🐌🍄🟫post-exertional decay 🍄🟫🐌
she/her | life on pause due to severe ME (since 2019) ♿️ | anti-fascist ✊| anti-plague 🦠 cat mom 🐈🐈⬛ artist 🎨
@mxworldwide.bsky.social
They/them | 28 | ME/CFS since 2016, very/severe since 2022 after covid | Severe hyperacusis Mostly post about ME but will share things relating to disability justice, leftist & queer issues and Palestine 🇵🇸 In "Australia" on Wurundjeri Country
@lizwhitmere.bsky.social
🇨🇦🏳️🌈 filmmaker. protect🏳️⚧️youth. accessibility, harm reduction, equity. do what you can w/ what you have. 😷 Recent: Innovator in Residence @ Toronto Ref Library Less recent: field producer - The Agenda - TVO www.lizwhitmere.com Signal: @lizw.85
@jengovey.bsky.social
I dress up in fancy dress for the charity Invest in ME Research to raise funds & awareness of Myalgic Encephalomyelitis. In a previous life I worked in film. I’m an advocate for good science, treatments & better healthcare for #pwME.
@stephenmia.bsky.social
Former Skier, Cyclist, Climber, Hill Walker, Diagnostic Radiographer and functioning human. Now - ME, POTS, LC, Vax Injury - Pro Vax - Still finding the joy
@compulsiveobserver.bsky.social
Installation artist. Perfume fanatic. Chronically ill. Concordia University PhD student(disability studies + performance studies + practice-based research.) Ex jammer, current failure. She/her Montréaler in Edmonton. https://linktr.ee/ChloeLum
@diatoma.bsky.social
Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid
@jessamybarker.bsky.social
Disabled (long mono aka MECFS since 2012) housebound British goth living in California. Sober, fat, mental, queer, genderqueer, artist. Genderqueer Drag as https://www.instagram.com/lordofmxrule Painted rocks https://www.instagram.com/stained_stones
@butteredchai.bsky.social
thinker, poet, cinephile | current watch: aag (1948) | life paused by ME (myalgic encephalomyelitis) #GreatestMEdicalScandal | polyglot … she/they
@chronicillness.bsky.social
Chronic Illnesses + Autoimmune Disorders R no laughing matter but my humorous posts will make U feel better for while. https://chronicillnesstees.etsy.com https://mybodyistryingtokillme.com/ https://www.redbubble.com/people/ChronicillnessT #chronicillness
@longcovidfam.bsky.social
A US non-profit supporting children with Long Covid and their families.
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@paulaknight.bsky.social
Author, illustrator, comics memoir THE FACTS OF LIFE (Myriad) Kidlit Books x3 Writing illustration comics poetry photography Disabled nonambulatory bedridden 7yr #pwME No DMs pls https://linktr.ee/paulajknight https://ko-fi.com/bedscape She/Her
@chronicmyalgice.bsky.social
Dutch | life derailed due to #IBD & #MECFS | sofa bound | wants to raise awareness about post infectious diseases | one of the #MillionsMissing
@pengwen.bsky.social
P/w Long Covid, writer, nerd, ENM, loudmouth, green thumb, artist, queer, ND, & unstoppable! No alt text= no RT #FBLC #LongCovidAid
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Université de Montréal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter
@mewarrior1.bsky.social
Wife, mum, Severe ME, 💙✝️♿️Fibromyalgia Observe small things, don't rush, love & forgive #loveyourself #loveothers ❤️ #chronicillnesswarrior1 on X & IG Opinions are my own 🤓
@adarkenedroom.bsky.social
One of the #millionsmissing || Raising awareness of the most severe form of #MyalgicEncephalomyelitis
@remissionme.bsky.social
ME/CFS since 2019, painter, yoga and health enthusiast. The healthiest sick person I know and on a quest for turning this around!
@mflares.bsky.social
PhD in physics, former scientist, educator, and athlete, now housebound due to ME/CFS and POTS from SarsCov2, she/her
@thisismetweety.bsky.social
Apparently I don’t like viruses. #MEcfs as a child; post viral syndrome as an adult; now #LongCovid; #fibro; #hypermobility; #hEDS #pwME. Kiddo with #LC. #ND. #HealthPolicy research. (Yes I know it’s Skeeting & hashtags don’t work the same. Give me time.)
@dualiejulie.bsky.social
(She/her) In LongCOVID/M.E. hell looking for a way out! First wave Longhauler. Former engineering student. Trying to get my personality back from the disease. Very cute dog.
@joyk8.bsky.social
Medically retired palliative care RN, #pwME since 2001. #MECFS #POTS #MCAS #EDS Enthusiastic gardener, baker, and candlestick maker.
@therealmecfs.bsky.social
Chronically ill & disabled person with lots of personal opinions, who sometimes likes a hat. Occasionally an advocate for PwME, gamer and proudly on the Autism spectrum. I’ve low tolerance for ignorance and assholery so if you come for a fight, expect one.
@mefoggydog.bsky.social
Award-winning #socialenterprise in #UK. Working for #socialchange for the #MECFS community. Linktree - http://bit.ly/408o6LI
@physiosforme.bsky.social
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME Find out more at physiosforme.com
@longcovidsupport.bsky.social
UK Charity Keeping people with #LongCovid at the centre • Support • Research • Advocacy • Education • #ResearchLongCovid #TreatLongCovid #CureLongCovid www.longcovid.org https://linktr.ee/longcovidsupport 📧[email protected]
@thecovidinfoguy.bsky.social
Sharing info on COVID since the start of the pandemic. #COVIDisNotOver #COVIDisAirborne #MaskUp😷
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@daveghoul.com
Philly artist, DJ, & streamer | Loves spooky stuff & plays too much Fallout | Dyslexia, Dysgraphia, Dercum's Disease, Long Covid | He/him Game: https://twitch.tv/DaveGhoul DJ: https://twitch.tv/DaveGhoulDJ Stuff: https://linktr.ee/DaveGhoul
@teasetmonster.bsky.social
Teaset(she/her) 🗝️🏡🍵 When my body and brain aren’t too broken by ME/CFS, I draw art. And no matter what, there’s always tea. (I'm also @dailyteaset.bsky.social ) 🩵 my art tag -> #TeaMonArt https://linktr.ee/teasetmonster
@phillyhart4.bsky.social
Researching Educational Isolation to understand impact on schools. Education, social justice, disability, ME/CFS, neurodiversity, LGBTQ, books, medieval history, all things Nordic. She/her. Views mine. [banner photo: candle burnt down, looks like a crown]
@buonsenso.bsky.social
Pediatric Infectious Disease doctor. Fighting to care for children with Long Covid & ME/CFS. My book on my LONG COVID JOURNEY: https://tinyurl.com/4tsvhwat
@lindaoh.bsky.social
Interested in history, disability, politics, chronic illness. Loves animals, dry white wine, chocolate and my bed. Irish. Actually Autistic, ADHD, ME sufferer. Cat and dog person. @shurlookit in the bad place
@annabookwriter.bsky.social
Author (The Ember of Elyssia Quartet, Fortune's Calling Trilogy, THE BRIDAL PARTY, THE PRINCE WITH SIX FACES). Dice roller. Disability justice advocate. All opinions mine. All around nerd. https://linktr.ee/annaholmeswritesbooks (She/they) ♿️🏳️🌈
@shadce.bsky.social
He/Him | Queer/Gay/Poly 🏳️🌈🏳️⚧️ | Left progressiv | Mental Health | PostCovid - ME/CFS - Bell 30(-40) | Neurodivergent - AuDHS | Vegan 🌱| 3D Artist/GameDev - Material / Environment / Tech
@theautisticcoach.bsky.social
I build neuroaffirming communities by empowering my fellow autistic humans with advocacy & self-care tools for navigating an NT world based on productivism AuDHD ♾️ 🌀 דזשענדער־טרייף #POTS #Dyspraxia ♿️ theautisticcoach.com Also @autisticrabbi.bsky.social
@bmhughes.bsky.social
Concerned citizen • Prof Psych • Writer • Galway • he/him A blog: https://thesciencebit.net/ A bio: https://brianmhughes.com/ A book: https://bloomsburycp3.codemantra.com/viewer/63721f10ee35880001aafadc 📷 https://www.photoblogism.net
@broadwaybabyto.bsky.social
Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. Covid is airborne 😷 https://www.disabledginger.com A redheaded snippet who loves Sondheim. Once fainted into Hugh Jackman.
@andrewgiffordphoto.bsky.social
Hello, welcome :) This Invisible Illness: my first long form photography project, about ME/CFS a complex & challenging health condition - like Long Covid. https://linktr.ee/andrewgifford.photography Bristol, UK. 335.42 ppm. He/him/oi.
@cabruce.bsky.social
Previously a psychotherapist. Bedridden #ME 32years Daughter severe ME, eldest son MS. I like art, nature, books, people, music, poetry and podcasts!
@nikosuvisto.bsky.social
Life on hold by severe #MECFS, currently 99% bedbound 🛌 Documenting my life like it is now, advocacy through photography 📷 📍Finland https://www.aquietstorm.me
@chromatowski.bsky.social
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing. ME ‘05, LC ‘23, many of their friends along the way. Very severe (FUNCAP 0.8). No unsolicited advice please!
@longcovidadvoc.com
A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time... 💙📚Home to the #pedanticzebra book club. https://www.longcovidadvoc.com/ 🛍️ https://longcovidadvoc.shop/
@eha.sh
Hacker and open sourcerer, 🇨🇦 settler south of the medicine line, exhausted tech worker (SWE @ Apple). Tea aficionado 🍵 Amateur botanist, naturalist, and radio operator. Fighting severe ME/CFS. ♿ https://hashman.ca/ רעדסטו יידיש?
@me-cfs.bsky.social
Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak. I care. My ME/CFS News Aggregator: @me-cfs.mastodon.social.ap.brid.gy Ⓐ💚, (FR/DE/EN, but posts in english) Clinging onto the ledge above the abyss.
@paulkeeble.co.uk
ME since 2017 (Mild), 2019 Moderate , 2020 Severe Long Covid since March 2020 (V Severe) Funcap55 = 1.9 ( (Severe)
@sherbert-lemon.bsky.social
Avid reader, occasional reviewer. Beginner genealogist & dysgu Cymraeg. Retired by moderate-severe ME/CFS & chronic migraine. Managed by Rowan. She/her.
@phoenixme.bsky.social
Bed-bound activist with severe ME/CFS. ME/CFS, chronic illness, #AusPol, #USPol, climate justice, social justice, crochet, cats, sci fi. Views expressed are my own. If I had any spoons, I'd be dangerous. Boonwurrung country, Australia