Julia
Alles rund ums Leben mit ME/CFS, POTS, CRPS und vielem mehr | Aufklärung und Bewusstsein
@binganzbrav.bsky.social
Queerfeminismus - Antifaschismus - Antirassismus Informationen über rechte Netzwerke - Evangelikale - christliche Fundis - Anarchismus Blog: bkramer.noblogs.org
@rosemariecrps.bsky.social
Urteile über mein Leben, wenn Du in meinen Schuhen gelaufen bist! Kindness changes everything CRPS, PainFighter, Autoimmun, Rentnerin, FckAFD/Trump/Putin/Musk, CovidIsNotOver, 8x💉, DieMaskeBleibtAuf,TeamVorsicht, Kontrollgruppe, User 880.437, InvitecodeEra
@arcialoc.bsky.social
I'm a student going to colleague to get my A-level. I'm married to the best man in this world and we have two wonderful kids together. We share our home with two black cats. Berlin - Germany
@melindaiscomplex.bsky.social
My body has given up but I haven't... ME/CFS Patient Leader & Complex-Chronic Disease Advocate (on hiatus). Co-founder #MEAction Maryland. Bed-tethered disabled by severe ME & LC & comorbids. Orioles/Ravens/Caps fan. She/her
@chronicmyalgice.bsky.social
Dutch | life derailed due to #IBD & #MECFS | sofa bound | wants to raise awareness about post infectious diseases | one of the #MillionsMissing
@wilmaruhe.bsky.social
Mutter mit Teenie, Dauercamperin, Hundebesitzerin, "Leben und Leben lassen" #MECFS #Hashi #NNRI #StandwithUkraine 💙💛 #SchleswigHolstein #Kiel #FCKNZS #FCKPTN #Wirsindmehr #SeieinMensch
@clara-aus-k.bsky.social
#LongCovid Fighter since 01/2021 #MECFS #PEM #SFN #MCAS #POTS #DYSAUTONOMIE
@lolahachi.bsky.social
Love reading about wildlife, science and social justice. Chronically ill and disabled SevereME LongCovid ME/cfs
@meadvocacyproject.bsky.social
The ME Advocacy Project is a grassroots initiative founded by individuals living with post-infectious illnesses Myalgic Encephalomyelitis and/or Long COVID. Unceded Canada
@mecfs.bsky.social
ME-CFS since Covid, Dog-Lover, Nature-Lover, used to be a trail-runner
@kusstiluft.bsky.social
🦠 Wuhan SARS-Cov-2 ❤️🩹 #LongCovid —> #ME/CFS 💶 arm, aber Serotonin-Überschuß 🤷🏻 Ex-Editorin, Ex-Lehrkraft 😷 #TeamVorsicht
@joypops.bsky.social
Living with (post)viral severe ME. Love reading. Writing poems. A friend to Nature and all her creatures. Korean and Japanese dramas/ films are my happy escape. Cw: Tokyo Holiday, Anpan, Heavenly Ever After, Resident Playbook, My Liberation Notes (rewatch)
@kcotto.bsky.social
#MECFS,Post Covid,Pizza-Lover,Gitarre,Musik,Bücher,Kochen,Linksgrün,#TaxTheRich
@nick2155.bsky.social
ME/POTS/FIBRO/PVFS - Mod/Admin for Millions Missing Voice Global #InstitutionalisedDiscrimination #MECFS #LongCovid
@nocaffeineplz.bsky.social
Graphic & web designer, mainly using this account for illness fieldnotes. ♿ Chronically ill & disabled with ME/CFS, MCAS, hEDS, Psoriasis, Endometriosis/Adenomyosis, and likely some rampant undiagnosed ADHD Je poste principalement en anglais !
@miinoe.bsky.social
#behindert und gebe nicht auf für meine Rechte zu kämpfen! 🦓🦻👩🦽😎🤯😷 #EDS #POTS #MCAS #MECFS #SFN usw. 🐈⬛🐈⬛ Katzen sind die beste Medizin #SocialJustice #TransformativeJustice 🐘 @mi_noe@berlin.social 🐦 @tomaten_matsch
@fhronesis.bsky.social
Me/cfs severe Housebound, mostly bedbound. Used to love arts, philosophy, painting, theater, gardening, human sciences... Neuro issues, I can't enjoy or easily do that anymore. Antivalidist.
@rcschwartz.bsky.social
Biologe, Bodenkundler, Elbekümmerer, Luftfahrtkritiker vs. Borreliose, Bartonellose, Babesiose, ME/CFS
@chaosimkittel.bsky.social
Epidemiologie-Philosophin mit medizinischem Background.
@beadekkers.bsky.social
LongCovid, MEcvs, POTS en MCAS sinds oktober 2020. Voorheen autisme specialist MSEN, persoonlijk begeleider VG zorg, nu WIA, IVA Samen met @marcbalemans en labrador Fiep
@inogue.bsky.social
Jeder Post ohne mindestens einem Rechtschreibfehler ist nicht von mir. Specialeffects oft fehlende Kommas oder wie der Ö. noch dazu sagt Beistriche
@karlander.bsky.social
@pponsch.bsky.social
ME/CFS seit 2018 #MECFS #Lyme #Fibromyalgie #millionsmissing #MEawareness
@evitorialpage.bsky.social
I live in a house. #MECFS #CCI #hEDS former global health/comms/tech
@lauramiers.bsky.social
Chronically ill, LongCovid since 2020. Public health advocate and lived experience expert. Ex-Texan. Medicine, languages, Sociology, & law. Global citizen & polyglot.
@paulaknight.bsky.social
Author, illustrator, comics memoir THE FACTS OF LIFE (Myriad) Kidlit Books x3 Writing illustration comics poetry photography Disabled nonambulatory bedbased 6yr #pwME No DMs pls https://linktr.ee/paulajknight https://ko-fi.com/bedscape She/Her
@erinsandersnp.bsky.social
Proud Mama & Wife | #Disabled ♿️ | #WomxnsHealth Nurse Practitioner & Clinical Scientist | Prev MIT, Stanford | Catalyst | Connector | Healing | #JusticeAccomplice | She/Her
@remissionbiome.bsky.social
Community Science Project http://RemissionBiome.org
@anilvanderzee.bsky.social
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS #art2cureME #pwme #millionsmissing
@looftsabine.bsky.social
Interessierter Laie Wissenschaft/Forschung - Covid, LongCovid, ME/CFS - Pandemie, Endemie - pro Ukraine "Outbreak" - "Wag the Dog" - "World War Z" and now "Wayward Pines"? Human?
@apeskygirl.bsky.social
Tree hugger with ME/CFS since 1992. #MEAction volunteer. Patient Advocate. OMF & Stanford Study Participant. ME/CFS • ND • POTS • EDS • One of the Millions Missing. Former Copywriter and Art Director. Now I watch squirrels and make things.
@diatoma.bsky.social
Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS
@sabrinapoirier.bsky.social
#CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis + #MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability (Unceded) #Canada https://linktr.ee/sabrinapoiriercanada
@amyboylanwrites.bsky.social
Freelance #copywriter. PhD Geology. Life on ⏸ 1st 🌊 #LongCovid #PoTS #MCAS #LongCovidKids #CovidIsAirborne 😷
@dialoguesmecfs.bsky.social
https://www.dialogues-mecfs.co.uk Website with videos created by Natalie Boulton & Josh Biggs with a Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of #ME/CFS and a longer film explores the wider context and history.
@turnoftheshrew.bsky.social
Here for the latest research + advocacy for Long Covid, ME/CFS, dysautonomia, connective tissue disorders, etc + disability justice community. Former HCP.
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Université de Montréal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter
@millionsmissingfr.bsky.social
Asso de patient·e·s. Pour la prise en charge de l'encéphalomyélite myalgique #EM en France et le développement de la recherche. Entraide & soutien 🤝 www.millionsmissing.fr. #MECFS #EMSFC #pwME #paEM #MillionsMissing . Member of the World ME Alliance.
@longcovidkids.bsky.social
UK-based international charity supporting & advocating for children & young people with #LongCovid & related conditions. #LongCovidKids #LongCovid #PaediatricLongCovid #LongCovidAwareness
@mewarriorau.bsky.social
ME advocate longing for a cure, or some form of treatment. Mum of 3, grandmum of 3. Lived with the horrendous & disabling disease #ME (not CFS) for 28 years. #MyalgicEncephalomyelitis #pwME #MyalgicE (#MECFS #CFS) #LongCovid #ChronicIllness