Smile For ME
We are a UK charity that sends Smiles to ME sufferers and their carers to brighten their day and make them smile 😊 Registered Charity Number 1185760 🩵 www.smileforme.org.uk
@somethingchronic.bsky.social
Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS and more. Chronically hopeful for better days. Determined to fight against injustice so people with ME and LC are treated with the same belief, respect and kindness as any other serious physical illness.
@mfairma.bsky.social
ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS. Masking like someone’s life depends on it.
@hopefoundinme.bsky.social
#Blogger #Creative voice for #Nature & #pwME. Homebound #MEcfs c2004. Likes words, can't always read/write them. Nazareth Companion SMitf ✝️ https://hopefoundinme.com/ https://linktr.ee/hopefoundinme Published by LADA Love infrequent wheel adventures. 🧑🦼💨💨💨
@livingnexisting.bsky.social
Reaching out to others with #ME/CFS. Learning to live a new life after Sepsis
@madknittrsteaparty.bsky.social
Love crafts, history, stories, natural world & spending time with husband, children, family & friends. When M.E /CFS & POTS doesn't stop me - which is most of the time right now. Usually found in a dressing gown. Devon, UK ♿🌿🏳️🌈🏳️⚧️🇺🇦
@pwoiter.bsky.social
I’ve been wearing the same trackie dacks since the Wuhan outbreak. ME/CFS carer. Melbun.
@colleensteckel.bsky.social
Advocate for #MyalgicEncephalomyelitis using ME-ICC. Contracted ME in 1989 Substack: https://colleensteckelmeiccinfo.substack.com/ Volunteer at www.MEadvocacy.org Aspiring writer of paranormal fiction
@mflares.bsky.social
PhD in physics, former scientist, educator, and athlete, now housebound due to ME/CFS and POTS from SarsCov2, she/her
@tessapinto.bsky.social
ME [+ comorbidities] post-vax in 2021. 100% bedbound since July 2023. Hope one day to become an advocate for this life destroying disease. Exponent of patient-led research & advocacy, and the right to try.
@stardust949.bsky.social
Aspiring to write for stage & screen. Dyslexic ball of chaos. She/ her. #pwME #MECFS #POTS #BLM #TransRightsAreHumanRights. Twitter account: @StarDust949
@sammiemc.bsky.social
Long Covid Kids Founder & CEO Hoping to be on the right side of history. ♿️#LongCovid ✳️#CleanAir 🙋🏻♀️Campaigner 🧠🧡🫀#LongCovidKids 🌊#ColdWater 🧜🏻♀️#Swimming 🧘🏻#Pilates coach - #Pacing since 2020 🦠 😷 🫅🏼#CoronationChampion 💥#Volunteer
@michaelnobbs.bsky.social
Artist and tea drinker living on a hillside in Wales. Learning to live a gentle creative life and encouraging others to do the same. Diagnosed with #MECFS in 1997. www.patreon.com/gogently https://linktr.ee/michaelnobbs ✍️🧶
@melindaiscomplex.bsky.social
My body has given up but I haven't... ME/CFS Patient Leader & Complex-Chronic Disease Advocate (on hiatus). Co-founder #MEAction Maryland. Bed-tethered disabled by severe ME & LC & comorbids. Orioles/Ravens/Caps fan. She/her
@andrewg76201347.bsky.social
ME/CFS, POTS, MCAS, lupus, Hashimoto’s. Patient & carer. Disabled scientist. Female - using fake name bc I post about son's illness. Location: Australia
@mamguwithme.bsky.social
Mild M.E 2010-15; Severe M.E 2015-date. 🏴From Bed, Beddingham 🎄🎅🎁Christmas lover. Advocado hater🥑 Coeliac & PCOS. ⏳️Patiently waiting for a cure or treatment for M.E⌛️
@clairabelle.bsky.social
Mostly a lurker as I have pretty severe cognitive dysfunction these days, please be nice if I do post. ME/CFS, disability and chronic illness. Used to be a bioscientist. PhD. She/They
@mandylifeboats.bsky.social
Happily married, animal loving Londoner. Lifelong leftie, activist, cat lover. Journalist (sub) but #MECFS shrank my world… now housebound but still smiling. Mostly! #pwME #ChronicIllness #Spoonie #ChronicPain #cats #CatsOfBlueSky #DadJokes #BeKind
@notjustfatigue.bsky.social
We are a 501(c)(3) sounding the alarm on ME/CFS through digestible, creative content. This is #NotJustFatigue. Visit www.notjustfatigue.org
@polybiorf.bsky.social
501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
@ashleyhultman.bsky.social
#TeachMETreatME #hEDS #MyalgicEncephalomyelitis #MESpine #CCI #POTS #longCovid #AuDHD #endo • Capitol Hill, AFL-CIO, and AFT alum • She/her
@remissionbiome.bsky.social
Community Science Project http://RemissionBiome.org
@daniellemors.bsky.social
Audiobook Narrator. She/her. hEDS and ME/CFS patient and advocate.
@betsyladyzhets.bsky.social
editor/co-founder @thesicktimes.bsky.social | journalist covering Long COVID & related crises | she/her/🏳️🌈 email: [email protected] | signal: betsyladyzhets.25 | https://thesicktimes.org/
@thesicktimes.bsky.social
A nonprofit news site chronicling the #LongCOVID crisis. Founded by journalists @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social Website: thesicktimes.org Newsletter: thesicktimes.org/newsletter Donate: the-sick-times.fundjournalism.org
@wendykloiber.bsky.social
So did the divine right of kings. Long covid class of March 2020, the kind with ME. Would like one more tattoo, minimum. She/her.
@richellesepulveda.bsky.social
Long Covid, MECFS, ADHD, etc. Patient-led research is my jam. A bit obsessed with GIP.
@grachstephanie.bsky.social
Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers | https://t.co/TkYm2MXvir
@solveme.bsky.social
Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
@johnvsjonvsme.bsky.social
#JohnVsJonVsME campaign to get John Oliver or Jon Stewart to bring the awful history of #MyalgicEncephelomyelitis #GreatestMEdicalScandal to light JohnVsJon.com
@itswhitneywitch.bsky.social
Disability Justice Living with ME, EDS, POTS, MCAS, vascular compressions, spinal comorbidities & more Ambulatory wheelchair user Cozy gamer, lazy gardener, hopeful baker
@wilhelminaj.bsky.social
Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
@katieklocksin.bsky.social
One of the #MillionsMissing with #LongCovid #MECFS // Once a radio and podcast producer, always a Transom alum 😷 Long covid is common 😷
@meactmaryland.bsky.social
#MEActionMaryland Maryland chapter of the #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in MD/DMV https://youtube.com/@meactmaryland https://linktr.ee/meactmd
@chromatowski.bsky.social
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing. ME ‘05, LC ‘23, many of their friends along the way. Very severe (FUNCAP 0.8). No unsolicited advice please!
@davetuller1.bsky.social
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. [email protected]
@oonaghcousins.bsky.social
@karenmrenton.bsky.social
Joiner of the Xodus #ME #MyalgicEncephalomyelitis #pwme #diabetes #hypertension #menopausal
@andrewgiffordphoto.bsky.social
Hello, welcome :) This Invisible Illness: my first long form photography project, about ME/CFS a complex & challenging health condition - like Long Covid. https://linktr.ee/andrewgifford.photography Bristol, UK. 335.42 ppm. He/him/oi.
@elinz.bsky.social
ME/CFS, science, history of ideas, disability, photography, film, board games, curiousity, history of medicine. Location: Sweden #pwME #MECFS #NEISvoid #ChronicIllness Came here from: https://twitter.com/ezchili
@dreamsatstake.bsky.social
Mostly bedridden with severe myalgic encephalomyelitis/ME Interests: health, reading, nature, film, photography, art, travel, social issues Former blog: www.dreamsatstake.com
@nlizaki.bsky.social
#MEActionNetwork health activist. Patient, project manager, translator & polyglot. ✊🏾 #Stoic #WoC @NLizaki & @SaveLizNevra on Twitter. #MyalgicEncephalomyelitis since 6. 28 now. #PMDD #hEDS #POTS #MCAS #LongCovid
@franceyme.bsky.social
https://amandafrancey.com/ illustrator, amateur photographer and bird telepath. Advocating for myalgic encephalomyelitis #MECFS #LongCovid #ClimateAction
@anilvanderzee.bsky.social
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS #art2cureME #pwme #millionsmissing
@jayletay.bsky.social
Author of A Girl Behind Dark Glasses, A Girl in One Room and A Girl Beyond Closed Doors. Casual artist and public speaker too
@brooksmeatswift.bsky.social
It’s me, Hi! I’m the problem, it’s me! . ME patient & advocate - Decode ME Ambassador - 1 day at a time… My girls, my team, my music