@coldon1983.bsky.social
Aberdeen fan. Passionate about an independent Scotland. SNP member. Live by the sea and a Loch. ME for 11 years #pwME #rejoin #FBPE 🏴
@sannibenke.bsky.social
Originally a creator of colorful things but all i have left is my sword of words written in the dark. Former psychologist. Mom x 2. Life on hold by very severe #mecfs. Here to join the #pwme community. Sharing #bookrewievs and #liMEricks.
@mikegalsworthy.bsky.social
Chair of European Movement UK. 🇬🇧 🇪🇺 Founder of the Bylines Network. Founder of Scientists for EU. Lover of science, Europe and whisky. 🥃
@vicderbyshire.bsky.social
Journalist, broadcaster, Mum of 2 boys, owner of 2 cocker spaniels BBC Newsnight 🎥 Ukrainecast 🎧 And Then Came Breast Cancer 🎧 BAFTA RTS Sony Pink News AIB British Podcast Award winner
@mrjamesob.bsky.social
Broadcaster @lbc.co.uk Author: https://www.waterstones.com/book/how-they-broke-britain/james-obrien/9780753560365
@abrokenbattery.bsky.social
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos. https://linktr.ee/abrokenbattery
@mikeseumarathons.bsky.social
I run marathons around Europe raising funds for Invest In ME's biomedical research projects to cure ME. 32 countries so far. £51k raised. Next race: #33 Belfast, N.Ireland (04.05.25) www.mikeseumarathons.eu www.justgiving.com/mikeseumarathons
@investinmeresearch.bsky.social
An independent UK charity finding, funding, facilitating biomedical research into ME and providing better education and awareness of this disease in UK & Europe (charity nr. 1153730) www.investinme.org
@arisonsned.bsky.social
Cat and Dog botherer. Young persons counsellor retired. Want my bike and my health back 🩵
@mefoggydog.bsky.social
Award-winning #socialenterprise in #UK. Working for #socialchange for the #MECFS community. Linktree - http://bit.ly/408o6LI
@katybrc.bsky.social
Myalgic Encephalomyelitis - M.E + POTS for 38 years Donor to the UK MEcfs Biobank for 10 years & @DecodeMEstudy Please watch http://dialogues-mecfs.co.uk/videos/ London, UK No DMs please #pwME
@cabruce.bsky.social
Previously a psychotherapist. Bedridden #ME 32years Daughter severe ME, eldest son MS. I like art, nature, books, people, music, poetry and podcasts!
@sabinehermisson.bsky.social
PD Dr. (religion, empirical education research) mother of Mila who suffers from very severe ME/CFS (Bell 0) https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf Vienna, Austria #CleanAir
@putrinolab.bsky.social
@sandraoco.bsky.social
@charlesfourier.bsky.social
Pro-Europe #socialist #RefugeesWelcome. Warning - I swear a lot because the world is on fire!
@drjogreer.bsky.social
Mum, Carer, Myalgic Encephalomyelitis (ME) Advocate, Educational Psychologist
@binitakane.bsky.social
Long COVID/ME interested lung doctor | Campaigner for race equality, clean air & patient voice | Independent SAGE | Co-Founder South Asian Heritage Month YouTube: @LCCWYCD Enquiries: [email protected] Linktree: https://linktr.ee/binitakane
@debwald.bsky.social
@markhamillofficial.bsky.social
Believe in yourself! Work hard, never give up & anything's possible! OR: Kick back, relax & aim low: You'll never be disappointed...😜 I IGNORE ALL DMs!
@naylor007.bsky.social
#pwME #MyalgicEncephalomyelitis One day at a time ... will do what I can to help others
@gotnospoons.bsky.social
Mom, wife, web developer, artist. Chronically ill with #LongCovid / #POTS / #MECFS . I make custom armbands for the Visible app which is a lifesaver for me.
@yardfairy.bsky.social
#LongCovid Gardens, children, dogs, #maker, #woodworker, always learning. #BLM #VOTE she/her aka @sunnyaunt #votebluenomatterwho no DMs please
@iaindale.bsky.social
LBC Radio presenter Gob on a Stick Serial book editor Co-host of the WHERE POLITICS MEETS HISTORY podcast
@brendanmay.bsky.social
Sustainable business entrepreneur. Advisor to multinational firms around the world. Advocate for pragmatic, fact-based environmentalism. Music lover. Found mainly in London and South East Asia.
@billiehill64.bsky.social
#MECFS for 20 years; One of the #MillionsMissing #StillHereStillFighting #BoundByBlue #Niners Lives on Wurundjeri Land (Naarm)
@rippermd41.bsky.social
My life runs by the Murphy’s Law of illness: If something can go wrong, it will go wrong. Latest one is #MECFS but the laundry list is long. Live in New England
@rfh1955.bsky.social
ME/CFS archive, especially RFH 1955. For education, not profit. Relocated from Twitter. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. https://rfh1955.blogspot.com/
@diatoma.bsky.social
Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid
@remissionbiome.bsky.social
Community Science Project http://RemissionBiome.org
@sabrinapoirier.bsky.social
#CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis + #MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability (Unceded) #Canada https://linktr.ee/sabrinapoiriercanada
@naomidharvey.bsky.social
Zoologist & veterinary research. She/her. 22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️ Patient Expert in ME/CFS, POTS and syndromic Long Covid. Please excuse my typos.
@kschnickelfritz.bsky.social
Sometimes inappropriate. Knitting and chocolate addict. Political when the mood takes me. Sick and tired. ME, LongCovid, POTS, Lyme
@rosieisaholt.bsky.social
I am not an MP. Buy my book: https://www.waterstones.com/book/why-we-were-right/rosie-holt/9781529924558
@trans4m8tion.bsky.social
Long covid brought me here, from fit to wheelchair. In a shitty club with great people #FBLC. No woowoo. #PEM #PESE #MECFS Mastodon: @[email protected]
@renzpolster.bsky.social
physician-researcher, paediatrician, ME/CFS since 2016. This account is about science, esp. CFS
@neurostingl.bsky.social
Facharzt für Neurologie ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
@strangerandstranger.net
Author of "stranger and stranger”, letter writer, advocate and fundraiser for biomedical ME/CFS research.
@danwyke.bsky.social
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
@jesshoneybadger.bsky.social
Chaotic good writer and scientist with severe, bed bound MECFS. Writing wholesome stories, science stuff, and funny anecdotes from bed. Lover of memes. jesshoneybadger.substack.com
@joeblow604.bsky.social
Living with Myalgic Encephalomyelitis since 2011. Artist, Advocate, Creative Former Electro-Mechanical Prototyper Inclusive #pwME #MECFS #MCAS #POTS #Fibro #LongCovid #Disability #chronicillness #art #artist #painting #oilpainting #digitalart #photography
@bmhughes.bsky.social
Concerned citizen • Prof Psych • Writer • Galway • he/him A blog: https://thesciencebit.net/ A bio: https://brianmhughes.com/ A book: https://bloomsburycp3.codemantra.com/viewer/63721f10ee35880001aafadc 📷 https://www.photoblogism.net
@emmagl.bsky.social
Co-founder #ThereForME | Calling for an NHS that's there for Long Covid & ME | https://www.thereforme.uk/ Linguist, DELTA-qualified English 2nd lang teacher | https://hiveofactivities.wordpress.com Design | https://emmarubystudio.com/ She / her
@theoldlostroad.bsky.social
Severe #MECFS for a very long time. Loves nature poetry children hope. Hates arrogance dishonesty injustice.
@sarahrichardson.bsky.social
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon