Isabelle
Posting about my live with #LongCovid in order to find new ways of engaging with it and making an invisible illness visible
@ninaweber.bsky.social
Medizin-Redakteurin beim SPIEGEL, Biochemikerin, Buchautorin. https://www.spiegel.de/impressum/autor-de0618d4-0001-0003-0000-000000015007
@liegenddemo.bsky.social
Info zu den Liegenddemos, zu den Kampagnen und vieles mehr unter unter http://mecfs-info.de
@buechnerronja.bsky.social
psychologist | phd student @UniLeipzig | psychotherapist in training | my research is on psychologization & stigma of Long Covid
@placentadoc.bsky.social
Associate Professor of OBGYN. MFM Clinician-Researcher (placenta & cardiometabolic health) at Western University, London (the one in Ontario) Usually covered in 🐕 🐩 🐈 hair & 🎨 Placentavangelist. Opinions are my own.
@nitajain.bsky.social
Chronic disease research and advocacy | Founder of Timeless Biosciences | Creator of spooniverse.directory | https://www.nitajain.com/
@h2obio.bsky.social
Passionate swimmer housebound due to LongCovid. Interested in biology, biochemistry, systems theory, exercise science and LongCovid/MECFS remission reports.
@renegaderesearch.bsky.social
Renegade Research (RR) is a non-profit 501c3 decentralized organization pioneering patient and caregiver led research focused on ME/CFS and LongCovid... Website: https://renegade-research.org 💙 Project: @remissionbiome.bsky.social
@longcovidjustice.org
We are leading grassroots efforts to confront the Long COVID crisis, while centering racial, social, economic & disability justice. Our work is done by and for chronically ill & disabled people, our families and communities. linktr.ee/longcovidjustice
@longhaulerspodcast.bsky.social
We’re a community of Covid longhaulers who have been brought together by this illness. We share the stories of folks who have been through it, who are going through it, and how they’re surviving it. #LongCovid #CovidIsntOver #CovidIsAirborne #CovidSky
@thenicotinetest.bsky.social
The Nicotine Test -- a patient-led research project to evaluate the benefits of the nicotine patch for people living with #LongCovid. #TheNicotineTest #LongCovid #MECFS
@longcovidcollect.bsky.social
Austin based non-profit dedicated to supporting & improving the lives of those with Long Covid and other chronic illnesses. Reposts ≠ endorsements. Not medical advice.
@ralfwittenbrink.bsky.social
Es gibt immer noch eine große Lücke zwischen dem, was die Öffentlichkeit über COVID-19 weiß, und dem, was sie wissen sollte. Deshalb hier Infos über COVID-19.
@pflegeherz.bsky.social
Krpfl. - Med./Pfleg. Bubble: SARS-CoV-2, LC, PCS, ME/CFS, Studien, Berichte. Datenbanken- Sammlungen: https://bsky.app/profile/pflegeherz.bsky.social/post/3kaonldkiip2r Übersicht Servicetweets: https://x.com/Pflegeherz12/status/1756714336892973082
@apresj20.bsky.social
Compte officiel #ApresJ20 Association Covid Long France visant à favoriser la Reconnaissance, les Soins, la Recherche et la Communication sur le #LongCovid
@dgmecfs.bsky.social
ME/CFS ist eine schwere körperliche Erkrankung, die bisher kaum erforscht ist. Wir setzen uns für die Interessen der Erkrankten und mehr Forschung ein. mecfs.de
@neurostingl.bsky.social
Facharzt für Neurologie ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
@renzpolster.bsky.social
physician-researcher, paediatrician, ME/CFS since 2016. This account is about science, esp. CFS
@fatigatioev.bsky.social
Wir unterstützen Menschen mit ME/CFS (Myalgische Enzephalomyelitis / Chronisches Fatigue Syndrom) und setzen uns seit 1993 für Versorgung, Forschung und Aufklärung ein. Größte deutsche Patientenorganisation mit gut 3.000 Mitgliedern.
@scheibenbogen.bsky.social
Immunologist and ME/CFS researcher @Charité https://cfc.charite.de/
@allyann.bsky.social
Living with & advocating for ME, POTS & FM, ex-IT. Homebound & at times bedridden. News and Recipe junkie. Living in Millowl, home of the Bunurong people, Victoria, Australia
@no1sarah.bsky.social
She/her. 🏳️🌈🏳️⚧️ ally @sarahslowsdown on the bird app In healthier times: Health & social care; homelessness & housing. Music, music, music. 🎶 Mostly here to connect with #LongCovid #MECFS #ChronicIllness #Dysautonomia #hEDS #MCAS
@sfdirewolf.bsky.social
Author, editor, activist, cat lover. Founder of the Disability Visibility Project. #DisabilityJustice feed I created: https://bsky.app/profile/did:plc:65kss3ewg5ida5mjyuk73v5r/feed/aaaba7ikg4sho More about me https://linktr.ee/disability_visibility
@fascinatorfun.bsky.social
Retired Lawyer, cook, Europhile, books, music, good conversations, gardens, walking. Bird site refugee 🇬🇧 🇮🇪
@ariskatzourakis.bsky.social
Viruses, Evolution, Education, Trade Unions, things like that. Prof at Uni of Oxford, NEC member for UCU. Posts mine, reposts not.
@julierehmeyer.bsky.social
Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
@betsyladyzhets.bsky.social
editor/co-founder @thesicktimes.bsky.social | journalist covering Long COVID & related crises | she/her/🏳️🌈 email: betsy@thesicktimes.org | signal: betsyladyzhets.25 | https://thesicktimes.org/
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Université de Montréal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter
@francesryan.bsky.social
Guardian columnist and journalist. Commentator of the Year 2024. Author of Who Wants Normal? and Crippled. E: frances.ryan.freelance@guardian.co.uk
@nisreenalwan.bsky.social
Professor of Public Health. Southampton, UK. Citizen of the world☀️ Posts are my own personal opinions not those of any organisation. Reposts are not necessarily endorsements. Anti-war, anti-discrimination, pro-equity, pro-feminism, pro-nature, pro-science.
@cathnoakes.bsky.social
Pro Dean Research and Innovation in Engineering and Physical Sciences at Leeds University. Indoor air, ventilation, infection risks, fluid dynamics, academia, EDI in science and a few cats. Views my own. #academicsky
@jessicawildfire.bsky.social
Professional doomscroller https://www.the-sentinel-intelligence.com/
@broadwaybabyto.bsky.social
Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. Covid is airborne 😷 https://www.disabledginger.com A redheaded snippet who loves Sondheim. Once fainted into Hugh Jackman.
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@toshiakima.bsky.social
Nephrology & Internal Medicine. Immunothrombosis incl DIC. ISTH Member. No Conflicts of Interest. Views my own etc
@bmhughes.bsky.social
Concerned citizen • Prof Psych • Writer • Galway • he/him A blog: https://thesciencebit.net/ A bio: https://brianmhughes.com/ A book: https://bloomsburycp3.codemantra.com/viewer/63721f10ee35880001aafadc 📷 https://www.photoblogism.net
@sabrinapoirier.bsky.social
#CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis + #MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability (Unceded) #Canada https://linktr.ee/sabrinapoiriercanada
@laylamoran.bsky.social
Member of Parliament for Oxford West and Abingdon | Chair of the Health & Social Care Select Committee | Here because Musk ruined the ‘other (social) place’ | she/her | Promoted by the Lib Dems, Unit C5 Grange Court, Barton Lane, OX14 3NB
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@profstevegriffin.bsky.social
Professor of Cancer Virology, University of Leeds. Co-Chair, Independent SAGE
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@dalupton.bsky.social
Prof, Arts, Design & Architecture, UNSW Sydney, Australia. Clean air/COVID safety advocate/activist/researcher. Other health and digital media research too. Personal blog: https://simplysociology.wordpress.com/
@cleanairstars.com
Non-profit. Helping businesses better protect their customers from viruses like SARS-CoV-2. Fix your air with the guides cleanairstars.com/steps. Air filter recommendation tool (non-profit) at filters.cleanairstars.com
@janetdafoe.bsky.social
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
@physiosforme.bsky.social
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME Find out more at physiosforme.com
@drkatecushing.bsky.social
Doctor, scientist, mum, recently retired w ill health. Public Governor Newcastle upon Tyne Hospitals Trust Long Covid & CCH. Love Northumberland/Newcastle, owls/wildlife/books/art/music/politics/EU Wrote Little Orange Book 4 parents of babies & small kids.