@drannanz.bsky.social
Immunologist | Flow Cytometrist Immunometabolism, Infectious Diseases, Immune dysfunction, Long Covid & ME/CFS Senior Research Fellow Liggins Institute | University of Auckland DysImmune Research Aotearoa www.dysimmune.nz 🇳🇿🥝🩸🧬🧪🔬👩🏼🔬
@benhmecfs.bsky.social
ME/CFS patient advocate, Open Medicine Foundation science correspondent. Bedbound. Former: exercise physiology, biochemist in training, athlete-Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
@cabruce.bsky.social
Previously a psychotherapist. Bedridden #ME 32years Daughter severe ME, eldest son MS. I like art, nature, books, people, music, poetry and podcasts!
@catinthehat.bsky.social
Mum • Lover of nature and clean, fresh air • Passionate about science • “Without data, you’re just another person with an opinion.”
@cleanaircreworg.bsky.social
#CleanAirCrew #COVIDisAirborne Airborne pandemic tips & tools #COVIDco2 #CorsiRosenthalBox #ClearTheAir
@dialoguesmecfs.bsky.social
https://www.dialogues-mecfs.co.uk Website with videos created by Natalie Boulton & Josh Biggs with a Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of #ME/CFS and a longer film explores the wider context and history.
@annakwood.bsky.social
Physicist, education researcher, gardener, bird watcher/photographer, chronic illness/ME
@claguenjc36.bsky.social
Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise incl CV/fatigue/mental health/ME/Longcovid/EDI/all views my own she/her
@apresj20.bsky.social
Compte officiel #ApresJ20 Association Covid Long France visant à favoriser la Reconnaissance, les Soins, la Recherche et la Communication sur le #LongCovid
@julesahouston.bsky.social
Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights. I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new. #CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
@scribblerpen.bsky.social
Writer, editor, analyst. Disability employment rights advocate. Trade union disability rep. Arts, science and languages nerd, internationalist, hiker, nature lover. Could really do without Long Covid
@cortjohnson.bsky.social
Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
@stenhelmfrid.bsky.social
Ph.D. in physics, also interested in mathematics, science theory, and history. Follows research on ME/CFS. Stockholm, Sweden
@mecfsskeptic.bsky.social
Exploring the history of psychosomatic medicine and research on myalgic encefalomyelitis/chronic fatigue syndrome (ME/CFS). https://mecfsskeptic.com/
@vladvexler.bsky.social
Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Born in USSR, home is London | Living with ME since 2003. youtube.com/vladvexler (main channel) youtube.com/vladvexlerchat (chat channel) youtube.com/@vladvexlerphilosophy
@irishmecfsassoc.bsky.social
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association NB: Posts should not be considered advice Registered Charity Number 20100254 CHY 22039 #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
@cgatist.bsky.social
Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
@mefoggydog.bsky.social
Award-winning #socialenterprise in #UK. Working for #socialchange for the #MECFS community. Linktree - http://bit.ly/408o6LI
@isabelrb.bsky.social
CEO | Renegade Research | Project Director of Remission Biome NBC-HWC, AIP-C @remissionbiome.bsky.social
@franceyme.bsky.social
https://amandafrancey.com/ illustrator, amateur photographer and bird telepath. Advocating for myalgic encephalomyelitis #MECFS #LongCovid #ClimateAction
@workwellfoundation.bsky.social
#Nonprofit clinical #research providing 2-day #CPET #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses. workwellfoundation.org
@iantuckerbell.bsky.social
Playwright, Celebrant, Theatre Director, Tutor, Husband, Dog-Dad, and Leeds United supporter. I like theatre, nice people, tea, countryside, video-games and cinema. Living with Long Covid and involved in LC patient advocacy. #FBLC. #FBPE
@ninasteinkopf.bsky.social
Former HSEQ Chief Executive. Have survived Myalgic Encephalomyelitis (ME) since 2010. Patient advocate and writer. www.melivet.com Anti-genocide.
@smartairuk.bsky.social
Smart Air is a social enterprise and B-Corp committed to changing the way we breathe clean air! We create incredibly effective air purifiers and share life-hacks and tips on protecting your health from poisonous air
@panickedfoodie.bsky.social
Scientist | Cornell Alum | Bedbound w/ severe illness | Gamer | #FluidMechanics #HeatTransfer #CovidIsAirborne #MayThurnerSyndrome #NutcrackerSyndrome #Endometriosis Bell: 10-20 TikTok, YT: The Panicked Diaries disabled.social Mastodon server admin
@colleensteckel.bsky.social
Advocate for #MyalgicEncephalomyelitis using ME-ICC. Contracted ME in 1989 Substack: https://colleensteckelmeiccinfo.substack.com/ Volunteer at www.MEadvocacy.org Aspiring writer of paranormal fiction
@cleanairclub.bsky.social
Providing free air purifiers to Chicago artists, organizers, and touring musicians. linktr.ee/cleanairclub
@fstevenchalmers.bsky.social
Retired person, was in tech industry for 37 years Self and family got multiple chemical sensitivity from a sick house incident in the mid 1990s Heretic, with a heretical research hypothesis on the nature of MCS and a dozen other complex chronic illnesses
@johnpring.bsky.social
Editor/founder of Disability News Service; author of The Department, published by Pluto Books, August 2024; disabled journalist and author; autistic.
@lisabd.bsky.social
@abrokenbattery.bsky.social
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos. https://linktr.ee/abrokenbattery
@tilmanandris.bsky.social
Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs
@amyboylanwrites.bsky.social
Freelance #copywriter. PhD Geology. Life on ⏸ 1st 🌊 #LongCovid #PoTS #MCAS #LongCovidKids #CovidIsAirborne 😷
@benking01.bsky.social
Long Covid & PE recovery. GeographyTeacher. Sustainability & Climate Change. BSc Env Science & Physics (Stirling). Soil Erosion PhD & Geog PGCE (Exeter). Tuba player. Devon, UK.
@buds-disability.bsky.social
A community of disabled people working together to remove the barriers that disable us. Registered Charity 1102511 #Fair4All #Reach4Work
@stephenmia.bsky.social
Former Skier, Cyclist, Climber, Hill Walker, Diagnostic Radiographer and functioning human. Now - ME, POTS, LC, Vax Injury - Pro Vax - Still finding the joy
@jengovey.bsky.social
I dress up in fancy dress for the charity Invest in ME Research to raise funds & awareness of Myalgic Encephalomyelitis. In a previous life I worked in film. I’m an advocate for good science, treatments & better healthcare for #pwME.
@chronicchannel.bsky.social
Youtube Channel covering Chronic Illness, Universal Basic Income and Air Quality. https://www.youtube.com/@ChronicIllnessChannel Clean The Air http://bit.ly/CleanTheAirUK
@johnthejack.bsky.social
Unbeliever (political & religious), Wales rugby, #c4news, porridge, tea, #MEcfs 'Obvious but wrong' Also JTJ on the other place https://johnthejack.com
@antoniocaramia.bsky.social
@whitneydafoe.bsky.social
Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
@hopefullizzy.bsky.social
30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice✨ Bristol, UK
@stickmancomms.bsky.social
Stickmen helping to build understanding and acceptance of hidden disabilities and chronic illness, in a way that empowers us. (Run by Hannah Ensor - who has #hypermobility #PoTS and probably other stuff.) +talking about personal experience of #disability
@ciarawrightphd.bsky.social
Long Covid March 2022, life on pause as Functional Medicine Nutritionist, Scientist, Mountain Runner. Loves trees, houseplants, dogs, profanity. Liberal Atheist, she/her
@jamesglen.bsky.social
Having a bit of a break O_o ● Founding member @LongCovidSupport ● Long Covid & MECFS advocate #FBLC ● Arts Centre Director ● Watford FC fan ● #FBPE 🇪🇺
@drjogreer.bsky.social
Mum, Carer, Myalgic Encephalomyelitis (ME) Advocate, Educational Psychologist
@ruairidhm.bsky.social
Long Covid since March 2020. “Nothing about me without me” - doesn't seem unreasonable. Previously: health research, public health, technology assessment and appraisal Also some Shetland!
@dormousediaries.bsky.social
Cartoonist, #BylinesNetwork, occasional artist, writer and sketcher of things. Likes tea and books. Sometimes hibernates. Living with #LongCovid
@ravihvj.bsky.social
Post-Covid ME/CFS since March 2021. Before then, a life I loved. Stanford History | 2021 Schwarzman Scholar