Daisy
Severe M.E. for over 20 years.
Just getting through the day.
Living in Suffolk.
@altyellonatpark.org
A team of scientists & activists, in & around Yellowstone National Park. 501c3. Posting photos, ideas & solutions, because together, we can change the world. Please report malicious trolls & imposters. We are AltYelloNatPark™️
@karenlhargrave.bsky.social
Co-founder #ThereForME | Calling for an NHS that’s there for ME & Long Covid | www.thereforme.uk Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
@decodemestudy.bsky.social
🧬 The world’s biggest study of genetic causes of #MECFS. Launched September 2022. 🧬 https://www.decodeme.org.uk/
@putrinolab.bsky.social
@mx-salted.bsky.social
eh, I don't normally do social media, but here goes 🎮 gamer 🎨 painter 💻 data analyst 💤 narcoleptic 😈 satanist 🏳️⚧️ trans
@sunsopeningband.bsky.social
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
@asheradrienne.bsky.social
poet, artist, #longcovid since 2020 swears a lot since the election
@pkrugman.bsky.social
@katha1970.bsky.social
Here for research and info on #Migraines #MECFS #LongCovid #MCAS #MCS #ChronicPain #MetabolicHealth #Neuroscience #Psychology #MedicalGaslighting, posts German & English, hobby songwriter
@paulkeeble.co.uk
ME since 2017 (Mild), 2019 Moderate , 2020 Severe Long Covid since March 2020 (V Severe) Funcap55 = 1.9 ( (Severe)
@unrealarthur.bsky.social
ME Patient-ly Waiting for Biomedical Research #GreatestMEdicalScandal @unreal_arthur
@thesicktimes.bsky.social
A nonprofit news site chronicling the #LongCOVID crisis. Founded by journalists @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social Website: thesicktimes.org Newsletter: thesicktimes.org/newsletter Donate: the-sick-times.fundjournalism.org
@actionforme.bsky.social
Providing support & holistic healthcare services to people of all ages affected by #MECFS
@nhsconfed.org
We are the membership organisation that brings together, supports and speaks for the whole healthcare system in England, Wales and Northern Ireland. www.nhsconfed.org
@swastrosarah.bsky.social
Speaking up for everyone affected by severe/very severe #ME. Medical science has everything to learn about human biology from the post infection disease ME. #MEKills backstory https://x.com/swastrosarah?lang=en-GB
@susankmecfs.bsky.social
Scientist. Current interest in #IACC. Progressive worsening of #mecfs triggered by virus, Feb 1996.
@medibyte.bsky.social
Medibyte distills clinical research into concise highlights, streamlining content review and deep exploration, saving time and costs without subscriptions.
@medicine.stitches.today
From the experience of @stitches.today, we bring you the best papers in medicine, daily in your inbox - for free! Subscribe 👉 www.stitches.today/medicine
@careopinion.org.uk
We want people to be able to share their experiences of health and care in ways which are safe, simple, and lead to learning and change. Care Opinion CIC (non-profit) | https://www.careopinion.org.uk
@investinmeresearch.bsky.social
An independent UK charity finding, funding, facilitating biomedical research into ME and providing better education and awareness of this disease in UK & Europe (charity nr. 1153730) www.investinme.org
@meresearchuk.bsky.social
ME Research UK is a charity which funds scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS (charity number SC036942)
@trishgreenhalgh.bsky.social
Prof of Primary Care Health Sciences, Oxford. Researching digital health/ inequities, covid prevention (masks/ air quality). Wild swimmer. Mum to Rob (marine bio) & Al (doc). She/her. https://scholar.google.com.au/citations?user=QDCqsJwAAAAJ&hl=en&oi=ao
@daltmann.bsky.social
Professor of Immunology, Imperial College London. Editor of OUP Oxford Open Immunology. Co-author - Penguin Long Covid Handbook. Discusses: Covid-19, Long Covid, T cells, immunogenetics and HLA, respiratory infection, science policy, arboviruses, C19th lit
@independentsage.bsky.social
An independent group of scientists providing transparent advice during the COVID crisis.
@stenhelmfrid.bsky.social
Ph.D. in physics, also interested in mathematics, science theory, and history. Follows research on ME/CFS. Stockholm, Sweden
@davetuller1.bsky.social
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
@millionsmissingpod.bsky.social
Share your story / Amplifying the chronically ill / #MyalgicEncephalomyelitis #LongCovid et al / #MillionsMissing / Contact: millionsmissingpodcast@gmail.com / linktr.ee/millionsmissingpodcast
@anilvanderzee.bsky.social
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS #art2cureME #pwme #millionsmissing
@tenaciousmumma.bsky.social
Mum & carer of Sophia, bedbound with very severe ME. Constantly searching for answers and a way out of the abyss. #lymedisease #severeME #POTS #chronicpain #allodynia #vertigo
@binitakane.bsky.social
Long COVID/ME interested lung doctor | Campaigner for race equality, clean air & patient voice | Independent SAGE | Co-Founder South Asian Heritage Month YouTube: @LCCWYCD Enquiries: info@thelongcovidclinic.co.uk Linktree: https://linktr.ee/binitakane
@simonmcg.bsky.social
Sometimes try to explain and comment on ME researchh, or even contribute to it. And I advocate for more and better research.
@emec.bsky.social
Advocacy organization for ME/CFS patients and their carers in Europe
@stripylightcic.bsky.social
Award-winning #SocialEnterprise working to improve the lives of people living with #MEcfs by educating professionals who have a duty of care. CPD accredited online training courses. www.stripylightbulb.com
@longcovidphysio.bsky.social
#LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies https://bio.site/longcovidphysio
@thewestonmale.bsky.social
Multiple non-award winner. Ex-journo and health storyline whisperer with TV soaps. Now working as Senior Fundraising Volunteer for the @MEAssociation.bsky.social (UK) = talking to supporters/creating content here: https://meassociation.org.uk/get-involved/
@workwellfoundation.bsky.social
#Nonprofit clinical #research providing 2-day #CPET #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses. workwellfoundation.org
@michelleb4.bsky.social
A mixture of stuff #MECFS #LongCovid #frailty #mtb #cycling #feelthefearanddoitanyway co-founder @PhysiosForME Views are all my own
@claguenjc36.bsky.social
Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise incl CV/fatigue/mental health/ME/Longcovid/EDI/all views my own she/her
@abrokenbattery.bsky.social
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos. https://linktr.ee/abrokenbattery
@bmhughes.bsky.social
Concerned citizen • Prof Psych • Writer • Galway • he/him A blog: https://thesciencebit.net/ A bio: https://brianmhughes.com/ A book: https://bloomsburycp3.codemantra.com/viewer/63721f10ee35880001aafadc 📷 https://www.photoblogism.net
@longcovidkids.bsky.social
UK-based international charity supporting & advocating for children & young people with #LongCovid & related conditions. #LongCovidKids #LongCovid #PaediatricLongCovid #LongCovidAwareness
@mephysio.bsky.social
UK 42 year old mum of preteen, had ME since early 20’s and I am a Specialist ME Physiotherapist www.mephysio.org.uk
@longcovidsos.bsky.social
UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation www.longcovidsos.org info@longcovidsos.org Charity reg no 1199120
@dialoguesmecfs.bsky.social
https://www.dialogues-mecfs.co.uk Website with videos created by Natalie Boulton & Josh Biggs with a Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of #ME/CFS and a longer film explores the wider context and history.