TamaraDNomad
Disabled advocate - #Interiordesigner - Nomad - #Anthropology student - Multi local - #SWYer - #Fibro + #MECFS - 1 of the #MillionsMissing + #Disabledguerrera
@augieray.bsky.social
Customer Experience expert and advisor. Analyst by nature and profession. Tracking ongoing COVID data and risks because your health matters. Love music, film, photography & progressive causes. Opinions my own. He/Him
@colleensteckel.bsky.social
Advocate for #MyalgicEncephalomyelitis using ME-ICC. Contracted ME in 1989 Substack: https://colleensteckelmeiccinfo.substack.com/ Volunteer at www.MEadvocacy.org Aspiring writer of paranormal fiction
@crshannon.bsky.social
Psychologist, speaker, & consultant | Empowering families & advancing change| Blended expertise in multiculturalism, trauma, divorce, multi-system Chronic Complex Diseases & mental health #NothingAboutUsWithoutUs
@sindicaestudian.bsky.social
35 años en lucha por la educación pública y los derechos de la juventud. ¡Organízate y lucha! sindicatodeestudiantes.net
@vatniksoup.bsky.social
Creator of Vatnik Soup (www.vatniksoup.com) and The Soup Central (https://youtube.com/@TheSoupCentral)
@hmpxvt.bsky.social
Infectious disease news. Sharing reports on outbreaks, from bird flu to Ebola. Follow this account if you want to be the first to know when a novel pathogen appears or a dangerous outbreak is brewing. Support me here: https://ko-fi.com/hmpxvtracker
@postingthatmatters.bsky.social
🏳️🌈+ ally, 💉💙😷 #Disability/🐕 rights, #Democracy #BLM #MentalHealth- please keep living. I care about you. I'm vegan and conflicted when I bite the heads off of animal crackers.
@fund-gomaespuma.bsky.social
@antroperplejo.bsky.social
Antropòleg, professor i investigador. 'Cause I got too much life, Running through my veins'. https://catalunyaplural.cat/ca/author/jmansilla/
@johnvsjonvsme.bsky.social
#JohnVsJonVsME campaign to get John Oliver or Jon Stewart to bring the awful history of #MyalgicEncephelomyelitis #GreatestMEdicalScandal to light JohnVsJon.com
@medidier.bsky.social
Severe ME after covid infection Feb'22. Young dad. Bedbound. 🛌 #MillionsMissing #pwME #ThereForME #GreatestMEdicalScandal #PEM 🇬🇧🇲🇫🇪🇦🇧🇪
@decodemestudy.bsky.social
🧬 The world’s biggest study of genetic causes of #MECFS. Launched September 2022. 🧬 https://www.decodeme.org.uk/
@mollyboom.bsky.social
Typically preoccupied with wisdom & justice. Occasionally unwise or unjust. Tough canary. Ecstatic cranky. Queer. #LongCovid #MECFS FUNCAP 1.1
@retebot.bsky.social
#fckAFD #FDGOUltra #ProUkraine #AZAB #ProSecularization #ME/CFS EBV since 2009 #Existenzialist https://shgmecfs.de
@cermiestatal.bsky.social
Plataforma unitaria de la discapacidad. 4.74 millones de personas con discapacidad, 8.000 asociaciones. #DiscapacidadOrganizada #CERMIEstatal
@davetuller1.bsky.social
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
@buonsenso.bsky.social
Pediatric Infectious Disease doctor. Fighting to care for children with Long Covid & ME/CFS. My book on my LONG COVID JOURNEY: https://tinyurl.com/4tsvhwat
@longcovidadvoc.com
A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time... https://www.longcovidadvoc.com/ 🛍️ https://longcovidadvoc.shop/
@resiapretorius.bsky.social
Distinguished professor, Stellenbosch University and Honorary professor, University of Liverpool.
@sunsopeningband.bsky.social
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
@virusesimmunity.bsky.social
We study antiviral immunity and viral disease pathogenesis. We are developing mucosal vaccine strategies to prevent infection and transmission. #COVID19 #longCOVID #vaccines
@wilhelminaj.bsky.social
Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
@millionsmissingfr.bsky.social
Asso de patient·e·s. Pour la prise en charge de l'encéphalomyélite myalgique #EM en France et le développement de la recherche. Entraide & soutien 🤝 www.millionsmissing.fr. #MECFS #EMSFC #pwME #paEM #MillionsMissing . Member of the World ME Alliance.
@immunofever.bsky.social
Immunoengineer at MIT BE developing predictive diagnostics. Captivated by #inflammation, #SexDifferences #Lyme, #COVID, #IACI, #IACC and #onehealth. Mom of 2. prev/ PhD in Immunology @Yale; PostDoc @Stanford https://talresearchgroup.mit.edu/
@brianvastag.sciencemastodon.com.ap.brid.gy
Occasional science reporter at The Washington Post and elsewhere. Disabled by complex chronic post-viral illness. Living on #Kauai #Hawaii. Sometimes […] [bridged from https://sciencemastodon.com/@brianvastag on the fediverse by https://fed.brid.gy/ ]
@edyong209.bsky.social
Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him 📷 Canon R6mkii + RF 800mm Edyong.me
@danielgerber.bsky.social
Personal account for glasgow based clinical sports therapy. For general chat, things that make me smile, things that make me frown and other stuff.
@dgmecfs.bsky.social
ME/CFS ist eine schwere körperliche Erkrankung, die bisher kaum erforscht ist. Wir setzen uns für die Interessen der Erkrankten und mehr Forschung ein. mecfs.de
@cyruxime.bsky.social
Energetically compromised (bedridden) by severe #MECFS. All systems operating at minimum capacity & overloaded. In a previous life: comp sci x math, powerlifting. #LongCovid ally.
@chronicmyalgice.bsky.social
Dutch | life derailed due to #IBD & #MECFS | sofa bound | wants to raise awareness about post infectious diseases | one of the #MillionsMissing
@grachstephanie.bsky.social
Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers | https://t.co/TkYm2MXvir
@talmandaniel.bsky.social
Curious & exhausted peace seeker, co-host of Post-Exertional Mayonnaise podcast, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
@irishmecfsassoc.bsky.social
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association NB: Posts should not be considered advice Registered Charity Number 20100254 CHY 22039 #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
@hopefullizzy.bsky.social
30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice✨ Bristol, UK
@patientled.bsky.social
Patient-Led Research for #LongCovid! http://patientledresearch.com
@waysidecat.bsky.social
#MaskUp SARS-CoV-2 is a BSL-3 ☢️ pathogen LC since March 2020 #covidisntover #VaxUp #CleanTheAir Renewable energy now
@danwyke.bsky.social
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
@vladvexler.bsky.social
Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Born in USSR, home is London | Living with ME since 2003. youtube.com/vladvexler (main channel) youtube.com/vladvexlerchat (chat channel) youtube.com/@vladvexlerphilosophy
@rfh1955.bsky.social
ME/CFS archive, especially RFH 1955. For education, not profit. Relocated from Twitter. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. https://rfh1955.blogspot.com/
@drdanielloy.bsky.social
Ehemann, Jurist. #MECFS. Team #SIGNforMECFS. Team #GOfundMECFS. One of the #MillionsMissing.
@millionsmissingswe.bsky.social
#MillionsMissing is a global campaign for ME health equality! https://meaction.net #MillionsMissingSweden #MEAction #MECFS #pwME #svmed #MEAwarenessHour
@dysautonomia.bsky.social
We are the leading non-profit advocating for over 70M people around the world living with autonomic nervous system disorders. Research, Clinician Education, Patient Empowerment, Public Awareness & Advocacy is what we do. DysautonomiaInternational.org
@dialoguesmecfs.bsky.social
https://www.dialogues-mecfs.co.uk Website with videos created by Natalie Boulton & Josh Biggs with a Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of #ME/CFS and a longer film explores the wider context and history.