GC
Just a mailman with #POTS
Here to spread awareness and advocate for those with #dysautonomia and #chronicillness
@support.bsky.team
Submit bug reports, feature requests, and feedback with the in-app form in your left side menu (mobile) or right column (desktop), or email us at [email protected].
@edyong209.bsky.social
Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him 📷 Canon R6mkii + RF 800mm Edyong.me
@ahandvanish.bsky.social
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@profstevegriffin.bsky.social
Professor of Cancer Virology, University of Leeds. Co-Chair, Independent SAGE
@maosbot.bsky.social
Parent, spouse, Australian, Professor of Machine Learning in Oxford. Bayesian ML, Long Covid, trans rights, photos of dog, AI must be good for humans, https://www.robots.ox.ac.uk/~mosb
@catinthehat.bsky.social
Mum • Lover of nature and clean, fresh air • Passionate about science • “Without data, you’re just another person with an opinion.”
@cleanairclassrm.bsky.social
#CleanAir #IndoorAirQuality #HealthyLearning #N95 #VaccinePlusPlan #CO2Monitor #DisabilityAccess Allied Health & Building Profession Led Founder @mishwoz.bsky.social Information for UK schools & parents https://tinyurl.com/CleanAirClassroomResource
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@jljcolorado.bsky.social
Dist. Prof. Chem. & CIRES, Univ. Colorado. #HighlyCited2022, Fellow AAAR & AGU. http://Bit.ly/TenSR http://Bit.ly/ATRVs Aerosols, pollution #EndFossilFuels #COVIDisAirborne. Views are my own
@toshiakima.bsky.social
Nephrology & Internal Medicine. Immunothrombosis incl DIC. ISTH Member. No Conflicts of Interest. Views my own etc
@janetdafoe.bsky.social
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
@dysautonomia.bsky.social
We are the leading non-profit advocating for over 70M people around the world living with autonomic nervous system disorders. Research, Clinician Education, Patient Empowerment, Public Awareness & Advocacy is what we do. DysautonomiaInternational.org
@cabruce.bsky.social
Previously a psychotherapist. Bedridden #ME 32years Daughter severe ME, eldest son MS. I like art, nature, books, people, music, poetry and podcasts!
@binitakane.bsky.social
Long COVID/ME interested lung doctor | Campaigner for race equality, clean air & patient voice | Independent SAGE | Co-Founder South Asian Heritage Month YouTube: @LCCWYCD Enquiries: [email protected] Linktree: https://linktr.ee/binitakane
@longcovidfam.bsky.social
A US non-profit supporting children with Long Covid and their families.
@elhopkins.bsky.social
Composer who is currently working on a Song Cycle. Posting about: Music, COVID safety, Clean Air, Climate Change & wildlife. #Covidisairborne #FBCV #Vaccinessavelives #WearARespie ffp2/3 ❌ to mask bans #TransparencyCovid Voting Green Party 💚
@mefoggydog.bsky.social
Award-winning #socialenterprise in #UK. Working for #socialchange for the #MECFS community. Linktree - http://bit.ly/408o6LI
@vladvexler.bsky.social
Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Born in USSR, home is London | Living with ME since 2003. youtube.com/vladvexler (main channel) youtube.com/vladvexlerchat (chat channel) youtube.com/@vladvexlerphilosophy
@whitneydafoe.bsky.social
Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
@johnpring.bsky.social
Editor/founder of Disability News Service; author of The Department, published by Pluto Books, August 2024; disabled journalist and author; autistic.
@swastrosarah.bsky.social
Speaking up for everyone affected by severe/very severe #ME. Medical science has everything to learn about human biology from the post infection disease ME. #MEKills backstory https://x.com/swastrosarah?lang=en-GB
@jengovey.bsky.social
I dress up in fancy dress for the charity Invest in ME Research to raise funds & awareness of Myalgic Encephalomyelitis. In a previous life I worked in film. I’m an advocate for good science, treatments & better healthcare for #pwME.
@stenhelmfrid.bsky.social
Ph.D. in physics, also interested in mathematics, science theory, and history. Follows research on ME/CFS. Stockholm, Sweden
@smartairuk.bsky.social
Smart Air is a social enterprise and B-Corp committed to changing the way we breathe clean air! We create incredibly effective air purifiers and share life-hacks and tips on protecting your health from poisonous air
@abrokenbattery.bsky.social
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos. https://linktr.ee/abrokenbattery
@odyody.bsky.social
Chronically ill. Medical research, better care for underresearched & rare conditions, disability rights & ethics. @OdyO11 at 🐦
@stickmancomms.bsky.social
Stickmen helping to build understanding and acceptance of hidden disabilities and chronic illness, in a way that empowers us. (Run by Hannah Ensor - who has #hypermobility #PoTS and probably other stuff.) +talking about personal experience of #disability
@ruthlampard.bsky.social
Looking out for blessings: in wildlife, nature, & kindness. Lead Chaplain with AfME Healthcare: views my own. Living w ME & LongCovid. Virtual Pilgrim. Fan of rewilding, life too. Usually moderate to mild in views, occasionally sharp. No DMs, will block
@scienceforme.bsky.social
We are an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and the carers, clinicians, scientists and advocates who support us. This account is maintained on a part-time basis by patients.
@starseeker.bsky.social
C19 March 2022 caught at work #NHS Specialist || Life ⏸️ || Emotional Health & Longcovid Advocate ~ Life is Precious! 💫💕🪬☮️
@joissummers.bsky.social
Setting this up as I gradually move over from the bird place. ‘X’ since Musk is a bit like the UK post Brexit. Lovely to see some familiar faces and look forward to getting to know new ones. Post mainly about politics and covid. #FBPE #FBLC #PWLC
@drclairetaylor.bsky.social
@sunny-rae1.bsky.social
Consultant Cardiologist, also treating and researching Long Covid. Long Covid Advisory Team @ WHN, #TeamClots, Medical Champion @ Long Covid Kids. Prevention is better than cure. Views my own and not medical advice x
@ehlersdanlosdaily.bsky.social
Hi, I'm Lauren. I'm a US-based artist (LaurenRubinArt.com; thank you for your support!) and a zebra (EDS, POTS, epilepsy, MCAS...should I go on?). This account is specifically for those who want to keep abreast of news and information of interest to EDS.
@tigresseleanor.bsky.social
Malum enim bonum videtur in mentibus eorum, quos deus ducit ad interitum.
@mishwoz.bsky.social
Interdisciplinary Professional #CleanAir #HealthyBuildings 🇦🇺🇬🇧🇪🇺 Architecture | Allied Health Equity Access & Inclusion Former NHS Speech Lang Therapist PGDipSLT / BArch RCSLT non practicing member Founder #CleanAirClassrooms 🇬🇧 Posts personal views
@irishmecfsassoc.bsky.social
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association NB: Posts should not be considered advice Registered Charity Number 20100254 CHY 22039 #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
@mecfsnanoneedle.bsky.social
Severe #MECFS Patient Bedridden. No energy to speak. #MECFSDiagnosticBiomarkers Drug companies need a #MECFS and #LongCovid diagnostic blood test for successful clinical trials. https://mecfsdiagnosticbiomarkers.substack.com/
@aeralmt.bsky.social
😷LMT & Peer2Peer Health Coach MA6068404 | Scent-Free | HEPA | N95 | Plus Life | Far UVC | Online & In Person Join Ko-Fi to 💵 my Mutual Aid Program to get Quality Care to those in the most need! https://ko-fi.com/CCAera
@duncanrobertson.bsky.social
Policy & Strategy Analytics academic at Loughborough University; Member, Independent SAGE; Fellow, St Catherine's College, Oxford.
@kityates.bsky.social
Author. Prof of Math Bio and Public Engagement. Member of Independent Sage since October 2020. @Kit_Yates_Maths on twitter Books - Math(s) of Life and Death How to Expect the Unexpected Get them here: https://tinyurl.com/37rx2yuv He/Him
@trishgreenhalgh.bsky.social
Prof of Primary Care Health Sciences, Oxford. Researching digital health/ inequities, covid prevention (masks/ air quality). Wild swimmer. Mum to Rob (marine bio) & Al (doc). She/her. https://scholar.google.com.au/citations?user=QDCqsJwAAAAJ&hl=en&oi=ao
@rgleadow.bsky.social
Plant scientist studying how climate change affects plant toxicity (#cyanide). Born 314ppm. Interested in science, tech, plants. #MECFS ally #botanist 🌾🪴🧪🌱🌿💉 Views my own
@johnthejack.bsky.social
Unbeliever (political & religious), Wales rugby, #c4news, porridge, tea, #MEcfs 'Obvious but wrong' Also JTJ on the other place https://johnthejack.com
@zubhaque.bsky.social
Former Deputy Director and Head of Research at Women’s Budget Group. Former CEO The Equality Trust; Deputy Director of The Runnymede Trust. Member of Independent SAGE. Worked in government and think tanks. Views my own
@sammiemc.bsky.social
Long Covid Kids Founder & CEO Hoping to be on the right side of history. ♿️#LongCovid ✳️#CleanAir 🙋🏻♀️Campaigner 🧠🧡🫀#LongCovidKids 🌊#ColdWater 🧜🏻♀️#Swimming 🧘🏻#Pilates coach - #Pacing since 2020 🦠 😷 🫅🏼#CoronationChampion 💥#Volunteer
@isabelrb.bsky.social
CEO | Renegade Research | Project Director of Remission Biome NBC-HWC, AIP-C @remissionbiome.bsky.social