Nicky Proctor

@scribblerpen.bsky.social

Writer, editor, analyst. Disability employment rights advocate. Trade union disability rep. Arts, science and languages nerd, internationalist, hiker, nature lover. Could really do without Long Covid

@cortjohnson.bsky.social

Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012

@stenhelmfrid.bsky.social

Ph.D. in physics, also interested in mathematics, science theory, and history. Follows research on ME/CFS. Stockholm, Sweden

@mecfsskeptic.bsky.social

Exploring the history of psychosomatic medicine and research on myalgic encefalomyelitis/chronic fatigue syndrome (ME/CFS). https://mecfsskeptic.com/

@mefoggydog.bsky.social

Award-winning #socialenterprise in #UK. Working for #socialchange for the #MECFS community. Linktree - http://bit.ly/408o6LI

@iantuckerbell.bsky.social

Playwright, Celebrant, Theatre Director, Tutor, Husband, Dog-Dad, and Leeds United supporter. I like theatre, nice people, tea, countryside, video-games and cinema. Living with Long Covid and involved in LC patient advocacy. #FBLC. #FBPE

@ninasteinkopf.bsky.social

Former HSEQ Chief Executive. Have survived Myalgic Encephalomyelitis (ME) since 2010. Patient advocate and writer. www.melivet.com Anti-genocide.

@smartairuk.bsky.social

Smart Air is a social enterprise and B-Corp committed to changing the way we breathe clean air! We create incredibly effective air purifiers and share life-hacks and tips on protecting your health from poisonous air

@cleanairclub.bsky.social

Providing free air purifiers to Chicago artists, organizers, and touring musicians. linktr.ee/cleanairclub

@johnpring.bsky.social

Editor/founder of Disability News Service; author of The Department, published by Pluto Books, August 2024; disabled journalist and author; autistic.

@lisabd.bsky.social

@benking01.bsky.social

Long Covid & PE recovery. GeographyTeacher. Sustainability & Climate Change. BSc Env Science & Physics (Stirling). Soil Erosion PhD & Geog PGCE (Exeter). Tuba player. Devon, UK.

@buds-disability.bsky.social

A community of disabled people working together to remove the barriers that disable us. Registered Charity 1102511 #Fair4All #Reach4Work

@jengovey.bsky.social

I dress up in fancy dress for the charity Invest in ME Research to raise funds & awareness of Myalgic Encephalomyelitis. In a previous life I worked in film. I’m an advocate for good science, treatments & better healthcare for #pwME.

@chronicchannel.bsky.social

Youtube Channel covering Chronic Illness, Universal Basic Income and Air Quality. https://www.youtube.com/@ChronicIllnessChannel Clean The Air http://bit.ly/CleanTheAirUK

@antoniocaramia.bsky.social

@stickmancomms.bsky.social

Stickmen helping to build understanding and acceptance of hidden disabilities and chronic illness, in a way that empowers us. (Run by Hannah Ensor - who has #hypermobility #PoTS and probably other stuff.) +talking about personal experience of #disability

@ciarawrightphd.bsky.social

Long Covid March 2022, life on pause as Functional Medicine Nutritionist, Scientist, Mountain Runner. Loves trees, houseplants, dogs, profanity. Liberal Atheist, she/her

@jamesglen.bsky.social

Having a bit of a break O_o ● Founding member @LongCovidSupport ● Long Covid & MECFS advocate #FBLC ● Arts Centre Director ● Watford FC fan ● #FBPE 🇪🇺

@ruairidhm.bsky.social

Long Covid since March 2020. “Nothing about me without me” - doesn't seem unreasonable. Previously: health research, public health, technology assessment and appraisal Also some Shetland!

@dormousediaries.bsky.social

Cartoonist, #BylinesNetwork, occasional artist, writer and sketcher of things. Likes tea and books. Sometimes hibernates. Living with #LongCovid

@ravihvj.bsky.social

Post-Covid ME/CFS since March 2021. Before then, a life I loved. Stanford History | 2021 Schwarzman Scholar

@emmawooller.bsky.social

@dxrevisionwatch.bsky.social

Formerly monitoring/reporting on developments with ICD-11, ICD-10-CM, DSM-5, SNOMED CT & other classification and terminology systems

@lymenews.bsky.social

The #LymeDisease community's leading source for news, insight and advocacy. Publisher of The Lyme Times, creator of MyLymeData. A 501(c)(3) organization. Tick-Borne Diseases, Infection Associated Chronic Conditions #IACC, #OneHealth

@bendyhedsandco.bsky.social

For Awareness & Support of #Hypermobility #hEDS/HSD #POTS #ME/CFS #MESpine #Stenosis #MCAS & co. #PANS/PANDAS & #LongCovid ally #NEISVoid #MedEd for EDS/HSD & co 🔗 conditions go to: 👉 https://gptoolkit.ehlers-danlos.org/ 👈

@tapanuiflu.bsky.social

Myalgic Encephalomyelitis since 1983 Tapanui Flu epidemic | #ME | #PwME | #LongCovid ally | Covid cautious Grandmother | Ex social scientist | Mostly housebound | On welfare Website: tapanuiflu.blog Aotearoa | New Zealand

@sarahbarleymc.bsky.social

Ill health retired 😞FHEA🎓Christian. Chair, Pride in Belper 🏳️‍🌈🏳️‍⚧️. Volunteer Long Covid SOS. JNC. Married to my Wife. ❤️Long Covid-autoimmune/immunocompromised

@arisonsned.bsky.social

Cat and Dog botherer. Young persons counsellor retired. Want my bike and my health back 🩵

@sheencr.bsky.social

Immunologist and science communicator based at UoM fascinated by our immune response to threats (pathogens, pollution) & microbiome. Member IndependentSage person most likely to share random dog and nature pics 🧪👩‍🔬 #AcademicSky #SciCom #ImmunoSky

@erinbiba.bsky.social

Freelance Science Journalist. Fact Checker. NatGeo, BBC, SciAm, NBC News, PopSci, WIRED, and others. Hire me to fact check your book. I post about Jewish stuff, disability, Star Trek, and The Buffalo Bills. Jersey girl.

@ruperthigham.bsky.social

🧑‍🎓@UCL |⚖️Values-based leadership |✊Educational dialogue & agency | 🌍Humane intelligent responses to global threats |💕 Carer for #LongCovid-affected family

@cbme-mark.bsky.social

Severe ME/CFS with added Long Covid. Running a support group in Cambridge, UK. Pronouns: depends how the day pans out

@ruthbrooker.bsky.social

Teller of stories. Drinker of wine. Parent to small boys and trying not to lose my brains. Travel by bike. Magazine writer on pause. Clean Air Campaigner #CleanAirforKids

@natpearson.bsky.social

#Hampshire #SafeAirSchools #Climate #Nature #LongCovid Devoted mother | Founder SafeAirSchools.org | Proud King’s College London alumna | Founding Member Long Covid Kids | Passionate about healthcare | Leave nobody behind | Neurodivergent

@elhopkins.bsky.social

Composer who is currently working on a Song Cycle. Posting about: Music, COVID safety, Clean Air, Climate Change & wildlife. #Covidisairborne #FBCV #Vaccinessavelives #WearARespie ffp2/3 ❌ to mask bans #TransparencyCovid Voting Green Party 💚

@ahandvanish.bsky.social

Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.

@lisamccorkell.bsky.social

formerly a patient-led research collaborative co-lead, always a co-founder | MPP | she/her | natures 10 in 2022

@salwitcher.bsky.social

Working to promote a safe #InclusiveNewNormal by maximising ongoing learning arising through the Covid pandemic and responses to it. #Masketeer

@jljcolorado.bsky.social

Dist. Prof. Chem. & CIRES, Univ. Colorado. #HighlyCited2022, Fellow AAAR & AGU. http://Bit.ly/TenSR http://Bit.ly/ATRVs Aerosols, pollution #EndFossilFuels #COVIDisAirborne. Views are my own

@amandalhu.bsky.social

Neighbour and pal to children, adults and nature. Pro-treating each other like we live in a society. I communicate about stuff for work and for fun (here, where my opinions are my own). She/her. 📍Mohkinstsis, Treaty 7 (Calgary, Canada)

@tatianatrifan.bsky.social

Life is full of surprises, but never when you need one. Completely allergic to any form of racism, sexism, genderism. #StandWithUkraine Views are my own

@untonuggan.bsky.social

angry mast cells (HaT and #MCAS) + #POTS + neurodivergent. ♿ queer. white. emperor of typos. brain fog zone ⚠️. they/them 🎶 iii'm still masking 🎶 working on porting more of my body science infodumps and such to: liminalnest.wordpress.com #NEISvoid

@jennyjones.bsky.social

🏴󠁧󠁢󠁷󠁬󠁳󠁿🏴󠁧󠁢󠁥󠁮󠁧󠁿🇬🇧🇪🇺Rejoin Votes for 16yo Save our publicly funded NHS& public orgs Internatl legisltn to outlaw media misinfo Transparency&accountability Truth&justice UK nds political&media reform& legislation Music movement nature lit art & kindness- sanity essentials

@dom2023.bsky.social

ME since 2016. Have been working on microbiome since 2021. Finally got a test in 2023 with symptoms at 90% (first time in five years). Discovered four biomarkers in my sample correlated with 90%. Hope to maintain 90% in 2023/4.

@lucibee.bsky.social

Science defender and eco-worrier. (she/her)

@nmjk.bsky.social

The State of Me, HarperCollins, 2008 | Shortlisted Bridport Flash Fiction Prize 2012 & 2023 | Love books, tulips, jazz, birds, French films | Novella-in-progress | Had ME since 1983 https://www2.societyofauthors.org/soa-member/nasim-marie-jafry/

@drericding.bsky.social

Public health warnings & health policy. Epidemiologist & health economist. Chair and Faculty at NECSI. Former 16 years at Harvard. DC & Virginia. Bio & contact: necsi.edu/eric-feigl-ding A story: bit.ly/raisealarm 📝: drericding.substack.com/subscribe

@cvcev.bsky.social

𝗖𝗼𝗿𝗲 𝗣𝗮𝗿𝘁𝗶𝗰𝗶𝗽𝗮𝗻𝘁 in the 𝗨𝗞 𝗖𝗼𝘃𝗶𝗱-𝟭𝟵 𝗜𝗻𝗾𝘂𝗶𝗿𝘆 #FBCV (follow back CV) and JOIN us on FB    📸cv_cev ❌️@cv_cev www.clinicallyvulnerable.org