@dxrevisionwatch.bsky.social
Formerly monitoring/reporting on developments with ICD-11, ICD-10-CM, DSM-5, SNOMED CT & other classification and terminology systems
@arisonsned.bsky.social
Cat and Dog botherer. Young persons counsellor retired. Want my bike and my health back 🩵
@johnvsjonvsme.bsky.social
#JohnVsJonVsME campaign to get John Oliver or Jon Stewart to bring the awful history of #MyalgicEncephelomyelitis #GreatestMEdicalScandal to light JohnVsJon.com
@theoldlostroad.bsky.social
Severe #MECFS for a very long time. Loves nature poetry children hope. Hates arrogance dishonesty injustice.
@wilhelminaj.bsky.social
Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
@dsavannah.bsky.social
~ Life stolen by MEcfs-hEDS-fibro-POTS-&c; FT sick since 12/2014 ~ #LiveInBedButIAintDead ~ When brain & body behave: Chronic Illness Advocate ~ Discworldian, Browncoat ~🐱(x3)🐢💐🌻🌷📸📚🖼️ ~ she / her ~ Love Is Love ❤️💚🧡💛🩵💙💜🤎🖤🩶🤍🩷 https://linktr.ee/thedsavannah
@swiftsandswallows.bsky.social
My daughter had Severe ME, POTS & MCAS and died in 2024 after years of medical neglect. I am also the parent carer of a younger daughter with ME & POTS. Loves to see cute photos of cats, birds & animals so I can share with my daughter to brighten her day
@timhuttonau.bsky.social
Part time teacher | Occasional freelance writer | Full time sick/disabled person (ME/CFS) | Published in Eureka Street, Junkee, Crikey. Views my own. Based in Meanjin (Brisbane)
@lesleyhawes4.bsky.social
Public health, Microbiology, Epidemiology COVID-19, Antimicrobial Resistance & Stewardship in General Practice Wurundjeri land, Melbourne, Australia
@rose-mary-x.bsky.social
She/her | UK | Covid conscious | Disabled | ME/CFS | Long Covid | Vaccine Injured | Climate aware | Free Palestine | Socialist | Human rights | Sisters, not cis-ters
@eoineochaill.bsky.social
Former Health & Wellbeing Advisor, PT, Martial Artist, DJ/Presenter/Producer/Editor. Now, bedbound, chronic illness. MECFS, Long Covid, POTS, MCAS, EDS. Awestruck by stars, captivated by nature, perturbed for the future 🌍 AuDHD. Always learning 🧠 ☯️
@thepotspostman.bsky.social
Just a mailman with #POTS Here to spread awareness and advocate for those with #dysautonomia and #chronicillness
@putrinolab.bsky.social
@janenico.bsky.social
Covid informed #PlusLife user looking for all the smart people I followed on the other place… #MECFS ally #sisterofpwme #millionsmissing #cleanair #covidisairborne
@shematologist.medsky.social
Peds hematologist oncologist, mother, dreamer, pacifist, justice seeker. Retweeted by Wonder Woman #HemeSky #MedSky #CakeForBreakfast #IronMatters http://www.HCWvsHunger.org
@ashleygwinter.bsky.social
Urologist + Sex Med Doc. Los Angeles, CA Appointments: 202-888-6731
@emmagl.bsky.social
Co-founder #ThereForME | Calling for an NHS that's there for Long Covid & ME | https://www.thereforme.uk/ Linguist, DELTA-qualified English 2nd lang teacher | https://hiveofactivities.wordpress.com Design | https://emmarubystudio.com/ She / her
@karenlhargrave.bsky.social
Co-founder #ThereForME | Calling for an NHS that’s there for ME & Long Covid | www.thereforme.uk Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
@mhornig.bsky.social
Translational MD-scientist, mom, 🎶 | Bklyn born + bred Pathogen/microbe-host interactions + 🧠outcomes across the life course | gut-immune-🧠 axis #ASD #ADHD #PANS/#PANDAS #OCD affective disorders/#TRD Alzheimer’s #MECFS #LongCOVID All posts = my views
@dr-kevinlee.com
Physician-Imager: endocrinology & nuclear medicine #AusMedSky https://www.linkedin.com/in/kevinleefracp/
@wildlifelucy.bsky.social
Nature lover🐦, peace seeker, gentle soul. From engineer to psychology graduate. Now more husk than human🐌: Housebound Pw #MECFS #PoTS #CPTSD #Menieres
@neurologistmom.bsky.social
A neurologist, M.D., mother of a 16-year-old with #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains. 📍Seattle, WA
@itsmepz.bsky.social
Music 🎶 Film 🎞️ Long form journalism 🧐 Hot Chips 🍟 Happiest by the sea 🌊 Here to hang with chronically ill & socially isolated peeps and advocate for better care for #pwME. Living small with ME on unceded Whadjuk Noongar country ("Australia")
@mariannehout.bsky.social
Dutch. Bedbound with severe ME. Trying to find my way back to life.
@healingfromlc.bsky.social
@hopefullizzy.bsky.social
30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice✨ Bristol, UK
@naomidharvey.bsky.social
Zoologist & veterinary research. She/her. 22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️ Patient Expert in ME/CFS, POTS and syndromic Long Covid. Please excuse my typos.
@aaronca11.bsky.social
Billboard campaign/fundraiser here https://www.notrecovereduk.org
@katybrc.bsky.social
Myalgic Encephalomyelitis - M.E + POTS for 38 years Donor to the UK MEcfs Biobank for 10 years & @DecodeMEstudy Please watch http://dialogues-mecfs.co.uk/videos/ London, UK No DMs please #pwME
@drclairetaylor.bsky.social
@scienceforme.bsky.social
We are an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and the carers, clinicians, scientists and advocates who support us. This account is maintained on a part-time basis by patients.
@drrebeccaryan.bsky.social
Love everything Gut Brain Axis related. Gastroenterologist POTS, MCAS, hEDS, Long Covid, VCS
@danwyke.bsky.social
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: [email protected]