Julia
Alles rund ums Leben mit ME/CFS, POTS, CRPS und vielem mehr | Aufklärung und Bewusstsein
@bethmazur.bsky.social
#pwME and science/data nerd. co-founder #MEAction. Mostly post about #millionsmissing, #MEcfs, #LongCovid, #microbiome, #MCAS, #POTS, #citizenscience, and #healthequality. CS @MIT
@kla138.bsky.social
Biologist (cell and molecular biology, immunology), volunteer fire fighter, scuba diver, book lover.
@carriemcginn.bsky.social
Infection-associated chronic illness advocate | Life sidelined by #LongCovid #MECFS #POTS | #PatientPartner | MSc | Mom | She/Her | 🇨🇦 #Canada #Quebec #CovidConscious #StillMasking #MyalgicEncephalomyelitis #pwME #EMSFC #CovidLongue #CovidLong #pwLC
@cortjohnson.bsky.social
Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
@elinz.bsky.social
ME/CFS, science, history of ideas, disability, photography, film, board games, curiousity, history of medicine. Location: Sweden #pwME #MECFS #NEISvoid #ChronicIllness Came here from: https://twitter.com/ezchili
@moleyme.bsky.social
Lancashire Lass with #MECFS likes flowers 🌸trees 🌳nature 🌱climate ⛈️ justice for all 👩🦽 interested in #longcovid prefer to interact a with community of kind humans ! . North West England . Feel like a Mole in an #MECFS hole trying to dig my way out!♿️
@millionsmissingpod.bsky.social
Share your story / Amplifying the chronically ill / #MyalgicEncephalomyelitis #LongCovid et al / #MillionsMissing / Contact: [email protected] / linktr.ee/millionsmissingpodcast
@thisismetweety.bsky.social
Apparently I don’t like viruses. #MEcfs as a child; post viral syndrome as an adult; now #LongCovid; #fibro; #hypermobility; #hEDS #pwME. Kiddo with #LC. #ND. #HealthPolicy research. (Yes I know it’s Skeeting & hashtags don’t work the same. Give me time.)
@chronicchannel.bsky.social
Youtube Channel covering Chronic Illness, Universal Basic Income and Air Quality. https://www.youtube.com/@ChronicIllnessChannel Clean The Air http://bit.ly/CleanTheAirUK
@twestphalia.bsky.social
Academic background: Comparative Literature (European 19th c) Bluesky focus: LC/ME, Russian invasion into Ukraine, Arts/Culture
@chantalbritt.bsky.social
Science journalist/comms, researcher, chronically impatient & difficult patient. Long covid, ME, ProVaxx, AntiGlobuli @ BFH, Long Covid Switzerland, Europe, Kids Switzerland, ENOVAT, SPO, EUPATI Ex Bloomberg, Swissinfo, SAKK, ESCMID, SCAHT, 3RCC
@one0ther.bsky.social
@paco1.bsky.social
Twitterflüchtling dort @backtoPaco NoAFD Grün zu 💯% Habeck4Kanzler NIE WIEDER CDU Pro Maske Pro Impfung Stand with Ukraine Stand with Georgia Antifaschist Höcke ist ein Nazi AFDVerbotjetzt
@marcuscjhartmann.de
Lebe lang und in Frieden 🖖 #LongCovid seit 04.22 #Fahrradfahrer, #Healermain zert. IT-Sec, gepr. Webentwickler
@bendyhedsandco.bsky.social
For Awareness & Support of #Hypermobility #hEDS/HSD #POTS #ME/CFS #MESpine #Stenosis #MCAS & co. #PANS/PANDAS & #LongCovid ally #NEISVoid #MedEd for EDS/HSD & co 🔗 conditions go to: 👉 https://gptoolkit.ehlers-danlos.org/ 👈
@theclutterer.bsky.social
John Clutter from Twitter. Economist, Theologian. Introverted idealist. Trying out new things. ME/CFS and stuff. Skeet!
@physiosforme.bsky.social
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME Find out more at physiosforme.com
@missingfinland.bsky.social
ME/CFS G93.3 hoito & diagnosointi: 2021 Duodecim https://rb.gy/m9spr 2021 NICE https://rb.gy/h7eok 2021 Mayo Clinic Proceedings https://rb.gy/fd54d
@mmissingholland.bsky.social
Actiegroep #MillionsMissing Holland wil betere zorg & sociale gelijkheid voor ME-patienten.
@abrokenbattery.bsky.social
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos. https://linktr.ee/abrokenbattery
@petramecfs.bsky.social
Informatikerin aus Bayern Jetzt #chronischkrank #MECFS, #POTS, #MCAS, #PostVac, #PostCovid, #LongCovid
@ack025.bsky.social
Links+follows related to: Ehlers-Danlos + Lyme + MEcfs + Autoimmune (Myasthenia Gravis, Sjogren’s, Hashimoto’s) + POTS + Mast Cell + ApoE (4/4) + Bilateral Vestibulopathy + BPPV + SIBO + migraine + mito myopathy + Long COVID + LMCA & Celiac Artery Stenosis
@emmiskyten.bsky.social
Sustainability science studies on hold because of POTS + Long covid / suspected ME. Previously interesting, now mostly into resting. Here to connect with other sick people and for science stuff.
@mecfsnanoneedle.bsky.social
Severe #MECFS Patient Bedridden. No energy to speak. #MECFSDiagnosticBiomarkers Drug companies need a #MECFS and #LongCovid diagnostic blood test for successful clinical trials. https://mecfsdiagnosticbiomarkers.substack.com/
@purplespeedwell.bsky.social
Mostly bedridden with #MyalgicEncephalomyelitis, a devastating illness with little funding and no treatment. Toronto, Canada Ally of #pwLC #pwME #LongCovid #POTS #MCAS #MEcfs
@renzpolster.bsky.social
physician-researcher, paediatrician, ME/CFS since 2016. This account is about science, esp. CFS
@ninaweber.bsky.social
Medizin-Redakteurin beim SPIEGEL, Biochemikerin, Buchautorin. https://www.spiegel.de/impressum/autor-de0618d4-0001-0003-0000-000000015007
@philkjp.bsky.social
Kinder- und Jugendlichenpsychotherapeut RPG-Fan, Oldtimer, Holzbau und Hühner, PCS Betroffener
@vogelfrei.bsky.social
autoimmune SFN, Long Covid, chronic migraines, POTS, antibiotic toxicity, chronically reactivated EBV
@nofutureforme.bsky.social
#EM encéphalomyélite myalgique (c'est pas une maladie rare mais elle n'est pas enseignée en France) #MECFS #pwME #POTS
@lymenews.bsky.social
The #LymeDisease community's leading source for news, insight and advocacy. Publisher of The Lyme Times, creator of MyLymeData. A 501(c)(3) organization. Tick-Borne Diseases, Infection Associated Chronic Conditions #IACC, #OneHealth
@klangensiepenmep.bsky.social
Mitglied d. Europäischen Parlament | MEP | Greens/EFA Stellv. Vorsitzende d. Sozialausschuss (EMPL) Mitglied im Gleichstellungs+Binnenausschuss (FEMM+ IMCO) ♿️(she/her) https://www.katrin-langensiepen.eu
@jolu.bsky.social
sie/she Menschenrechte sind nicht verhandelbar Feed "TerminDemoGegenRechts" ⬇️ #TDGR #TeamVorsicht #CovidIsNotOver #MaskUp 😷 #LongCovid #KeinerBleibtAllein #WeedMob
@longcovidsupport.bsky.social
UK Charity Keeping people with #LongCovid at the centre • Support • Research • Advocacy • Education • #ResearchLongCovid #TreatLongCovid #CureLongCovid www.longcovid.org https://linktr.ee/longcovidsupport 📧[email protected]
@perfectpic.bsky.social
Perfectly Timed Photos That Will Blow Your Mind . No content own dm for credit/removal
@ebvmecfs.bsky.social
Seit 2019 mecfs und andere Erkrankungen meistens im Bett, liebe Fotografie, wandern, radeln alles genommen von mecfs. Mecfs ist eine neuroimmunologische Multisystem Erkrankung
@dgmecfs.bsky.social
ME/CFS ist eine schwere körperliche Erkrankung, die bisher kaum erforscht ist. Wir setzen uns für die Interessen der Erkrankten und mehr Forschung ein. mecfs.de
@estrogenpudding.bsky.social
living with me/cfs | covid conscious hobby film photographer eepy estrogen enjoyer
@liegenddemo.bsky.social
Wir, die Initiative #LiegendDemo, demonstrieren für Menschen mit #MECFS; egal, wodurch die Erkrankung ausgelöst wurde. Für #aufklärung #versorgung #forschung Info zu den Liegenddemos, zu den Kampagnen und vieles mehr unter unter http://mecfs-info.de.
@rustycage.bsky.social
I'm gonna break my rusty cage and run... ME/CFS since "just the flu" in 2018.
@lutanda.bsky.social
Ich war einmal Bäuerin #Klimagerechtigkeit #Ernährungssouveränität #GutesLebenfürAlle #DemarcaçãoJá Jetzt habe ich #severeME und kämpfe für #PwME #MECFS - chronisch müde sind nur die Angehörigen
@menana.bsky.social
Another MECFS-Warrior. Mother of 3, located in the social sector, now retired due to my state. Against all odds I keep my head up. For more recognition, research and care. PEM is non-negotiable!