELLÄNDISCHE ZEITUNG - Online & Print seit 2019 http://dmz-news.eu / http://paypal.me/mittellaendische
@thailandmedical.bsky.social
For all the latest Medical News And COVID-19 News https://www.thailandmedical.news/ https://www.thailandmedical.news/pages/doctor_list
@uselesspriest.bsky.social
Long COVID, mild, since Apr 2022 ME / Long COVID diagnosed May 2024
@cbammermd.bsky.social
Facharzt für Innere Medizin | Nephrologe | Geriater | interessiert an #PAIS und assoziierten Multisystemerkrankungen | * Privat gerne alles mit Musik * * Skeets in DE/EN * * TwiX: @CBammerMD *
@ninawildflower.bsky.social
Music fan. UK science teacher in an FFP3 mask. The right mask makes it easy to sing, perform, teach, or speak in public. #N95 #FFP2 #FFP3 #YallMasking He/him
@lgoshen.bsky.social
Here mainly for evidence-based discussion of public health and the climate crisis. #TeamWissenschaft #ProtectTheKids #MaskUp Posts in German and English she/her @lgoshen@mastodon.social