TamaraDNomad
Disabled advocate - #Interiordesigner - Nomad - #Anthropology student - Multi local - #SWYer - #Fibro + #MECFS - 1 of the #MillionsMissing + #Disabledguerrera
@phoenixme.bsky.social
Bed-bound activist with severe ME/CFS. ME/CFS, chronic illness, #AusPol, #USPol, climate justice, social justice, crochet, cats, sci fi. Views expressed are my own. If I had any spoons, I'd be dangerous. Boonwurrung country, Australia
@emmiskyten.bsky.social
Sustainability science studies on hold because of POTS + Long covid / suspected ME. Previously interesting, now mostly into resting. Here to connect with other sick people and for science stuff.
@joannesmith.bsky.social
ME since 1991.Owned by Shih Tzu called Teddy 🐾 Interested in ME advocacy & research.Dogs inc.welfare eg #LucysLaw .Wildlife. Books. Bit of Politics. #pwME Twitter Handle @_joannesmith
@franceyme.bsky.social
https://amandafrancey.com/ illustrator, amateur photographer and bird telepath. Advocating for myalgic encephalomyelitis #MECFS #LongCovid #ClimateAction
@petecaruso.bsky.social
Spouse of ME survivor. Find treatments for invisible chronic illnesses: Long COVID, ME, Post Vaccine, POTS, Sjogrens, Mast Cell, and Lyme. Pfp: A man wearing a green face mask Banner: Colorful MEmes from patient-led Long COVID and ME awareness
@matthorsnell.bsky.social
Project Sleep’s Inaugural Sleep Advocacy Champion, Narcolepsy Renaissance Man, Pharma Consultant, Advocate-Author, Social Support Guru, Actigraphy, Go Heels!
@livingnexisting.bsky.social
Reaching out to others with #ME/CFS. Learning to live a new life after Sepsis
@julesahouston.bsky.social
Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights. I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new. #CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
@cortjohnson.bsky.social
Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
@elinz.bsky.social
ME/CFS, science, history of ideas, disability, photography, film, board games, curiousity, history of medicine. Location: Sweden #pwME #MECFS #NEISvoid #ChronicIllness Came here from: https://twitter.com/ezchili
@chromatowski.bsky.social
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing. ME ‘05, LC ‘23, many of their friends along the way. Very severe (FUNCAP 0.8). No unsolicited advice please!
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Université de Montréal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter
@emec.bsky.social
Advocacy organization for ME/CFS patients and their carers in Europe
@ozfish.bsky.social
Retired maths teacher. ME/CFS 35 years. Volunteer staff member on Science for ME international forum, www.s4me.info
@mecfsskeptic.bsky.social
Exploring the history of psychosomatic medicine and research on myalgic encefalomyelitis/chronic fatigue syndrome (ME/CFS). https://mecfsskeptic.com/
@bennessb.bsky.social
currently: sick / haunted in Western Mass, host of No End In Sight - a podcast about life with chronic illness, creator of #NEISVoid | previously: Stories We Don’t Tell in Toronto | she / her
@sabrinapoirier.bsky.social
#CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis + #MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability (Unceded) #Canada https://linktr.ee/sabrinapoiriercanada
@dguckenheimer.bsky.social
🥄 Sociologist, writer, feminist, anti-facist, anti-racist, disability justice activist. 🏳️🌈 Pronouns: she/they #livingwithableism #resist
@klazell.bsky.social
Artist, Long Covid, ME/CFS, POTS, EDS, previously Data Scientist. Life on pause due to #longcovid. Climate collapse aware.
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@sonntagsflower.bsky.social
#TeamWissenschaft #ME/CFS #Fibromyalgie #noafd #wirsindmehr #TeamHabeck 💚
@gallaecian.bsky.social
Behavioral economics, economic anthropology, socio-cultural anthropology, neuroanthropology, neuroscience, social psychology, sociolinguistics, abnormal psychology. Wall St contrarian. Writer. Ivy League & Little Three educated. Atlantic façade native.
@thevillalab.bsky.social
biophysicist @ucsdbiosciences @hhminews, cell exploration, molecular anthropology
@uvicanthro.bsky.social
a notable anthropology department on an island surrounded by the Salish Sea https://www.uvic.ca/socialsciences/anthropology/
@mikeyelster.bsky.social
PhD candidate Anthropology, CUNY GC. North America, gender/sexuality, medical anthropology. Bummed about capitalism.
@austinlawhead.bsky.social
Anthropology PhD Sexual assault, suicide, and organizational climate research. Interests: Applied Anthropology, Politics, Military Www.austinlawhead.net
@kiwanja.bsky.social
A candle loses nothing by lighting another candle. Innovator, writer, humanitarian, anthropologist and National Geographic Explorer now on a mission to lift, empower and inspire the next generation of global changemakers.🕯️ kiwanja.net/coaching
@benhmecfs.bsky.social
ME/CFS patient advocate, Open Medicine Foundation science correspondent. Bedbound. Former: exercise physiology, biochemist in training, athlete-Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
@cgatist.bsky.social
Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
@alchemicalrat.bsky.social
Artist, researcher. Anthropology, experimental archaeology, painting, sculpture, visual communication. Slowed but not entirely stopped by ME/CFS. Ottawa, Canada.
@meredithb.bsky.social
she/her (28) Educator @ non-profit #writingCommunity Writing a book/memoir about disability, motivated by spite. AVM & stroke survivor, blind, epileptic, & stuff.
@tingting1407.bsky.social
Looking behind the obvious || Tingting is my nickname || Pro science || #MECFS #POTS #MCAS || Former management consultant & university guest lecturer || Posts in English & German || Jazz Funk lover
@sabinehermisson.bsky.social
PD Dr. (religion, empirical education research) mother of Mila who suffers from very severe ME/CFS (Bell 0) https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf Vienna, Austria #CleanAir
@ankijoy.bsky.social
ME/CFS Warrior not by choice but destiny (Profilbild: sick not tired in Schönschrift, große Fahne: moderate ME, darunter ein Haus, vor dem ein Rollstuhl steht, während drumherum alles weggebrochen ist)
@neurostingl.bsky.social
Facharzt für Neurologie ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
@lifeanalytics.bsky.social
Data Scientist, Patent owner of Artificial Intelligence-assisted methodology for Medical Research Discovery. Tweets are mine/not medical advice or endorsements.
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