Sharon Bee
Brexit pushed Uk migrant navigating life in Spain. Mum to two phenomenal kids living with the genetic metabolic condition PKU.
https://www.researchgate.net/profile/Sharon-Buckley-2
@emmavardy2.bsky.social
Physician. Honorary Professor of Geriatric Medicine, University of Manchester. Delirium. Dementia. Quality improvement. Book lover. Mum to daughter with PKU.
@lillianisabella.com
@espku.org
E.S.PKU - European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria in the umbrella organization of about 41 national and regional associations from 31 countries established by parents and/or patients.
@pkuday.org
International PKU Day was established and is led by the E.S.PKU to celebrate the legacy of Horst Bickel and Robert Guthrie as well as to raise awareness of Phenylketonuria.
@diarioalicante.bsky.social
Medio de comunicación/noticias 🧡 Tu Periódico Digital Desde Alicante 🗞 Noticias, planes, cultura, eventos y más 📲100% independiente 📩 [email protected] 🌐 Sigue las #Noticias ( #News ) en: https://diarioalicante.es/
@hammerschmidt.io
@duncann-n.bsky.social
Specialist Nurse, tenor, travel loving, new experience, answer seeking type of guy. Lifelong PKU experience and on treatment #PKU #RareDisease Own views shared
@jjunebrown.bsky.social
Author, public health advocate, genetics PhD. Creatively driven, scientifically inspired. Mom of 2 with the rare inherited health condition #PKU. https://jjbrownauthor.com/ is my author site and "When the Baby Is Not OK: Hopes & Genes" my newest book.
@kevinalexander-pku.bsky.social
🧬 Adult with Phenylketonuria (PKU) 🎥 Storyteller 📔Writer 🎸 Musician
@pgcgenetics.bsky.social
With 800+ international scientists & 900,000 participants, the PGC is the largest biological investigation in the history of psychiatry 🧬
@psychgenomics.bsky.social
Prof Psychiatric Genetics KCL. Lead King's Genomics facility, Genetic Links to Anxiety and Depression (GLAD) Study, and the UK Eating Disorders Genetics Initiative (EDGI-UK). Gratitude to my wonderful research group, staff, and collaborators.
@spaintravel.bsky.social
Sharing original photos and travel information on Spain! Curated by Kali Marco. #TravelWriter & #TravelPhotographer based in #Spain #TravelBlogger on https://www.kalitravel.net/ FB Group: https://www.facebook.com/groups/SpainTravelVacation
@getmetospain.bsky.social
HOLA, WE’RE NEIL & SUE, #retired early and now living in #APlaceInTheSun in #CiudadQuesada on our #NLVs (Non Lucrative Visas) We call our channel “Get Me To Spain” ‘cos that’s what we used to say when we were feeling miserable in the rain in South Wales
@drrachaeltan.bsky.social
NIHR Clinical Lecturer in Diabetes and Endocrinology and Mum to a daughter with PKU
@diarioinformacion.bsky.social
INFORMACION es el periódico de la provincia de Alicante y líder tanto en difusión como en audiencia. Desde 1984 es editado por Editorial Prensa Alicantina, S.A., sociedad que forma parte del grupo Prensa Ibérica.
@helenevans.bsky.social
Final year PGR and Research Assistant at The University of Birmingham. Singer, Songwriter and Musician. Artist. Researching the value of student-led research as a model of SEND student voice. Interested in all things accessible and collaborative.
@squirrelt.bsky.social
Professional interest in nutrition in rare disease. Very amateur interest in music and sport !
@brianrifkin.bsky.social
General and Interventional Nephrologist #MedSky #NephSky, pragmatist, lover of memes/GIFs/bad dad jokes, artist, singer, NephJC editor, NephSIM mentor, GlomCon grad. Air Force veteran and type 1 diabetic (insulin pimp).
@phenylcetonurie.ca
🤔 Je parle de saine santé globale et de vie active avec la phénylcétonurie. 🫐 8g de protéines par jour. 🤔 I talk about healthy overall health and active living with phenylketonuria. 🫐 8g of protein per day.
@sheehangilroy.bsky.social
Lecturer Researcher Advocate #PKU #LowProtein #BrainHealth #RareDisease "Ní neart go cur le chéile" The views and opinions expressed here are solely my own
@malhen.bsky.social
Board member of European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria, social services specialist, patient advocate. ♥️: 📖🚗✈️🎶📺
@debscohen.bsky.social
Broadcaster and writer | Senior visiting fellow, LSE | Escapee medic | Former health correspondent, BBC Newsnight | Science editor, ITV News | Investigations editor, BMJ | Scouse https://www.specialistspeakers.com/?p=16769
@natashaloder.bsky.social
Health Editor, The Economist. #Science #medicine #health, aspiring optimist, omnivorous information eater, mother of dragons. Free words at: Overmatter.substack.com
@kellieocallaghan.bsky.social
Lived Experience, Patient & Community Engagement 🧩 Governance & Regional Development 🔗 Wayfinding 💭 Chair, Regional Development Australia - Gippsland 🦘 Chair, Mental Health & Wellbeing IRB 💬 Mayor, Emeritus 👩⚖️ Gunaikurnai Land, Gippsland Australia 🏡
@pdmckellar.bsky.social
@obliviating.bsky.social
Writer, author, activist, organizer, managing editor, podcast host, resister. Progressive 420 Democrat. Pro-Ukraine Woke as F 💙 🌈✊ #BLM #BlueCrew #NAFO #FAFO LGBTQIA2S #Resistance He/Him. Don’t agonize, organize!
@sen-advice.bsky.social
Lucky Husband & Dad. Education & social care lawyer #send #ehcp. Dedicated to protecting rights of people with disabilities. Myth debunker. "That Ed Bloke". Director at HCB. Kindly reviewed by Chamber & Partners. Posts ≠ advice. Own view
@lisamorriss.bsky.social
Academic @ Sociology Lancaster, PI Keeping Mothers in Mind. Interested in Hope, Motherhood, Mental Health, Futures, Ghosts, Archives, Loss, Tattoos
@profkrc.bsky.social
#mothering #disability #education #SocialCare #activism #PeakDistrict - Professor of Education, she/her
@trishaelliott.bsky.social
Interested in life in general & people in particular. Living in Edinburgh, now enjoying a non clinical role, but still a doctor at heart. Posting about medicine, health, social inequalities, sport, politics, Scotland, sustainability, veggie food & cats.
@emilycatewrites.bsky.social
27 • writer • ⚢ • coffee junkie • swiftie • tarantula mama • collector of disabilities
@markmaguireb.bsky.social
Works #museum #education. Here for the #art, #comics, #SciFi, #news | Photos mine or otherwise credited. Followers with bio, activity, etc. more likely to become mutuals | ☘️ #SpeirGorm / #SpéirGhorm | 🐘 @[email protected] | 🧵 @markbmaguire
@clairbear42.bsky.social
PKU ADHD Mother to my bb g & lil black cat, xbox player, crotchet hooker, ginger and expert on ice cream.
@jimd-editors.bsky.social
The Journal of Inherited Metabolic Disease (JIMD) is the official journal of the Society for the Study of Inborn Errors of Metabolism (SSIEM). Social Media maintained by James Nurse
@martinlewis.moneysavingexpert.com
Founded MoneySavingExpert, Money & Mental Health Policy Institute, (ish) the Martin Lewis Money Show ITV & Martin Lewis Podcast
@nowthenthee.bsky.social
Dadding, nursing, PKUing. House servant to the child and @emmavardy2.bsky.social
@womcogdevlab.bsky.social
Working Memory, Cognition and Development lab 👩🏼💻🧠 at the University of Geneva 🇨🇭 PI: @evievergauwe.bsky.social
@bertsbooks.bsky.social
Swindon based independent bookshop, visit us online or in person! bertsbooks.co.uk - or 54 Godwin Court, Swindon, SN1 4BB Email us on [email protected]
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: [email protected]