Amanda Crist
Here for the ME/CFS, EDS, autoimmune community. Trying to walk again
@covidcaution.bsky.social
Collection of news, resources, and discourse related to the ongoing COVID-19 pandemic & health advocacy. Occasional venting, hot-takes and memes. Los Angeles, CA.
@lauraleedukeshire.bsky.social
I used to work as a family doctor before I became disabled with Long COVID. #COVIDisNotOver Interested in politics, LGBTQ+ rights, Modern Monetary Theory, Autism, COVID/Long COVID, Gardening, Climate Solutions
@topazstudioscom.bsky.social
Lightworker 🪷 Grandmother • 3 chronic illnesses since early 2020 🥄 #longCOVID #ESKD #immunocompromised 💙 Volunteer at @renegaderesearch.bsky.social 🥩 animal-based keto
@planetjericho.bsky.social
LYRiCiST & GENRE-FLUiD BARD ALiEN TO MOST | HOME TO THE FEW. 🇬🇧 BRiT LiViNG iN LA 🇺🇸 🏳️🌈 ⚤ 👽| THEY/THEM | ANY/ALL EXTROVERTED iNTROVERT For legal reasons this account is satirical ⬇️SOCiALS | MUSiC | ViDEOS | TiCKETS https://blinq.me/Yx9mzu0qAHbTlhDGK3HZ
@dbkell.bsky.social
Research Scientist who prefers facts to lies. Focus on Long COVID. Free book: http://osf.io/pnxcs/.
@kenkers10.bsky.social
Let’s cook!! I’ll show you…If at all possible, please subscribe to my cooking YouTube channel https://youtube.com/@kenkers10?si=_OwLZ0YRFxuC-zMZ Ken…married 2 children, and I love gardening, dogs, strong IPA beer, and bourbon. Go NY Giants, NJ Devils!!!
@unrealarthur.bsky.social
ME Patient-ly Waiting for Biomedical Research | Volunteer @crunchme.bsky.social #GreatestMEdicalScandal @unreal_arthur
@christina4hope.bsky.social
👋ME/CFS ,Fibromyalgia , lyme Boriliose,Longcovid,MCS ,Vax Injured (not corrona vax),Hearing loss ect… Posts English and German. Bavaria ,Germany
@jefflubellc19.bsky.social
I am researching treatments for my daughter, who has hEDS, ME/CFS and other conditions, with implications for #EDS, #MECFS and #LongCOVID. I am a researcher, but not an MD.
@sweetsciencewriter.bsky.social
Science journalist, with bylines in Nature, National Geographic, the New York Times, the Washington Post and the Houston Chronicle. I cover a mixture of health topics, with a focus on conditions such as autism, ADHD, ME/CFS, POTS and Long COVID.
@fstevenchalmers.bsky.social
Retired person, was in tech industry for 37 years Self and family got multiple chemical sensitivity from a sick house incident in the mid 1990s Heretic, with a heretical research hypothesis on the nature of MCS and a dozen other complex chronic illnesses
@panickedfoodie.bsky.social
Scientist | Cornell Alum | Bedbound w/ severe illness | Gamer | #FluidMechanics #HeatTransfer #CovidIsAirborne #MayThurnerSyndrome #NutcrackerSyndrome #Endometriosis Bell: 10-20 TikTok, YT: The Panicked Diaries disabled.social Mastodon server admin
@isabelrb.bsky.social
CEO | Renegade Research | Project Director of Remission Biome NBC-HWC, AIP-C @remissionbiome.bsky.social
@binitakane.bsky.social
Long COVID/ME interested lung doctor | Campaigner for race equality, clean air & patient voice | Independent SAGE | Co-Founder South Asian Heritage Month YouTube: @LCCWYCD Enquiries: [email protected] Linktree: https://linktr.ee/binitakane
@julesahouston.bsky.social
Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights. I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new. #CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
@cortjohnson.bsky.social
Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
@sallywrites.bsky.social
MG author: Toby and the Silver Blood Witches, Max and Monty with Collins Primary Winner of the Book Bloggers' Novel of the Year Award 2022 Owned by three-legged rescue dog ME/CFS https://linktr.ee/SallyDoherty
@janetdafoe.bsky.social
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@broadwaybabyto.bsky.social
Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. Covid is airborne 😷 https://www.disabledginger.com A redheaded snippet who loves Sondheim. Once fainted into Hugh Jackman.
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Université de Montréal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter
@julierehmeyer.bsky.social
Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
@sfdirewolf.bsky.social
Author, editor, activist, cat lover. Founder of the Disability Visibility Project. #DisabilityJustice feed I created: https://bsky.app/profile/did:plc:65kss3ewg5ida5mjyuk73v5r/feed/aaaba7ikg4sho More about me https://linktr.ee/disability_visibility
@longcovidadvoc.com
A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time... 💙📚Home to the #pedanticzebra book club. https://www.longcovidadvoc.com/ 🛍️ https://longcovidadvoc.shop/
@irishmecfsassoc.bsky.social
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association NB: Posts should not be considered advice Registered Charity Number 20100254 CHY 22039 #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
@paulwatton.bsky.social
I was "TheGodofPleasure" on Twitter. I've had M.E. most of my adult life and am still trying to find a way out of it. I believe that Prof. Bhupesh Prusty is close to providing the answers.
@skyyks.bsky.social
Sky before BlueSky, she/her Actress/singer till pandemic hit; now a hermit. Queer logophile, polyglot, poet, educator, cat companion & islander. Anti-fascist Anti-capitalist Anti-Covid Pro-Democracy European 🇪🇺✌️ I Stand with Ukraine & Palestine 🎭 👩🏻🎤🛖🌈📚👅✍🏻👩🏻🏫🐈🏝️️
@janetsmall.bsky.social
"I've spoken my peace and counted to three." Former Twitter: @JaneyTheSmall. Opinions & snark about life, publishing, photography, hiking, genealogy, history, Christianity, marriage, science, nature, archaeology. SoCalifornia native. Tesla truth-teller.
@lifesavingdivorce.bsky.social
Divorce recovery leader for 20+ years in Christian churches. Yes, you can find joy again. For those who need a life-saving divorce to save their life & sanity. Author "The Life-Saving Divorce" http://amzn.to/3CCBsnr @GGBaskerville www.lifesavingdivorce.com
@jennysrmve71.bsky.social
Following covid aware folk to whichever platform keeps the information flowing and discussion going. Also climate change - I want to follow the scientists not the media!
@childabusesurvivor.net
A website written by and for child abuse survivors. - by Mike McBride https://www.childabusesurvivor.net
@pamelarbishop.bsky.social
Was research professor, now disabled by #LongCOVID (12/7/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
@erincandy.bsky.social
🇨🇦Just a chronically ill East Coast girl with a sailor mouth. #NB History/Science/Politics/Gaming/Movies/ #Leafs Hockey/Creator/Cat Rescuer Leukaemia cancer survivor! Anti-fascist/Anti-disinfo activist. Battling #LongCovid since March 2022 #MCAS #POTS ♑
@sunsopeningband.bsky.social
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
@davetuller1.bsky.social
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. [email protected]
@mefoggydog.bsky.social
Award-winning #socialenterprise in #UK. Working for #socialchange for the #MECFS community. Linktree - http://bit.ly/408o6LI
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@immunofever.bsky.social
Immunoengineer at MIT BE developing predictive diagnostics. Captivated by #inflammation, #SexDifferences #Lyme, #COVID, #IACI, #IACC and #onehealth. Mom of 2. prev/ PhD in Immunology @Yale; PostDoc @Stanford https://talresearchgroup.mit.edu/
@sabrinapoirier.bsky.social
#CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis + #MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability (Unceded) #Canada https://linktr.ee/sabrinapoiriercanada
@naomidharvey.bsky.social
Zoologist & veterinary research. She/her. 22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️ Patient Expert in ME/CFS, POTS and syndromic Long Covid. Please excuse my typos.
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: [email protected]