Smile For ME
We are a UK charity that sends Smiles to ME sufferers and their carers to brighten their day and make them smile ๐ Registered Charity Number 1185760 ๐ฉต www.smileforme.org.uk
@lornamcfindy.bsky.social
Writer, Disability & Chronic Illness Advocate, Pet Momager ๐ธ IG: @lmcfindy
@writebiggs.bsky.social
Reader, writer, sleeper agent Loves history, folklore & growing things ME + expansion packs ADCI network โฟ๏ธ | she/her Curtis Brown Breakthrough winner โ24, Jericho Writers Mentorship, Novelry Octopus winner โ23. LL Lucy Cavendish Prize โ24
@xlynseyx.bsky.social
Carlisle UK ๐ฌ๐ง Rose and Violet the guinea pigs ๐น๐น ME since 2009, late diagnosed autistic ๐๐ผ
@clarejames131.bsky.social
Slowly writing 2nd draft of debut novel. Enjoy music, nature, art, meditation, chatting, and tea. #pwME
@unrealarthur.bsky.social
ME Patient-ly Waiting for Biomedical Research | Volunteer @crunchme.bsky.social #GreatestMEdicalScandal @unreal_arthur
@gmuzz.bsky.social
Looking for a quieter life away from X. 20+ years in #sustainability and still fighting the good fight. Also championing / struggling with #mentalhealth and #MECFS since 2017. #PwME. Might even mention #LFC occasionally. #YNWA Feel free to connect. ๐
@clanman.bsky.social
Running The York ME Community & Caring about Accessibility in York UK. Could talk football all day long. Like to Word Doodle (some call it poetry) The Word Doodle Trilogy is out on Amazon now !
@peanut54.bsky.social
Here from the darkside. If you can't say something nice don't say anything at all. #cfs #ME #LongCovid
@mikeseumarathons.bsky.social
I run marathons around Europe raising funds for Invest In ME's biomedical research projects to cure ME. 32 countries so far. ยฃ51k raised. Next race: #33 Belfast, N.Ireland (04.05.25) www.mikeseumarathons.eu www.justgiving.com/mikeseumarathons
@margaretlaverick.bsky.social
Caring for my daughter diagnosed #MyalgicEncephalomyelitis 25 years ago, who is surviving 24/7 bedbound. Fighting for research #ME/CFS LongCovid #MillionsMissing
@karenlhargrave.bsky.social
Co-founder #ThereForME | Calling for an NHS thatโs there for ME & Long Covid | www.thereforme.uk Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
@swiftsandswallows.bsky.social
My daughter had Severe ME, POTS & MCAS and died in 2024 after years of medical neglect. I am also the parent carer of a younger daughter with ME & POTS. Loves to see cute photos of cats, birds & animals so I can share with my daughter to brighten her day
@medidier.bsky.social
Severe ME after covid infection Feb'22. Young dad. Bedbound. ๐ #MillionsMissing #pwME #ThereForME #GreatestMEdicalScandal #PEM ๐ฌ๐ง๐ฒ๐ซ๐ช๐ฆ๐ง๐ช
@trixyb.bsky.social
#pwme #mecfs ๐ Trying to find small joys while living with chronic illness Mostly housebound Love ginger cordial #vintage #retro #television #crochet #dogmum ๐พ
@winnie71.bsky.social
Proud ๐จ๐ฆ mom of 2 amazing kids, wife and engineer!โท๏ธ๐ฅพ ๐ณ ๐ธ ๐ ๐ถ ๐ ๐งณ ๐ฏโโ๏ธ On a mission to share beauty, hope, strength & knowledge! Long COVID March 2020โค๏ธ โ๏ธ X: @cockapoowinnie
@dom2023.bsky.social
ME since 2016. Have been working on microbiome since 2021. Finally got a test in 2023 with symptoms at 90% (first time in five years). Discovered four biomarkers in my sample correlated with 90%. Hope to maintain 90% in 2023/4.
@trishgreenhalgh.bsky.social
Prof of Primary Care Health Sciences, Oxford. Researching digital health/ inequities, covid prevention (masks/ air quality). Wild swimmer. Mum to Rob (marine bio) & Al (doc). She/her. https://scholar.google.com.au/citations?user=QDCqsJwAAAAJ&hl=en&oi=ao
@cortjohnson.bsky.social
Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
@claguenjc36.bsky.social
Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise incl CV/fatigue/mental health/ME/Longcovid/EDI/all views my own she/her
@sallywrites.bsky.social
MG author: Toby and the Silver Blood Witches, Max and Monty with Collins Primary Winner of the Book Bloggers' Novel of the Year Award 2022 Owned by three-legged rescue dog ME/CFS https://linktr.ee/SallyDoherty
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Universitรฉ de Montrรฉal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter
@arisonsned.bsky.social
Cat and Dog botherer. Young persons counsellor retired. Want my bike and my health back ๐ฉต
@christina4hope.bsky.social
๐ME/CFS ,Fibromyalgia , lyme Boriliose,Longcovid,MCS ,Vax Injured (not corrona vax),Hearing loss ectโฆ Posts English and German. Bavaria ,Germany
@tanteros.bsky.social
Not much energy / too many migraines. Nature keeps me going #pwME #MillionsMissing
@kirsties.bsky.social
UK #pwME #pwLC #MECFS #LongCovid #PEM (post-exertional malaise) as well as #Politics and other related chat. I use lists to manage my chats here. Feel free to use them or ask to be added https://writingandme.com/
@nikosuvisto.bsky.social
Life on hold by severe #MECFS, currently 99% bedbound ๐ Documenting my life like it is now, advocacy through photography ๐ท ๐Finland https://www.aquietstorm.me
@rorpreston.bsky.social
Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions ๐ #MECFS #LongCovid #IACC #PAIS ๐ https://crunchme.org/
@p0ppyfield.com
โฟ๏ธ Disability Comms, Research Recruiter and Accessibility Consultant in games/tech/fashion/design. ๐๏ธCall Me Disabled Podcast w Acast. Previously Community @ Open Style Lab. Made Adaptive Fashion UK. She/Her ๐ง [email protected] @whatsthethingwith.com
@dannilion.com
Purple Penguin in bed. Late 30s, Autistic, genderless and happy. They/them ๐๐ณ๏ธโโง๏ธ๐ง Married to the amazing Izzy: @izzy.brennand.net
@mrnme.bsky.social
Biologically misfortuned (M.E.) Personal ninja (ๅฟ่ ?) Music advisor, hours to suit. Full training in espionage/invisibility. Hugs or fight to the death optional.
@jonathanlseagull.bsky.social
Happily married, proud mum, former Chartered Engineer, pwME, ASD, ADHD, Dyslexia, HSD, MCAS, Allergies, Migraine Interested in science, reason, nature, politics and humour.
@gmeehan.bsky.social
Maths teacher (GCSE, A Level), M.E advocate, Musician (piano, bass, songwriter)
@11raych.bsky.social
Living with ME/CFS since the 90s. Still masking. #CovidIsNotOver She/Her Living in Naarm (Melbourne)
@hannahradenkova.bsky.social
Illustrator and Purveyor of Joyous Nonsense. I also blog about my ME/CFS. She/her/they
@jenbrea.bsky.social
@jpc101.bsky.social
God loving, web designing, ukulele playing, Xmas geek! I've had ME for 30+ years. I run whychristmas.com and I'm thechristmas.expert
@serensketches.bsky.social
Disabled Artist ๐จ Creating little pages of joy Art available to buy on Redbubble & Etsy https://linktr.ee/serensketches
@mjayne21.bsky.social
Environmental Conservation graduate. Nature lover๐ฟ๐ Gardening. Films. Books. Music. Gaming. Photography. Herbalism. INFJ. Living with #mecfs for 16 years. #POTS #Neuropathy #Gastritis #PCOS #cUTIs ๐
@tinarodwell1.bsky.social
Eclectic Mother and ME Advicate. Bag maker and same with a passion.
@strangerandstranger.net
Author of "stranger and strangerโ, letter writer, advocate and fundraiser for biomedical ME/CFS research.
@happyhoundhouse.bsky.social
2001 PVFS 'Recovered' to 90% by 2006. Sepsis 2013 resulted in M.E. / relapse. Brain/fitness not 'what it used to be'. Beloved Lisnakill Myles-Happy Hound himself ๐
@drjogreer.bsky.social
Mum, Carer, Myalgic Encephalomyelitis (ME) Advocate, Educational Psychologist
@francesryan.bsky.social
Guardian columnist and journalist. Commentator of the Year 2024. Author of Who Wants Normal? and Crippled. E: [email protected]
@drnighatarif.bsky.social
NHS/Private GPwSI Womenโs Health.๐บMedical Broadcaster๐Author ๐ฅHealth Content Creator. ๐๐ฆ๐ฅ๐ช๐ข ๐ฆ๐ฏ๐ฒ๐ถ๐ช๐ณ๐ฆ๐ด:๐ซ๐ข๐ฏ@๐ฅ๐ฎ๐ญ-๐ถ๐ฌ.๐ค๐ฐm
@vladvexler.bsky.social
Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Born in USSR, home is London | Living with ME since 2003. youtube.com/vladvexler (main channel) youtube.com/vladvexlerchat (chat channel) youtube.com/@vladvexlerphilosophy
@aaronca11.bsky.social
Billboard campaign/fundraiser here https://www.notrecovereduk.org