Arthur
ME Patient-ly Waiting for Biomedical Research | Volunteer @crunchme.bsky.social
#GreatestMEdicalScandal @unreal_arthur
@matthewjdalby.bsky.social
@resiapretorius.bsky.social
Distinguished professor, Stellenbosch University and Honorary professor, University of Liverpool.
@putrinolab.bsky.social
@aaronca11.bsky.social
Billboard campaign/fundraiser here https://www.notrecovereduk.org
@polybiorf.bsky.social
501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
@d2p.bsky.social
Paediatric Radiologist, Aotearoa New Zealand Following more immunologists than radiologists #MECFS #LongCOVID and a bit of #MacDev #iOSDev he/him https://ddp.nz | https://dysimmune.nz
@sammiemc.bsky.social
Long Covid Kids Founder & CEO Hoping to be on the right side of history. ♿️#LongCovid ✳️#CleanAir 🙋🏻♀️Campaigner 🧠🧡🫀#LongCovidKids 🌊#ColdWater 🧜🏻♀️#Swimming 🧘🏻#Pilates coach - #Pacing since 2020 🦠 😷 🫅🏼#CoronationChampion 💥#Volunteer
@notunpackedyet.bsky.social
Here to talk about #MEcfs, #MEspine, #hypermobility, #POTS, #hEDS, #LongCovid, #ChronicIllness and #disability ...but I also have opinions on other things. You have been warned :P
@murtoz.bsky.social
🇳🇱/🏴. He/Him. Lounge based Landscape Photographer. Medically Retired Hardware Engineer. Tired Tinkerer. FOSS Fan. Ally. PwME/LC. Volunteer with #MEAction Scotland. #BIPOCLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir
@mediumwhite.bsky.social
Europhile 🏳️🌈, lived in 🇬🇧🇮🇹🇨🇼🇧🇪 🇧🇩. Dedicated follower of science. Former textile engineer, now a Mgmt consultant. I believe in believing people.
@decodemestudy.bsky.social
🧬 The world’s biggest study of genetic causes of #MECFS. Launched September 2022. 🧬 https://www.decodeme.org.uk/
@scholenveilig.bsky.social
Advocate for Safe Schools with a focus on prevention like Clean Air to protect children from health risks like long Covid. Sharing data on child Covid hospitalizations, long Covid, and schools with clean air: scholenveilig.com 🌍The Netherlands
@rbmdm.bsky.social
Sou'West UK. Have M.E. Likes; Nature, engineering, brewing and history. I also follow Russia's war against Ukraine so may post on the subject just a warning if it's difficult for anyone who might follow me.
@adrianramsay.bsky.social
Green MP for #WaveneyValley. Co-leader of the Green Party of England and Wales (@greenparty.org.uk) with @carladenyer.bsky.social Former charity CEO. Need to get in touch? 📧 [email protected] https://linktr.ee/AdrianRamsay
@wendychambld.bsky.social
Liberal Democrat MP for North East Fife 🔶 Chief Whip Shinty player 🔶 [email protected] she/her
@matthewcort.land
🖋️ Lawyer, advocate, writer, public health 🦠 Immunocompromised, chronically ill, disabled Then: SSI, SNAP, Medicaid Now: data & policy, disability, healthcare 🔗 patreon.com/mattbc 🏳️🌈nonbinary
@martinlewis.moneysavingexpert.com
Founded MoneySavingExpert, Money & Mental Health Policy Institute, (ish) the Martin Lewis Money Show ITV & Martin Lewis Podcast
@wheelerdax.bsky.social
Queer, enby (they/them), wheelchair using scientist ♿🌈 M.E/CFS, endometriosis, autism, mental health issues (and more!). Gamer 🎲🎮 Pagan. Work in cancer research. 🧬 Yorkshire. @WheelerDax on X.
@thereforme.bsky.social
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
@kmdenmark.bsky.social
Mostly just crocheting these days. Former USAF and maternity RN. #ME/CFS
@mephysio.bsky.social
UK 42 year old mum of preteen, had ME since early 20’s and I am a Specialist ME Physiotherapist www.mephysio.org.uk
@michelleb4.bsky.social
A mixture of stuff #MECFS #LongCovid #frailty #mtb #cycling #feelthefearanddoitanyway co-founder @PhysiosForME Views are all my own
@longcovidphysio.bsky.social
#LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies https://bio.site/longcovidphysio
@simonmcg.bsky.social
Sometimes try to explain and comment on ME researchh, or even contribute to it. And I advocate for more and better research.
@investinmeresearch.bsky.social
An independent UK charity finding, funding, facilitating biomedical research into ME and providing better education and awareness of this disease in UK & Europe (charity nr. 1153730) www.investinme.org
@meresearchuk.bsky.social
ME Research UK is a charity which funds scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS (charity number SC036942)
@medibyte.bsky.social
Medibyte distills clinical research into concise highlights, streamlining content review and deep exploration, saving time and costs without subscriptions.
@susankmecfs.bsky.social
Scientist. Current interest in #IACC. Progressive worsening of #mecfs triggered by virus, Feb 1996.
@actionforme.bsky.social
Providing support & holistic healthcare services to people of all ages affected by #MECFS
@suffolksky.bsky.social
Severe M.E. for over 20 years. Just getting through the day. Living in Suffolk.
@erturklab.bsky.social
AI and tissue clearing-based technologies for health. Director at Helmholtz Munich, Full professor at LMU Munich, and CEO of Deep Piction (@deeppiction.bsky.social) We’re🇩🇪🇹🇷🇭🇷🇨🇳🇮🇹🇮🇳🇸🇮🇴🇲🇨🇱🇭🇺🇧🇬🇺🇦🇷🇴🇦🇹🇹🇼🏳🌈
@buonsenso.bsky.social
Pediatric Infectious Disease doctor. Fighting to care for children with Long Covid & ME/CFS. My book on my LONG COVID JOURNEY: https://tinyurl.com/4tsvhwat
@meassociation.bsky.social
A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change. RPs do not necessarily mean endorsement. www.meassociation.org.uk
@rory-stewart.bsky.social
@erinraeburn.bsky.social
Scribbler of stories, bookworm, nocturnal hermit, nature & whimsy lover, ME/CFS & fibromyalgia+, vaxxed/masked, socially-minded lefty on Wolastoqiyik territory. (New Brunswick, Canada) She/her.
@disrightsuk.bsky.social
We one of the UK’s leading Disabled People's Organisation run by and for Disabled people, working for justice and equality for all. https://linktr.ee/disabilityrightsuk
@clarejdaly.bsky.social
ME/CFS (1993) | Long Covid (2020). Occasionally Support @ Visible Health
@plantingforbees.bsky.social
Mum. Scot. Cat slave. Coffee, crime fiction, crochet, politics & plants. RHS Plants For Pollinators is my bible. Yarn hoarder. Animals ≠ food/sport. Decency in healthcare for #pwME. FM. 🥄 Ovarian Cancer - know the signs.
@hannahpreston.bsky.social
Research Communications Manager at Leeds University Business School, University of Leeds. Big fan of reading (literary fiction, historical fiction, memoirs, anything to do with circuses or lighthouses...), and going to gigs and the theatre.
@curelongcovid.bsky.social
Program Manager of The Covid Recovery Center at Brigham and Women’s Hospital in Boston MA. Opinions are my own. Here to advocate and educate (she/her) 💕
@karenlhargrave.bsky.social
Co-founder #ThereForME | Calling for an NHS that’s there for ME & Long Covid | www.thereforme.uk Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
@bekhonl.bsky.social
Life on hold since 2021 #LongCovid #POTS #ME Psychologist for 25 years CBT, EMDR, ACT. Here to advocate for biomedical research & treatment #PAIS #IACC. Painfully aware of the harm that was done by my profession to PAIS patients.