@filowenstein.bsky.social
writer + journalist covering health justice, wellness culture, LGBTQ+ stuff + more... https://www.fionalowenstein.com/ The Long COVID Survival Guide: https://theexperimentpublishing.com/catalogs/fall-2022/long-covid-survival-guide/ they/them
@lizwhatsherface.bsky.social
abolitionist artist / CEO of GAY ARBYS / sentient sandwich linktr.ee/lizwhatsherface realgayarbys.com
@postviraltrials.bsky.social
News and information about interventional trials for Long Covid, ME/CFS, POTS, and other post-viral illnesses. Message or tag me if you’re in a trial or otherwise have information to share.
@ninjazz636.bsky.social
#LongCovid-disabled first waver. Loves gardening and decorating. Cheese addict. Science. Climate. 🏳️🌈 ally. Pardon my French! 💚 Green means hope. #AirborneAware 😷 #FuckTrump #SlavaUkraini 🇺🇦
@rubyslippahs.bsky.social
COVID long-hauler, former archaeologist, opera singer, now fed employee. Kids, homeless, dogs. Isotopes+🍩 #WearAMask 🌎Ba'al Pit FB: is.gd/bp2vTA Media: covidlonghaulers@gmail.com YouTube.com/@covidlonghaulers @CLHAgainstFascism.bsky.social She/her
@petecaruso.bsky.social
Treat Long COVID, ME, POTS, Sjogrens, Mast Cell, and Chronic Lyme. Develop safe vaccines, treat vax. injury. Spouse has ME 30+ yrs. Pfp: A man wearing a green face mask Banner: Colorful posters & MEmes from patient-led Long COVID and ME awareness
@broadwaybabyto.bsky.social
Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. Covid is airborne 😷 https://www.disabledginger.com A redheaded snippet who loves Sondheim. Once fainted into Hugh Jackman.
@drclairetaylor.bsky.social
@thesicktimes.bsky.social
A nonprofit news site chronicling the #LongCOVID crisis. Founded by journalists @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social Website: thesicktimes.org Newsletter: thesicktimes.org/newsletter Donate: the-sick-times.fundjournalism.org
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Université de Montréal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter
@patientled.bsky.social
Patient-Led Research for #LongCovid! http://patientledresearch.com
@emilyesfraser.bsky.social
Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@janetdafoe.bsky.social
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
@phicd.bsky.social
Another Australian (Cypriot & Greek) designer existing in Berlin. Been to hell & back thanks to the pandemic. End #prescribedharm #longcovid #MECFS check @sophsoph.psd & @berlin_buyers_club on the gram
@sfdirewolf.bsky.social
Author, editor, activist, cat lover. Founder of the Disability Visibility Project. #DisabilityJustice feed I created: https://bsky.app/profile/did:plc:65kss3ewg5ida5mjyuk73v5r/feed/aaaba7ikg4sho More about me https://linktr.ee/disability_visibility
@lisadiedrich.bsky.social
Current projects: #IllnessPolitics, Keywords/Images in Graphic Medicine, & Multi-modal Pedagogies in Action. Author of ILLNESS POLITICS & HASHTAG ACTIVISM, TREATMENTS, & INDIRECT ACTION. Blogging at: lisadiedrich.org
@remissionbiome.bsky.social
Community Science Project http://RemissionBiome.org
@nelehelena.bsky.social
I'll "tweet" here about the things I don't like if the other app goes down
@fvrhijn.bsky.social
MD | rheumatology resident #ME due to #LongCovid Nonbinary 🌈🌈🌈🌈 | views are mine.
@marijiserbij.bsky.social
Grunneger met Rotterdamse 'r'. Roze hoodie, panter Vans, zwarte ziel. Precies cynisch genoeg, maar flexibel af te stellen. Had vroeger al gelijk, voordat het hip werd. ME/CVS ✔️ Also available in English ME/CFS✔️
@jetroz.bsky.social
Former art historian, curator, traveler and hiker turned Long Covid patient. Five years and counting 🛏️🧟♀️
@vickyvdtogt.bsky.social
Community organizer | Researcher | Advocate | Director of development at Research-Aid Networks 🌐 Author of The Long Covid Symptom Diary, now available in EN, NL & ES! - www.ddxpublishing.com
@jimfaas.bsky.social
zo nodig dwars |verzekeringsarts | jurist | phd | docent | schrijven | lezen | zingen | radio dj | kunst & kunde | semper fi
@sjoerddruiven.bsky.social
"Nee, het is niet psychisch, conditie, luiheid, gebrek aan ritme, doorzetten, immuunsysteem..." "Klopt. Er is geen behandeling." "Dank je. Ik heb geen interesse in handoplegging" Zaagt door over fietsen & politiek Ook @politiek-sjoerd & @fiets-sjoerd
@thisistheillme.bsky.social
🇬🇧: Severe ME & long covid 🇳🇱: Auteur van 'De achterblijvers' (Uitgeverij De Geus) 🏳️🌈
@jhanne.bsky.social
housebound, would like new body, knitting and reading MECFS, MCAS, B12-deficiency, hypermobilty, wonky neck, breathing problem, cancer, on my way to the end
@marielles.bsky.social
Passie voor onderzoeksjournalistiek & literaire non-fictie | Auteur van ‘Landziek, een medische geschiedenis’ | Vogelaar vanuit huis | Zin in meer natuur | ME/POTS
@itsmerieke.bsky.social
moeder•vrouw•vrolijk•doorbijter•hoopvol•sarcastisch•eigenwijs•ik❤️te veel van gifjes•typgriep•huis/bedgebonden:MEcvs• I AM ONE OF THE #MillionsMissing• Ik ben #NietHersteld
@vanzelst.bsky.social
Verpleegkundig specialist huisartsenzorg Politiek junkie Heeft een lage tolerantie voor bullshit
@vmatthiesboon.bsky.social
Professor by Special Appointment - Head of Department of Ethics and Political Philosophy, Radboud Uni. Interests: Long Covid, Health Justice, Postviral Ethics, Trauma, Critical Theory,
@mariannehout.bsky.social
Dutch. Bedbound with severe ME. Trying to find my way back to life.
@beadekkers.bsky.social
LongCovid, MEcvs, POTS en MCAS sinds oktober 2020. Voorheen autisme specialist MSEN, persoonlijk begeleider VG zorg, nu WIA, IVA Samen met @marcbalemans en labrador Fiep
@healingfromlc.bsky.social
@lauravictorine.bsky.social
Former medical doctor | PhD | Living with moderate/severe Myalgic Encephalomyelitis (ME) | Dutch 🇳🇱 | Cat mom of two | #pwME #myalgicencephalomyelitis #myalgicE
@nnkmll.bsky.social
Be the I in unify. Disabled artist & activist, housebound with ME, Covid cautious, loves her kitties and her bf’s butt 🩷 she/her Auteur van ‘We Zijn Allemaal Wel Eens Moe’ nu in de winkels 🥰
@bekhonl.bsky.social
Life on hold since 2021 #LongCovid #POTS #ME Psychologist for 25 years CBT, EMDR, ACT. Here to advocate for biomedical research & treatment #PAIS #IACC. Painfully aware of the harm that was done by my profession to PAIS patients.
@ontwarontwaar.bsky.social
ME-warrior, homo universalis, mind the body, train the brain with words, train the soul with feelings.
@jennywren10.bsky.social
@hermien.bsky.social
Ik onderzoek, adviseer en schrijf. Ik ♥️ taal, bibliotheken, literatuur, filosofie, politiek, geschiedenis. #NietHersteld - De Podcast @NietHersteld.bsky.social
@samsewams.bsky.social
Schools & other indoor spaces should be safe for everyone. Trying to avoid covid.