Sick Ness
She / her
MIA secondary SEND teacher.
Sick : ME (cfs), fibromyalgia, chronic migraine, bowel dysfunction.
Londoner.
Sewer: embroidery, needlepoint (but only for 40 mins a day max 😩)
Trapped in an unsuitable home #EndOurCladdingScandal
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@dgoldman.bsky.social
Scholar and content creator interested in a wide range of topics. (He/They/Mx.) #science #politics #philosophy #nature 🏳️🌈(🇮🇱+🇵🇸) https://blog.danielgoldman.us/about Actually Immature. Rated Mature.
@nannyogg63.bsky.social
Lefty Canadian with low tolerance for trolls and YouTube “researchers”. Wear a Mask. It just might save your life. #CRPS #MECFS #Autoimmune
@malcolmxsansx.bsky.social
Kitchen creator; Art amuser; Music maker; Cat cuddler; Pun pusher; Left-leaning; Atheist & Ally... ... always trying to be better. Instagram: @BossCustomKitchens https://on.soundcloud.com/8kqGvTb5H2UcERvP6
@davetuller1.bsky.social
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
@rebalbh.bsky.social
Basically a Medical Doctor.Plant Mom,Pet mom,Bird lover, Foodie,Singing Vigorous COLDPLAYER Follow my new Coldplay fan page "Coldplay Magic India" if you are a Coldplay fan
@archcurate.bsky.social
Embroidery Artist and Queer Public Health Professional.
@remissionme.bsky.social
ME/CFS since 2019, painter, yoga and health enthusiast. The healthiest sick person I know and on a quest for turning this around!
@alchemicalrat.bsky.social
Artist, researcher. Anthropology, experimental archaeology, painting, sculpture, visual communication. Slowed but not entirely stopped by ME/CFS. Ottawa, Canada.
@drainbamage954.bsky.social
Lonio. 30+ Queer. I love cats, nature, writing, and crafting (knitting & crochet). IBS & ME/CFS. Mostly in bed knitting and living the best life I can. he/she/they
@fioname.bsky.social
Victoria, Australia. Former professional wordsmith. 14+ years living with the hell of myalgic encephalomyelitis (ME/CFS). Prone to so-called left-wing views & bingeing good TV 🤓
@bmhughes.bsky.social
Concerned citizen • Prof Psych • Writer • Galway • he/him A blog: https://thesciencebit.net/ A bio: https://brianmhughes.com/ A book: https://bloomsburycp3.codemantra.com/viewer/63721f10ee35880001aafadc 📷 https://www.photoblogism.net
@birbsarereal.bsky.social
Forty-something retired biologist and ME advocate. Lover of birds and yarn. Former athlete. Wife. For kindness, empathy, inclusion, and accessibility. She/her. Crochet artist; https://www.ravelry.com/stores/stitches-by-sarah
@jefferysmithme.bsky.social
Lover of old films, books, Doris Day and Rosemarys Baby and other who-haa. Cranky empath. Dealing with servere ME. and cancer. Politically sensible, sensitive and left.
@dialoguesmecfs.bsky.social
https://www.dialogues-mecfs.co.uk Website with videos created by Natalie Boulton & Josh Biggs with a Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of #ME/CFS and a longer film explores the wider context and history.
@michelleb4.bsky.social
A mixture of stuff #MECFS #LongCovid #frailty #mtb #cycling #feelthefearanddoitanyway co-founder @PhysiosForME Views are all my own
@claguenjc36.bsky.social
Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise incl CV/fatigue/mental health/ME/Longcovid/EDI/all views my own she/her
@matthewjdalby.bsky.social
@ravihvj.bsky.social
Post-Covid ME/CFS since March 2021. Before then, a life I loved. Stanford History | 2021 Schwarzman Scholar
@bennessb.bsky.social
currently: sick / haunted in Western Mass, host of No End In Sight - a podcast about life with chronic illness, creator of #NEISVoid | previously: Stories We Don’t Tell in Toronto | she / her
@anilvanderzee.bsky.social
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS #art2cureME #pwme #millionsmissing
@franceyme.bsky.social
https://amandafrancey.com/ illustrator, amateur photographer and bird telepath. Advocating for myalgic encephalomyelitis #MECFS #LongCovid #ClimateAction
@drannanz.bsky.social
Immunologist | Flow Cytometrist Immunometabolism, Infectious Diseases, Immune dysfunction, Long Covid & ME/CFS Senior Research Fellow Liggins Institute | University of Auckland DysImmune Research Aotearoa www.dysimmune.nz 🇳🇿🥝🩸🧬🧪🔬👩🏼🔬
@putrinolab.bsky.social
@physiosforme.bsky.social
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME Find out more at physiosforme.com
@adambeyoncelowe.bsky.social
Occasional drag queen in verse. Writer, performer, educator, activist Adam Lowe (he/his) as possessed by Beyonce Holes (she/her).
@malnutritionme.bsky.social
Campaign for improvements in medical care for ME patients with gastrointestinal symptoms. http://25megroup.org
@cyruxime.bsky.social
Energetically compromised (bedridden) by severe #MECFS. All systems operating at minimum capacity & overloaded. In a previous life: comp sci x math, powerlifting. #LongCovid ally.
@simonmcg.bsky.social
Sometimes try to explain and comment on ME researchh, or even contribute to it. And I advocate for more and better research.
@longcovidlad.bsky.social
Long covid since April 2020. R 50 participant. Trying to navigate a plethora of health conditions without any NHS support. #ME/CFS #POTS, #Long Covid, BBB dysfunction, #SIBO, #Leaky Gut, reactivated infections, #MCAS, Clots
@helen04.bsky.social
Severe end of moderate ME. Need to find my people again so I can feel validated and understood. Hoping they’ll be somewhere here 😌 #myalgicencephalomyelitis #MEcfs #pwME #fibromyalgia #fibro Also enjoy #crochet #CoD #BlackOps6 #F1 #Wales 🏴
@jeremyjenkins.net
Writer | Chocolatier | Baker | Gardener 🇫🇷 living in 🇬🇧 / AuDHD Latest recipes and chocolate shop: https://jeremyjenkins.net
@ellecarnitine.bsky.social
immunocompromised • made & kept sick by the state • 🇵🇸🇵🇸🇵🇸
@emec.bsky.social
Advocacy organization for ME/CFS patients and their carers in Europe
@talmandaniel.bsky.social
Curious & exhausted peace seeker, co-host of Post-Exertional Mayonnaise podcast, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
@lestrela.bsky.social
Art, genshin, music | Disabled by moderate #mecfs since 2015 and #fibromyalgia Art commissions: https://ko-fi.com/lestrela
@stephenmia.bsky.social
Former Skier, Cyclist, Climber, Hill Walker, Diagnostic Radiographer and functioning human. Now - ME, POTS, LC, Vax Injury - Pro Vax - Still finding the joy
@danwyke.bsky.social
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
@lisas25.bsky.social
human rts advocate, animal rescue/ rehabilitation, environmentalist, attorney #SFN #ME #Disability 💙🌊
@petecaruso.bsky.social
Treat Long COVID, ME, POTS, Sjogrens, Mast Cell, and Chronic Lyme. Develop safe vaccines, treat vax. injury. Spouse has ME 30+ yrs. Pfp: A man wearing a green face mask Banner: Colorful posters & MEmes from patient-led Long COVID and ME awareness
@pollyvalentine.bsky.social
Human, from Earth. Where the falling angel meets the rising ape. #ME #spoonie
@dysautonomia.bsky.social
We are the leading non-profit advocating for over 70M people around the world living with autonomic nervous system disorders. Research, Clinician Education, Patient Empowerment, Public Awareness & Advocacy is what we do. DysautonomiaInternational.org
@liapas.bsky.social
#SciArt symptomatology and #anatomy #embroidery, writing, and #MECFS. A bit of music too. Canadian settler. she/her. https://linktr.ee/lia_pas