@chromatowski.bsky.social
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing. ME ‘05, LC ‘23, many of their friends along the way. Very severe (FUNCAP 0.8). No unsolicited advice please!
@drdendunnen.bsky.social
Immunologist and Head of Department of CIMM at the Amsterdam UMC, Netherlands. My team studies the role of antibodies during infection and autoimmune diseases, with a particular focus on post-acute infection syndromes (PAIS), such as Long-COVID and ME/CFS.
@brianvastag.sciencemastodon.com.ap.brid.gy
Occasional science reporter at The Washington Post and elsewhere. Disabled by complex chronic post-viral illness. Living on #Kauai #Hawaii. Sometimes […] [bridged from https://sciencemastodon.com/@brianvastag on the fediverse by https://fed.brid.gy/ ]
@oonaghcousins.bsky.social
@delton.bsky.social
Science enthusiast and researcher. Excited about the future. I write about science, metascience, progress studies, AI, and other topics. speak the truth, even if your voice shakes. http://moreisdifferent.blog
@cgatist.bsky.social
Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
@whitneydafoe.bsky.social
Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
@davetuller1.bsky.social
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. [email protected]
@ozfish.bsky.social
Retired maths teacher. ME/CFS 35 years. Volunteer staff member on Science for ME international forum, www.s4me.info
@ravihvj.bsky.social
Post-Covid ME/CFS since March 2021. Before then, a life I loved. Stanford History | 2021 Schwarzman Scholar
@scienceforme.bsky.social
We are an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and the carers, clinicians, scientists and advocates who support us. This account is maintained on a part-time basis by patients.
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@swastrosarah.bsky.social
Speaking up for everyone affected by severe/very severe #ME. Medical science has everything to learn about human biology from the post infection disease ME. #MEKills backstory https://x.com/swastrosarah?lang=en-GB
@betsyladyzhets.bsky.social
editor/co-founder @thesicktimes.bsky.social | journalist covering Long COVID & related crises | she/her/🏳️🌈 email: [email protected] | signal: betsyladyzhets.25 | https://thesicktimes.org/
@putrinolab.bsky.social
@patientled.bsky.social
Patient-Led Research for #LongCovid! http://patientledresearch.com
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@me-cfs.mastodon.social.ap.brid.gy
ME/CFS News Aggregator run by Yann @me-cfs.bsky.social. Based on my news aggregator webpage https://mecfsadvocacy.org/news/community/ (Run by @me-cfs.bsky […] [bridged from https://mastodon.social/@me_cfs on the fediverse by https://fed.brid.gy/ ]
@sgme.bsky.social
💙 Fighting tirelessly for ME patients in Switzerland and worldwide 💙 #MyalgicE #MEawareness #MyalgischeEnzephalomyelitis
@richardvallee.bsky.social
I play language. Mostly irreverent. Debugger. AI. Global warming. Integrity. Health. Science. Chronically ill punk rocker. I think about the future a lot.
@stiingjason.bsky.social
e.g. artist, dog-lover, avid reader, jet flyer & fruit picker. Too dead to die. #ME #LongCovid.
@binitakane.bsky.social
Long COVID/ME interested lung doctor | Campaigner for race equality, clean air & patient voice | Independent SAGE | Co-Founder South Asian Heritage Month YouTube: @LCCWYCD Enquiries: [email protected] Linktree: https://linktr.ee/binitakane
@implausibleblog.bsky.social
Content Creator 🤓 Photo Video & Drone Pilot 🎥 Entrepreneur & Tech Geek 🤖 Food & Chocolate Judge 😋 And now news as frustrated 👀 Better together: 🇬🇧 & 🇪🇺 [email protected]
@lauramiers.bsky.social
Chronically ill, LongCovid since 2020. Public health advocate and lived experience expert. Ex-Texan. Medicine, languages, Sociology, & law. Global citizen & polyglot.
@larryandpaul.bsky.social
Writers. Actors. But most of all: Mothers. 🎬 SKETCHES: http://youtube.com/larryandpaul 💸 SUPPORT: http://ko-fi.com/larryandpaul
@goodlawproject.bsky.social
We use the law to create a better, fairer and greener future. Support us: https://goodlaw.social/donate-bsky Contact us securely: https://goodlaw.social/got-a-tip-off-bsky
@supertanskiiii.bsky.social
Tan Smith. Political Commentary, Pisstaking. Satire. Dystopia Warner. Writer. Photographer. Hate Tories? You’ll love me. She/her. YouTube https://youtube.com/@supertanskiii?si=4VUI_s-l7bfc1obT You can shout a coffee here https://ko-fi.com/supertanskiii
@meetjess.bsky.social
Lover of all animals. Nature admirer. Elderly advocate. Bookworm. Sarcastic & compassionate. Music lover. Fierce Mama bear. #WeNotMe #COVIDISAIRBORNE
@broadwaybabyto.bsky.social
Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. Covid is airborne 😷 https://www.disabledginger.com A redheaded snippet who loves Sondheim. Once fainted into Hugh Jackman.
@marina-purkiss.bsky.social
I’m not always having a go at wrong’uns…sometimes I’m sleeping | Political Commentator & Co-Host of The Trawl Podcast https://linktr.ee/thetrawlpodcast | @jeremyvineon5 | @skynews |
@covidisntover.bsky.social
Linktr.ee/covidisntover Community calendar of virtual events Community bulletin board Resource doc Weekly accessible actions for Palestine event @centeringpalestine on IG
@guinesspig.bsky.social
Comedian & writer with Long Covid *Posts are for humor & entertainment* I write #MaskholeClapbacks jokes & essays for the Covid-Cautious community at guinesspig.ghost.io Read Wayside: A serial novel for free at: tinyurl.com/wayside-novel
@theresisters.bsky.social
@julesahouston.bsky.social
Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights. I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new. #CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
@ninawildflower.bsky.social
Music fan. UK science teacher in an FFP3 mask. The right mask makes it easy to sing, perform, teach, or speak in public. #N95 #FFP2 #FFP3 #YallMasking He/him
@cvcev.bsky.social
𝗖𝗼𝗿𝗲 𝗣𝗮𝗿𝘁𝗶𝗰𝗶𝗽𝗮𝗻𝘁 in the 𝗨𝗞 𝗖𝗼𝘃𝗶𝗱-𝟭𝟵 𝗜𝗻𝗾𝘂𝗶𝗿𝘆 #FBCV (follow back CV) and JOIN us on FB 📸cv_cev ❌️@cv_cev www.clinicallyvulnerable.org
@erincandy.bsky.social
🇨🇦Just a chronically ill East Coast girl with a sailor mouth. #NB History/Science/Politics/Gaming/Movies/ #Leafs Hockey/Creator/Cat Rescuer Leukaemia cancer survivor! Anti-fascist/Anti-disinfo activist. Battling #LongCovid since March 2022 #MCAS #POTS ♑
@sunny-rae1.bsky.social
Consultant Cardiologist, also treating and researching Long Covid. Long Covid Advisory Team @ WHN, #TeamClots, Medical Champion @ Long Covid Kids. Prevention is better than cure. Views my own and not medical advice x
@catinthehat.bsky.social
Mum • Lover of nature and clean, fresh air • Passionate about science • “Without data, you’re just another person with an opinion.”
@peteuk7.bsky.social
Chemistry. ChemEng. UK DIY filter team. Use shared air mitigations. High quality FFP2/3/N95 masks, ventilation, effective air filtration. Spaces Host elsewhere.
@johnsnowproject.bsky.social
Reliable, honest information on COVID-19 from public health, clinical, and research experts. http://johnsnowproject.org
@coopspeak.bsky.social
Opinionated & Age Raging •She/Her•ProChoice• Twitter Refugee•CoHost @TheReSisters w/@mjnabuurs Community Matters • Protect Public Institutions & Libraries • NEVER COMPLY #HealthcareIsAHumanRight #CleanAirIsMyJam #DoNoHarm #CookingAtHome #SoberLife
@skibu.bsky.social
Long Covid has annihilated me. Disabled musician. Created tech behind transit data companies Swiftly and NextBus. Person behind robotaxi.news & helpBluesky.me . Co-founder of Walk SF. The War on Cars will be won by @safeStreetRebel !
@julialmv.bsky.social
Long COVID patient-researcher @ Scripps Research & Patient-Led Research Collaborative