MBwME
PhD in physics, former scientist, educator, and athlete, now housebound due to ME/CFS and POTS from SarsCov2, she/her
@batemanhornecenter.bsky.social
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
@isabelkaplan.bsky.social
Author of the national bestselling novel NSFW and that viral essay “My boyfriend, a writer, broke up with me because I’m a writer,” among other things. Substack: isabelkaplan.substack.com / Happiest underwater or surrounded by dogs.
@pinam.bsky.social
GRADUATE PRODUCT DESIGNER, INTERIOR DESIGN Against FASCISM, any kind of RACISM and STIGMATIZATION of illness, especially MECFS Live with: Primary immunodeficiency (PID) Cancer ME(CFS) with humor, love for design, architecture, art...
@alitwy.bsky.social
Living with Long Covid. Doing my bit to support UK healthcare workers with Long Covid. Chair of Supporting Healthcare Heroes UK. Associate Member Long Covid Support. Editor-in-Chief Evidence Based Nursing. Retired Professor of Children’s Nursing. #FBLC
@carlbergstrom.com
UW biology prof. I study how information flows in biology, science, and society. Book: *Calling Bullshit*, http://tinyurl.com/fdcuvd7b LLM course: https://thebullshitmachines.com Corvids: https://tinyurl.com/mr2n5ymk I don't like fascists. he/him
@eidgsanpol.bsky.social
I’ve beaten the shit out of Long Covid. Now mainly cycling, running and staying alive.
@blomechristine.bsky.social
COVID nerd | Post-COVID & ME/CFS researcher | no MD | http://patient-reported-outcomes.com | Hamburg Center for Health Economics @hche-uhh.bsky.social | derm PROMs | Botschafterin @dagl.bsky.social | DMs open
@lauravictorine.bsky.social
Former medical doctor | PhD | Living with moderate/severe Myalgic Encephalomyelitis (ME) | Dutch 🇳🇱 | Cat mom of two | #pwME #myalgicencephalomyelitis #myalgicE
@nikosuvisto.bsky.social
Life on hold by severe #MECFS, currently 99% bedbound 🛌 Documenting my life like it is now, advocacy through photography 📷 📍Finland https://www.aquietstorm.me
@strwbrry.bsky.social
daylin, 30, they/them. expect a mix of fun/interesting things that catch my eye, progressive politics, lgbtq+, disability, chronic illness, autism, adhd, mental health, and ofc jokes 😘🍓
@madelleine.bsky.social
I write and sing about navigating chronic illness, severe #MECFS, and creativity from a feminist and anti-ableist perspective: https://www.bedperspective.com
@norcalgaljoanie.bsky.social
Supports Ukraine and Democracies worldwide. Supports research into understanding and treating Long Covid and other post-viral conditions. Political news junkie. Tax Billionaires. Loves cats. #LongCovid #CovidisAirborne #MaskUp #ME/CFS
@cbammermd.bsky.social
Facharzt für Innere Medizin | Nephrologe | Geriater | interessiert an #PAIS und assoziierten Multisystemerkrankungen | * Privat gerne alles mit Musik * * Skeets in DE/EN * * TwiX: @CBammerMD *
@dianneduvall.bsky.social
New York Times & USA Today Bestselling Author Website: https://dianneduvall.com Newsletter: eepurl.com/hfT2Qn Paranormal | Sci-Fi | Medieval | Time Travel Romance Strong men • Kick-ass Women • Action • Humor Camaraderie • Fun Banter
@abbyneedsanap.bsky.social
Housebound neurodivergent artist with Myalgic Encephalomyelitis #MECFS, POTS, MCAS, FM. Enjoyer of cozy fluffy things, tea, books, and the way the light filters through the forest. Passionate about animal welfare + nutrition, the paranormal, & weather.
@steigerecon.bsky.social
Assistant professor of economics on medical leave from Northeastern University; macroeconomics, growth and development. Severely ill with MCAS/POTS/EDS/ME. Catholic convert who loves the balance of faith and reason. Native Oregonian.
@emmiskyten.bsky.social
Sustainability science studies on hold because of POTS + Long covid / suspected ME. Previously interesting, now mostly into resting. Here to connect with other sick people and for science stuff.
@sannara.bsky.social
#MECFS #MILLIONSMISSING #MEAwareness #PEM #POTS #MCAS #PostCovid #LongCovid #TeamWissenschaft #GdB https://www.mecfs.de/was-ist-me-cfs/
@angelamswinca.bsky.social
🦠😷♿️#LongCovid disabled | 📢Chicané activist | 🏠LAX | ⚖️health justice | ✊🏽✊🏾✊🏿racial justice alt text profile pic: tan skinned person in a tan KN95 mask and suit, dark wavy hair with short bangs
@oonaghcousins.bsky.social
@jennifernish.bsky.social
Rhetoric prof. #pwME & #ADHD. Associate Editor, Peitho. Researching transnational feminism, activism, disability, and digital media. She/her.
@gotnospoons.bsky.social
Mom, wife, web developer, artist. Chronically ill with #LongCovid / #POTS / #MECFS . I make custom armbands for the Visible app which is a lifesaver for me.
@chaosimkittel.bsky.social
Epidemiologie-Philosophin mit medizinischem Background.
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@margaretohara.bsky.social
Patient Advocate in #LongCovid and #HyperemesisGravidarum Patient Involvement in Research in #NHS
@kirsties.bsky.social
UK #pwME #pwLC #MECFS #LongCovid #PEM (post-exertional malaise) as well as #Politics and other related chat. I use lists to manage my chats here. Feel free to use them or ask to be added https://writingandme.com/
@francesryan.bsky.social
Guardian columnist and journalist. Commentator of the Year 2024. Author of Who Wants Normal? and Crippled. E: [email protected]
@rippermd41.bsky.social
My life runs by the Murphy’s Law of illness: If something can go wrong, it will go wrong. Latest one is #MECFS but the laundry list is long. Live in New England
@sirensplight.bsky.social
“The plight of the siren is no one believes her.” 🎭 +📚👩🏻🏫 on ⏸️ due to ♿️ Long Covid, Fibromyalgia, ME, POTS, PEM, AxSpa, PsA, AuDHD 🍁 settler in Tkaronto 🧶 crochet artist ✨Sicilian witch My gender is hoodies (she/they/whatever)
@airspotrob.bsky.social
AirSpotHealth.com Our Smallest CO2 Monitor! #CleanIndoorAir #COVIDisAirborne
@gmuzz.bsky.social
Looking for a quieter life away from X. 20+ years in #sustainability and still fighting the good fight. Also championing / struggling with #mentalhealth and #MECFS since 2017. #PwME. Might even mention #LFC occasionally. #YNWA Feel free to connect. 😁
@odyody.bsky.social
Chronically ill. Medical research, better care for underresearched & rare conditions, disability rights & ethics. @OdyO11 at 🐦
@jesspearce.bsky.social
Interested in the climate crisis, public health, public policy, and ethics. Living with long covid since 2022.
@tilmanandris.bsky.social
Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs
@banhamgemma.bsky.social
Nephrologist. Interests vasculitis/immune mediated kidney disease, dysautonomia, mast cells. Translational medicine/therapeutics PhD. Views own
@sallybourliakas.bsky.social
Mum, scientist, Sci-Fi reader Studio Ghibli fan☮️ 🐈 🪄 ! I’ve had #LongCovid for 4+years Covid is Airborne wear FFP2/3 masks! Air filtration needed in schools & workplaces now. #Teamclots #RejoinEU #FreePalestine
@seasidescribblings.bsky.social
Learning as I go, but aren't we all. San Diego, CA. Living with illness and doodling for fun. #LongCovid, Severe #MECFS, hyper #POTS, #FM, hEhlers Danlos, Idiopathic Subglottic Stenosis ( #ISGS ), …
@billiehill64.bsky.social
#MECFS for 20 years; One of the #MillionsMissing #StillHereStillFighting #BoundByBlue #Niners Lives on Wurundjeri Land (Naarm)
@sarahbrodsky.bsky.social
Freelancer writing about personal finance and business. Interested in science, math, books, cooking, languages. St. Louis, MO #pwME
@christina4hope.bsky.social
👋ME/CFS ,Fibromyalgia , lyme Boriliose,Longcovid,MCS ,Vax Injured (not corrona vax),Hearing loss ect… Posts English and German. Bavaria ,Germany
@thepotspostman.bsky.social
Just a mailman with #POTS Here to spread awareness and advocate for those with #dysautonomia and #chronicillness
@disabledinstem.bsky.social
We are here to affirm that you DO belong in STEM! This is a safe space for people with disabilities in STEM to connect. Contact: [email protected]
@saltysalt.bsky.social
I 💛 books, feminism, disability activism, anti-racism, science, cats, avoiding COVID infections, queer people, and my family
@colleensteckel.bsky.social
Advocate for #MyalgicEncephalomyelitis using ME-ICC. Contracted ME in 1989 Substack: https://colleensteckelmeiccinfo.substack.com/ Volunteer at www.MEadvocacy.org Aspiring writer of paranormal fiction