Tuuli-Marjatta
Physiotherapist who loves knitting, sustainable clothing, science and writing. Former sports enthusiast. Current couch potato due to chronic illness.
@bozhinskihandmade.bsky.social
Master of yarn, thread, and fabric - dabbling in my own designs with knitting, crochet, and sewing. Creating handcrafted, sustainable fashion from my cozy corner in sunny California! Etsy - https://rb.gy/e8o9b5 Web - www.bozhinskihandmade.com
@kevinyeedotcom.bsky.social
Writer: Netflix/Disney/Hulu Actor: Dickinson Filmmaker: SXSW/Outfest
@alitwy.bsky.social
Living with Long Covid. Doing my bit to support UK healthcare workers with Long Covid. Chair of Supporting Healthcare Heroes UK. Associate Member Long Covid Support. Editor-in-Chief Evidence Based Nursing. Retired Professor of Children’s Nursing. #FBLC
@annaj0hanna.bsky.social
Knitwear designer Romantic knits from the north Find my patterns on Ravelry: https://www.ravelry.com/designers/anna-johanna
@debbietknits.bsky.social
Prolific knitter 🧶 Aran & cables are my passion. Collector of much yarn Disabled / UK based French bulldog owner/rugby league fan Chronic pain, fibro & essential tremor sufferer WOKE 🏳️🌈 / left No uninvited DMs. No profile = no follow back
@gabbyoglesby.bsky.social
Activist. Cherokee. Artist & Technologist (for good) Disability Advocate. Neurodivergent Chronic Illness girlie 📍SF/DC Former: @WhoSayInc @JonasBrothers @TRADESHIFT @AOL @UMG @FIDM #Startups https://linktr.ee/gabbyoglesby EDS MCAS POTS AuDHD🤍LGBTQIA+
@chronicillnessfc.bsky.social
An inclusive community, resource hub & mutual support for people w/chronic & invisible illness. Friendship & Digital hangouts! 📍SF #EDS #MCAS #POTS #MECFS #PMDD #AuDHD #PTSD Mental health advocate, indigenous #LGBTQIA+🍉 Sign up at the form below🤍✨
@remissionbiome.bsky.social
Community Science Project http://RemissionBiome.org
@bmhughes.bsky.social
Concerned citizen • Prof Psych • Writer • Galway • he/him A blog: https://thesciencebit.net/ A bio: https://brianmhughes.com/ A book: https://bloomsburycp3.codemantra.com/viewer/63721f10ee35880001aafadc 📷 https://www.photoblogism.net
@anilvanderzee.bsky.social
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS #art2cureME #pwme #millionsmissing
@whitneydafoe.bsky.social
Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
@talmandaniel.bsky.social
Curious & exhausted peace seeker, co-host of Post-Exertional Mayonnaise podcast, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
@thesicktimes.bsky.social
A nonprofit news site chronicling the #LongCOVID crisis. Founded by journalists @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social Website: thesicktimes.org Newsletter: thesicktimes.org/newsletter Donate: the-sick-times.fundjournalism.org
@physiosforme.bsky.social
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME Find out more at physiosforme.com
@sunsopeningband.bsky.social
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
@maosbot.bsky.social
Parent, spouse, Australian, Professor of Machine Learning in Oxford. Bayesian ML, Long Covid, trans rights, photos of dog, AI must be good for humans, https://www.robots.ox.ac.uk/~mosb
@janetdafoe.bsky.social
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
@longcovidch.bsky.social
Long Covid Switzerland. The voice of people affected by long covid and long covid kids. Evidence-based, provaxx, promask, protect the kids.
@raoullucas.bsky.social
26 I ME/CFS seit 2021 I WING Universität Augsburg I DE II EN https://www.mecfs.de/was-ist-me-cfs/
@dgmecfs.bsky.social
ME/CFS ist eine schwere körperliche Erkrankung, die bisher kaum erforscht ist. Wir setzen uns für die Interessen der Erkrankten und mehr Forschung ein. mecfs.de
@mareksjf.bsky.social
• Scientist ‖ PhD mathematical physics (not MD) ‖ Dr. rer. nat. • Interests: Medicine ‖ History ‖ Global Politics • #MECFS ➡️ http://mecfs.de/was-ist-me • EN ‖ PL ‖ DE
@scheibenbogen.bsky.social
Immunologist and ME/CFS researcher @Charité https://cfc.charite.de/
@isabelrb.bsky.social
CEO | Renegade Research | Project Director of Remission Biome NBC-HWC, AIP-C @remissionbiome.bsky.social
@workwellfoundation.bsky.social
#Nonprofit clinical #research providing 2-day #CPET #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses. workwellfoundation.org
@bettinagrande.bsky.social
Psychological psychotherapist Heidelberg| Charité Berlin Advocacy against psychologization of #MECFS, #PEM & #PENE Research & psychotherapy adapted to ME/CFS Paper: https://doi.org/10.3390/medicina59040719
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Université de Montréal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter
@profmarkfaghy.bsky.social
Professor of Clinical Exercise Science - Clinical Exercise Physiologist - Researcher in #LongCOVID - Nature Research Award Winner 2024 - Derby UK
@renegaderesearch.bsky.social
Renegade Research (RR) a non-profit 501c3 decentralized organization pioneering patient/caregiver led research focused on ME/CFS and LongCovid • https://renegade-research.org 💙 Project @remissionbiome.bsky.social • Donate now ▶️ https://tinyurl.com/44azdsxm
@pirtahotulainen.bsky.social
Cell biologist, neuroscientist, inflammation, long covid
@polybiorf.bsky.social
501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
@ekalmanen.bsky.social
Valtion viraalinen ebidemiologi. N:nnen aallon tukahduttaja. Viruslogian asiantuntia. Kausivaihtelun mukaan parodiaa, satiiria ja sarkasmia tai suoraa asiaa.
@heikkiray.bsky.social
Justice for all. Talk is cheap, action speaks louder than words. Politics and ideology agnostic.
@missingfinland.bsky.social
ME/CFS G93.3 hoito & diagnosointi: 2021 Duodecim https://rb.gy/m9spr 2021 NICE https://rb.gy/h7eok 2021 Mayo Clinic Proceedings https://rb.gy/fd54d
@rorpreston.bsky.social
Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙 #MECFS #LongCovid #IACC #PAIS 📍 https://crunchme.org/
@claguenjc36.bsky.social
Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise incl CV/fatigue/mental health/ME/Longcovid/EDI/all views my own she/her
@danwyke.bsky.social
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
@davetuller1.bsky.social
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. [email protected]
@mecfsskeptic.bsky.social
Exploring the history of psychosomatic medicine and research on myalgic encefalomyelitis/chronic fatigue syndrome (ME/CFS). https://mecfsskeptic.com/
@virusesimmunity.bsky.social
We study antiviral immunity and viral disease pathogenesis. We are developing mucosal vaccine strategies to prevent infection and transmission. #COVID19 #longCOVID #vaccines
@benhmecfs.bsky.social
ME/CFS patient advocate, Open Medicine Foundation science correspondent. Bedbound. Former: exercise physiology, biochemist in training, athlete-Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
@kunstjonas.bsky.social
Professor of Communication and Psychology at BI Norwegian Business School and the University of Oslo Past Yale, Harvard, UiB. Editor-in-Chief at Advances.in Father. Views are my own.
@ailment73.bsky.social
Afro-latin dance lovin' nerdy physio from Oulu, Finland (cover photo was taken at the Rokua Kuntoutus rehab center I work at). Previous career in Environmental sciences (MSc from Kuopio University) -> #ClimateChange #Aerosols #Wastewater #LongCovid
@scienceforme.bsky.social
We are an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and the carers, clinicians, scientists and advocates who support us. This account is maintained on a part-time basis by patients.