I.T.
autoimmune SFN, Long Covid, chronic migraines, POTS, antibiotic toxicity, chronically reactivated EBV
@alanasaltz.bsky.social
Disability rights activist and writer. Disabled, chronically ill, and neurodivergent. Isolating since 2020, still COVID conscious and you should be too. She/they ♿😷🌈 #EDS #spondyloarthritis #autism #LGBTQIA alanasaltz.com
@reallandsend.bsky.social
co-host Death Panel Podcast | co-author Health Communism with Artie Vierkant | blind/sick/surplus www.deathpanel.net www.patreon.com/deathpanelpod www.beatriceadlerbolton.com
@deathpanel.bsky.social
podcast feat. Beatrice Adler-Bolton, Artie Vierkant, Phil Rocco & Jules Gill-Peterson. Stay alive another week patreon.com/deathpanelpod
@lisaiannattone.bsky.social
@klstenhouse.bsky.social
🍁🇨🇦🍁 #MS, MS rehab, neuroplasticity #EBV, #postviral, #PASC, personalized medicine@ genetics, Covid cautious, play detective, ex-research chemist and #biochemicalpathway 🤓. #TheMSGym. Opinions are mine. Also native gardening, knitting, more. she/her
@millionsmissingpod.bsky.social
Share your story / Amplifying the chronically ill / #MyalgicEncephalomyelitis #LongCovid et al / #MillionsMissing / Contact: [email protected] / linktr.ee/millionsmissingpodcast
@sabrinapoirier.bsky.social
#CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis + #MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability (Unceded) #Canada https://linktr.ee/sabrinapoiriercanada
@janetdafoe.bsky.social
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
@broomflowrs.bsky.social
When you said literature and art should be revolutionized, they said it would do no harm to stage a few plays about ghosts.
@symptomodyssee.bsky.social
Bessere Diagnostik & Versorgung für Patient*innen mit untererforschten Krankheitsbildern. "Das ist nur Stress" ist keine Diagnose.
@sabinehermisson.bsky.social
PD Dr. (religion, empirical education research) mother of Mila who suffers from very severe ME/CFS (Bell 0) https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf Vienna, Austria #CleanAir
@lauramiers.bsky.social
Chronically ill, LongCovid since 2020. Public health advocate and lived experience expert. Ex-Texan. Medicine, languages, Sociology, & law. Global citizen & polyglot.
@slag.bsky.social
@dysautonomia.bsky.social
We are the leading non-profit advocating for over 70M people around the world living with autonomic nervous system disorders. Research, Clinician Education, Patient Empowerment, Public Awareness & Advocacy is what we do. DysautonomiaInternational.org
@bmhughes.bsky.social
Concerned citizen • Prof Psych • Writer • Galway • he/him A blog: https://thesciencebit.net/ A bio: https://brianmhughes.com/ A book: https://bloomsburycp3.codemantra.com/viewer/63721f10ee35880001aafadc 📷 https://www.photoblogism.net
@ahandvanish.bsky.social
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
@mfairma.bsky.social
ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS. Masking like someone’s life depends on it.
@climate.skyfleet.blue
Monitoring Mainstream and Independent Media about Climate related news and events. Tracking Climate disruption related news and protests around the issue of Climate Breakdown. 🆘 @skyfleet.blue
@lisafellaantifa.bsky.social
🇨🇦Liberal, rescue dog Mom, avid reader, feminist, atheist,♥️history, gardening, frogs, elephants, birds, nature. Be Kind! Settler on Haudenosaunee land (ON) 🇺🇦at♥️ #SlavaUkraini #NAFO #ClimateChange #FibromyalgiaFatigue #NeverVoteConservative #CovidIsAirborne
@mmissingholland.bsky.social
Actiegroep #MillionsMissing Holland wil betere zorg & sociale gelijkheid voor ME-patienten.
@putrinolab.bsky.social
@sannara.bsky.social
#MECFS #MILLIONSMISSING #MEAwareness #PEM #POTS #MCAS #PostCovid #LongCovid #TeamWissenschaft #GdB https://www.mecfs.de/was-ist-me-cfs/
@anilvanderzee.bsky.social
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS #art2cureME #pwme #millionsmissing
@mecvsvereniging.bsky.social
Patiëntenvereniging die zich inzet voor mensen met ME/cvs en hun omgeving. Op naar meer erkenning, kennis, steun en zorg voor ME/cvs patiënten. www.me-cvsvereniging.nl
@simonmcg.bsky.social
Sometimes try to explain and comment on ME researchh, or even contribute to it. And I advocate for more and better research.
@weselymd.bsky.social
Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, Dementia, Delirium, PICS. Fighting misinformation. Posts my own. Still learning.
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@patientled.bsky.social
Patient-Led Research for #LongCovid! http://patientledresearch.com
@molesen.bsky.social
Epidemiologist with expertise in pandemics, healthcare infection prevention, and emergency management. See my COVID data viz at https://icemsg.org/ Twitter: @maolesen
@laurieallee.bsky.social
✌ 😷 Mom, writer, photographer, & (since 2020) compiler of Covid studies, articles & discussions. I update my Covid compilations here: https://www.laurieallee.com/general-5 Lurking here, but not active on any social media. Find me: laurieallee.com
@toshiakima.bsky.social
Nephrology & Internal Medicine. Immunothrombosis incl DIC. ISTH Member. No Conflicts of Interest. Views my own etc
@edyong209.bsky.social
Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him 📷 Canon R6mkii + RF 800mm Edyong.me
@jenbrea.bsky.social
@phoenixme.bsky.social
Bed-bound activist with severe ME/CFS. ME/CFS, chronic illness, #AusPol, #USPol, climate justice, social justice, crochet, cats, sci fi. Views expressed are my own. If I had any spoons, I'd be dangerous. Boonwurrung country, Australia
@lizwhatsherface.bsky.social
abolitionist artist / CEO of GAY ARBYS / sentient sandwich linktr.ee/lizwhatsherface realgayarbys.com
@emilyrj.bsky.social
Digital journalism. Design, news/book edits, linguistics, data, tech. Medical + academic research. Disability in news, media and accessibility design consults. @emily_rj on Twitter #CripTheVote #Iowa ♿️🏳️🌈📚
@osayko.bsky.social
Theater/film/book lover. Lipstick hoarder. Ukrainian-American. Life on pause due to #LongCOVID of the #MECFS / #POTS / #MCAS variety. Left-ish libertarian-ish. Suffering NY Rangers fan. Audiobook connoisseuse.
@emec.bsky.social
Advocacy organization for ME/CFS patients and their carers in Europe
@hazie.bsky.social
Very trustworthy citizen. Untethered. Quite Bothered. Wear a mask. https://gofund.me/80ade9a5
@emilyesfraser.bsky.social
Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Université de Montréal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@moleyme.bsky.social
Lancashire Lass with #MECFS likes flowers 🌸trees 🌳nature 🌱climate ⛈️ justice for all 👩🦽 interested in #longcovid prefer to interact a with community of kind humans ! . North West England . Feel like a Mole in an #MECFS hole trying to dig my way out!♿️
@nicolettem.bsky.social
#FreePalestine #SaveLebanon #BLM Living with #mecfs Background image is from pinterest, I don't remember the artist's name. I also post in German.
@allyann.bsky.social
Living with & advocating for ME, POTS & FM, ex-IT. Homebound & at times bedridden. News and Recipe junkie. Living in Millowl, home of the Bunurong people, Victoria, Australia