@paulaknight.bsky.social
Author, illustrator, comics memoir THE FACTS OF LIFE (Myriad) Kidlit Books x3 Writing illustration comics poetry photography Disabled nonambulatory bedridden 7yr #pwME No DMs pls https://linktr.ee/paulajknight https://ko-fi.com/bedscape She/Her
@paulkeeble.co.uk
ME since 2017 (Mild), 2019 Moderate , 2020 Severe Long Covid since March 2020 (V Severe) Funcap55 = 1.9 ( (Severe)
@dialoguesmecfs.bsky.social
https://www.dialogues-mecfs.co.uk Website with videos created by Natalie Boulton & Josh Biggs with a Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of #ME/CFS and a longer film explores the wider context and history.
@mecfs.at
💛 Österreichische Ges. für #MECFS ⚡ NEWS zu #MECFS #pwME #myalgicE 👇 Informationen, Spenden, Kontakt http://linktr.ee/oeg_mecfs https://mecfs.at/
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@covidlonghaulers.bsky.social
Raising awareness #COVID19 and #LongCovid Supporting fellow long-haulers. Join our group for support! (Human curated) Media: covidlonghaulers@gmail.com #MedSky facebook.com/groups/COVIDLongHaulers YouTube.com/@covidlonghaulers Patreon.com/BrookeLine
@apresj20.bsky.social
Compte officiel #ApresJ20 Association Covid Long France visant à favoriser la Reconnaissance, les Soins, la Recherche et la Communication sur le #LongCovid
@longcovidfam.bsky.social
A US non-profit supporting children with Long Covid and their families.
@longcovidsos.bsky.social
UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation www.longcovidsos.org info@longcovidsos.org Charity reg no 1199120
@chronicillness.bsky.social
Chronic Illnesses + Autoimmune Disorders R no laughing matter but my humorous posts will make U feel better for while. https://chronicillnesstees.etsy.com https://mybodyistryingtokillme.com/ https://www.redbubble.com/people/ChronicillnessT #chronicillness
@butteredchai.bsky.social
thinker, poet, cinephile | current watch: aag (1948) | life paused by ME (myalgic encephalomyelitis) #GreatestMEdicalScandal | polyglot … she/they
@jessamybarker.bsky.social
Disabled (long mono aka MECFS since 2012) housebound British goth living in California. Sober, fat, mental, queer, genderqueer, artist. Genderqueer Drag as https://www.instagram.com/lordofmxrule Painted rocks https://www.instagram.com/stained_stones
@diatoma.bsky.social
Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid
@compulsiveobserver.bsky.social
Installation artist. Perfume fanatic. Chronically ill. Concordia University PhD student(disability studies + performance studies + practice-based research.) Ex jammer, current failure. She/her Montréaler in Edmonton. https://linktr.ee/ChloeLum
@stephenmia.bsky.social
Former Skier, Cyclist, Climber, Hill Walker, Diagnostic Radiographer and functioning human. Now - ME, POTS, LC, Vax Injury - Pro Vax - Still finding the joy
@jengovey.bsky.social
I dress up in fancy dress for the charity Invest in ME Research to raise funds & awareness of Myalgic Encephalomyelitis. In a previous life I worked in film. I’m an advocate for good science, treatments & better healthcare for #pwME.
@tapanuiflu.bsky.social
Myalgic Encephalomyelitis since 1983 Tapanui Flu epidemic | #ME | #PwME | #LongCovid ally | Covid cautious Grandmother | Ex social scientist | Mostly housebound | On welfare Website: tapanuiflu.blog Aotearoa | New Zealand
@lizwhitmere.bsky.social
🇨🇦🏳️🌈 filmmaker. protect🏳️⚧️youth. accessibility, harm reduction, equity. do what you can w/ what you have. 😷 Recent: Innovator in Residence @ Toronto Ref Library Less recent: field producer - The Agenda - TVO www.lizwhitmere.com Signal: @lizw.85
@erincandy.bsky.social
🇨🇦Just a chronically ill East Coast girl with a sailor mouth. #NB History/Science/Politics/Gaming/Movies/ #Leafs Hockey/Creator/Cat Rescuer Leukaemia cancer survivor! Anti-fascist/Anti-disinfo activist. Battling #LongCovid since March 2022 #MCAS #POTS ♑
@postviraltrials.bsky.social
News and information about interventional trials for Long Covid, ME/CFS, POTS, and other post-viral illnesses. Message or tag me if you’re in a trial or otherwise have information to share.
@cortjohnson.bsky.social
Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
@cgatist.bsky.social
Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
@nelehelena.bsky.social
I'll "tweet" here about the things I don't like if the other app goes down
@meadvocacyproject.bsky.social
The ME Advocacy Project is a grassroots initiative founded by individuals living with post-infectious illnesses Myalgic Encephalomyelitis and/or Long COVID. Unceded Canada
@sabrinapoirier.bsky.social
#CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis + #MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability (Unceded) #Canada https://linktr.ee/sabrinapoiriercanada
@lips.bsky.social
they/them. dyke. artist. divine and doing romantic queer rituals. solidarity forever. 🔞 ig
@romatowski.bsky.social
Editor, translator, filmmaker. Recovering academic. Leftist. Perfumista. ME/CFS, MCAS, POTS. EN/FR. She/they. DMV. More some days than others.
@neurologistmom.bsky.social
A neurologist, M.D., mother of a 16-year-old with #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains. 📍Seattle, WA
@hopefullizzy.bsky.social
30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice✨ Bristol, UK
@ruairidhm.bsky.social
Long Covid since March 2020. “Nothing about me without me” - doesn't seem unreasonable. Previously: health research, public health, technology assessment and appraisal Also some Shetland!
@emmagl.bsky.social
Co-founder #ThereForME | Calling for an NHS that's there for Long Covid & ME | https://www.thereforme.uk/ Linguist, DELTA-qualified English 2nd lang teacher | https://hiveofactivities.wordpress.com Design | https://emmarubystudio.com/ She / her
@davidjoffe64.bsky.social
Respiratory and Sleep Medicine Neurobiology and Long Cövid WHN Long Covid Working Group Vice Chair
@buonsenso.bsky.social
Pediatric Infectious Disease doctor. Fighting to care for children with Long Covid & ME/CFS. My book on my LONG COVID JOURNEY: https://tinyurl.com/4tsvhwat
@ninasteinkopf.bsky.social
Former HSEQ Chief Executive. Have survived Myalgic Encephalomyelitis (ME) since 2010. Patient advocate and writer. www.melivet.com Anti-genocide.
@daniellebeckman.bsky.social
Neuroscientist into virology & microscopy. Researcher at the California National Primate Research Center Long Covid Advisory Team: https://whn.global/long-covid-advisor. Cure #LongCovid daniellebeckman.com
@edyong209.bsky.social
Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him 📷 Canon R6mkii + RF 800mm Edyong.me
@tmprowell.bsky.social
Oncologist serving people w/ cancer in #MedEd, #SciComm, #bcsm, & #PublicHealth. Past ASCO Ed Chair. Co-founder HCWvsHunger.org. #LongCovid #MedSky #OncSky Team hope/good trouble/go high💙 https://www.hopkinsmedicine.org/profiles/details/tanya-prowell
@eleanorsews.bsky.social
Retired lecturer/therapist. Interested in politics, music, culture, science, languages and disability-woke AF I’ve been in the #ME owners club for decades 👩🏼🦼➡️ Angry but peaceful. She/her Uninvited DMs = Instant Block Maker of #FanningTheFlames cartoons
@ozfish.bsky.social
Retired maths teacher. ME/CFS 35 years. Volunteer staff member on Science for ME international forum, www.s4me.info
@andrewg76201347.bsky.social
ME/CFS, POTS, MCAS, lupus, Hashimoto’s. Patient & carer. Disabled scientist. Female - using fake name bc I post about son's illness. Location: Australia
@mephysio.bsky.social
UK 42 year old mum of preteen, had ME since early 20’s and I am a Specialist ME Physiotherapist www.mephysio.org.uk
@bshuell.bsky.social
Husband to a wonderful wife, father to 2 amazing kids, advocate, former software developer with myalgic encephalomyelitis, Living a limited life, missing from many places. Aspiring to be well again. Dog Dad. Occasionally bipedal. Twitter/X refugee. #mecfs
@birbsarereal.bsky.social
Forty-something retired biologist and ME advocate. Lover of birds and yarn. Former athlete. Wife. For kindness, empathy, inclusion, and accessibility. She/her. Crochet artist; https://www.ravelry.com/stores/stitches-by-sarah
@remissionbiome.bsky.social
Community Science Project http://RemissionBiome.org
@mxworldwide.bsky.social
They/them | 28 | ME/CFS since 2016, very/severe since 2022 after covid | Severe hyperacusis Mostly post about ME but will share things relating to disability justice, leftist & queer issues and Palestine 🇵🇸 In "Australia" on Wurundjeri Country