@tilmanandris.bsky.social
Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs
@amyboylanwrites.bsky.social
Freelance #copywriter. PhD Geology. Life on ⏸ 1st 🌊 #LongCovid #PoTS #MCAS #LongCovidKids #CovidIsAirborne 😷
@benking01.bsky.social
Long Covid & PE recovery. GeographyTeacher. Sustainability & Climate Change. BSc Env Science & Physics (Stirling). Soil Erosion PhD & Geog PGCE (Exeter). Tuba player. Devon, UK.
@buds-disability.bsky.social
A community of disabled people working together to remove the barriers that disable us. Registered Charity 1102511 #Fair4All #Reach4Work
@stephenmia.bsky.social
Former Skier, Cyclist, Climber, Hill Walker, Diagnostic Radiographer and functioning human. Now - ME, POTS, LC, Vax Injury - Pro Vax - Still finding the joy
@jengovey.bsky.social
I dress up in fancy dress for the charity Invest in ME Research to raise funds & awareness of Myalgic Encephalomyelitis. In a previous life I worked in film. I’m an advocate for good science, treatments & better healthcare for #pwME.
@chronicchannel.bsky.social
Youtube Channel covering Chronic Illness, Universal Basic Income and Air Quality. https://www.youtube.com/@ChronicIllnessChannel Clean The Air http://bit.ly/CleanTheAirUK
@antoniocaramia.bsky.social
@whitneydafoe.bsky.social
Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
@hopefullizzy.bsky.social
30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice✨ Bristol, UK
@stickmancomms.bsky.social
Stickmen helping to build understanding and acceptance of hidden disabilities and chronic illness, in a way that empowers us. (Run by Hannah Ensor - who has #hypermobility #PoTS and probably other stuff.) +talking about personal experience of #disability
@ciarawrightphd.bsky.social
Long Covid March 2022, life on pause as Functional Medicine Nutritionist, Scientist, Mountain Runner. Loves trees, houseplants, dogs, profanity. Liberal Atheist, she/her
@jamesglen.bsky.social
Having a bit of a break O_o ● Founding member @LongCovidSupport ● Long Covid & MECFS advocate #FBLC ● Arts Centre Director ● Watford FC fan ● #FBPE 🇪🇺
@drjogreer.bsky.social
Mum, Carer, Myalgic Encephalomyelitis (ME) Advocate, Educational Psychologist
@ruairidhm.bsky.social
Long Covid since March 2020. “Nothing about me without me” - doesn't seem unreasonable. Previously: health research, public health, technology assessment and appraisal Also some Shetland!
@dormousediaries.bsky.social
Cartoonist, #BylinesNetwork, occasional artist, writer and sketcher of things. Likes tea and books. Sometimes hibernates. Living with #LongCovid
@ravihvj.bsky.social
Post-Covid ME/CFS since March 2021. Before then, a life I loved. Stanford History | 2021 Schwarzman Scholar
@jceoltasmith.bsky.social
Background #RetiredOccupationalTherapist due to #LongCovid background in vocational rehabilitation & PhD research includes #DWP policy, provision & front line practice. Not fully active here yet.
@emmawooller.bsky.social
@richardvallee.bsky.social
I play language. Mostly irreverent. Debugger. AI. Global warming. Integrity. Health. Science. Chronically ill punk rocker. I think about the future a lot.
@paulkeeble.co.uk
ME since 2017 (Mild), 2019 Moderate , 2020 Severe Long Covid since March 2020 (V Severe) Funcap55 = 1.9 ( (Severe)
@dxrevisionwatch.bsky.social
Formerly monitoring/reporting on developments with ICD-11, ICD-10-CM, DSM-5, SNOMED CT & other classification and terminology systems
@lymenews.bsky.social
The #LymeDisease community's leading source for news, insight and advocacy. Publisher of The Lyme Times, creator of MyLymeData. A 501(c)(3) organization. Tick-Borne Diseases, Infection Associated Chronic Conditions #IACC, #OneHealth
@bendyhedsandco.bsky.social
For Awareness & Support of #Hypermobility #hEDS/HSD #POTS #ME/CFS #MESpine #Stenosis #MCAS & co. #PANS/PANDAS & #LongCovid ally #NEISVoid #MedEd for EDS/HSD & co 🔗 conditions go to: 👉 https://gptoolkit.ehlers-danlos.org/ 👈
@scienceforme.bsky.social
We are an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and the carers, clinicians, scientists and advocates who support us. This account is maintained on a part-time basis by patients.
@tapanuiflu.bsky.social
Myalgic Encephalomyelitis since 1983 Tapanui Flu epidemic | #ME | #PwME | #LongCovid ally | Covid cautious Grandmother | Ex social scientist | Mostly housebound | On welfare Website: tapanuiflu.blog Aotearoa | New Zealand
@sarahbarleymc.bsky.social
Ill health retired 😞FHEA🎓Christian. Chair, Pride in Belper 🏳️🌈🏳️⚧️. Volunteer Long Covid SOS. JNC. Married to my Wife. ❤️Long Covid-autoimmune/immunocompromised
@arisonsned.bsky.social
Cat and Dog botherer. Young persons counsellor retired. Want my bike and my health back 🩵
@sheencr.bsky.social
Immunologist and science communicator based at UoM fascinated by our immune response to threats (pathogens, pollution) & microbiome. Member IndependentSage person most likely to share random dog and nature pics 🧪👩🔬 #AcademicSky #SciCom #ImmunoSky
@erinbiba.bsky.social
Freelance Science Journalist. Fact Checker. NatGeo, BBC, SciAm, NBC News, PopSci, WIRED, and others. Hire me to fact check your book. I post about Jewish stuff, disability, Star Trek, and The Buffalo Bills. Jersey girl.
@trishgreenhalgh.bsky.social
Prof of Primary Care Health Sciences, Oxford. Researching digital health/ inequities, covid prevention (masks/ air quality). Wild swimmer. Mum to Rob (marine bio) & Al (doc). She/her. https://scholar.google.com.au/citations?user=QDCqsJwAAAAJ&hl=en&oi=ao
@ruperthigham.bsky.social
🧑🎓@UCL |⚖️Values-based leadership |✊Educational dialogue & agency | 🌍Humane intelligent responses to global threats |💕 Carer for #LongCovid-affected family
@kirsties.bsky.social
UK #pwME #pwLC #MECFS #LongCovid #PEM (post-exertional malaise) as well as #Politics and other related chat. I use lists to manage my chats here. Feel free to use them or ask to be added https://writingandme.com/
@kprather.bsky.social
Aerosols, airborne, air quality, clouds-climate, health, viruses, bioaerosols, public speaker, environmental justice. ❤️ ❤️ gardening, cooking, empathy. https://airborne.ucsd.edu https://kprather.scrippsprofiles.ucsd.edu/
@maosbot.bsky.social
Parent, spouse, Australian, Professor of Machine Learning in Oxford. Bayesian ML, Long Covid, trans rights, photos of dog, AI must be good for humans, https://www.robots.ox.ac.uk/~mosb
@naomidharvey.bsky.social
Zoologist & veterinary research. She/her. 22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️ Patient Expert in ME/CFS, POTS and syndromic Long Covid. Please excuse my typos.
@anilvanderzee.bsky.social
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS #art2cureME #pwme #millionsmissing
@cbme-mark.bsky.social
Severe ME/CFS with added Long Covid. Running a support group in Cambridge, UK. Pronouns: depends how the day pans out
@paulaknight.bsky.social
Author, illustrator, comics memoir THE FACTS OF LIFE (Myriad) Kidlit Books x3 Writing illustration comics poetry photography Disabled nonambulatory bedridden 7yr #pwME No DMs pls https://linktr.ee/paulajknight https://ko-fi.com/bedscape She/Her
@ruthbrooker.bsky.social
Teller of stories. Drinker of wine. Parent to small boys and trying not to lose my brains. Travel by bike. Magazine writer on pause. Clean Air Campaigner #CleanAirforKids
@natpearson.bsky.social
#Hampshire #SafeAirSchools #Climate #Nature #LongCovid Devoted mother | Founder SafeAirSchools.org | Proud King’s College London alumna | Founding Member Long Covid Kids | Passionate about healthcare | Leave nobody behind | Neurodivergent
@elhopkins.bsky.social
Composer who is currently working on a Song Cycle. Posting about: Music, COVID safety, Clean Air, Climate Change & wildlife. #Covidisairborne #FBCV #Vaccinessavelives #WearARespie ffp2/3 ❌ to mask bans #TransparencyCovid Voting Green Party 💚
@ahandvanish.bsky.social
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
@lisamccorkell.bsky.social
formerly a patient-led research collaborative co-lead, always a co-founder | MPP | she/her | natures 10 in 2022
@danwyke.bsky.social
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)