@remediescounseling.bsky.social
Remedies Counseling: Counselor only for people living w chronic illness - #MEcfs, #LongCOVID, vx injury, MCS/ES, #Lyme, #HIV, etc. https://remediescounseling.com/ I am living w MEcfs and HIV. Competed 3x at triathlon world champs.
@ashleyhultman.bsky.social
#TeachMETreatME #hEDS #MyalgicEncephalomyelitis #MESpine #CCI #POTS #longCovid #AuDHD #endo • Capitol Hill, AFL-CIO, and AFT alum • She/her
@abrokenbattery.bsky.social
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos. https://linktr.ee/abrokenbattery
@guyaneb.bsky.social
@amymooney.bsky.social
Occupational therapist, advocate, and caregiver dedicated to supporting individuals with chronic complex conditions. Offering therapeutic care for those affected by #MECFS, #LongCOVID, #POTS, #EDS, and related conditions. http://www.OT4ME.com
@stitchingtwitcher.bsky.social
Spotter of patterns, sometimes wishing I could unsee ME/CFS, Chronic Illness, AuDHD, Still Coviding
@morgfair.bsky.social
Actress. Politics, Foreign Policy, Science & RockNRoll. Love animals
@claguenjc36.bsky.social
Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise incl CV/fatigue/mental health/ME/Longcovid/EDI/all views my own she/her
@michelleb4.bsky.social
A mixture of stuff #MECFS #LongCovid #frailty #mtb #cycling #feelthefearanddoitanyway co-founder @PhysiosForME Views are all my own
@kirsties.bsky.social
UK #pwME #pwLC #MECFS #LongCovid #PEM (post-exertional malaise) as well as #Politics and other related chat. I use lists to manage my chats here. Feel free to use them or ask to be added https://writingandme.com/
@meadvocacyproject.bsky.social
The ME Advocacy Project is a grassroots initiative founded by individuals living with post-infectious illnesses Myalgic Encephalomyelitis and/or Long COVID. Unceded Canada
@platouche.com
Business Analyst | #longcovid #PASC #patientpartner | Long Covid advocate Analyste d'affaires | #covidlongue #covidlong #PACL #patientpartenaire #quebec | Défenseur de la COVID longue
@monzamayhem.bsky.social
Mother of child with ME/CFS; trying to create a life for him while waiting for answers from medical research. My oldest is a wildland firefighter. I post primarily about public health, ME/CFS, Long Covid, and wildland firefighting.
@emilyrj.bsky.social
Digital journalism. Design, news/book edits, linguistics, data, tech. Medical + academic research. Disability in news, media and accessibility design consults. @emily_rj on Twitter #CripTheVote #Iowa ♿️🏳️🌈📚
@sammiemc.bsky.social
Long Covid Kids Founder & CEO Hoping to be on the right side of history. ♿️#LongCovid ✳️#CleanAir 🙋🏻♀️Campaigner 🧠🧡🫀#LongCovidKids 🌊#ColdWater 🧜🏻♀️#Swimming 🧘🏻#Pilates coach - #Pacing since 2020 🦠 😷 🫅🏼#CoronationChampion 💥#Volunteer
@minetodo.bsky.social
Storyteller. Advocate. Stand By ME/CFS! #StandByMEcfs #StillSickStillFighting #MEcfs since 2009
@cinnamonrollalong.bsky.social
#pwME #MECFS #pwLC #LongCovid #PoTS #Dysautonomia #MCAS #LongCovidKids #CovidisNotOver #CovidisAirborne
@shellchat.bsky.social
Reformed journo/editor, now working in health comms. Fighter of injustice in all its forms. Advocate for better research & support for ppl w uninvited friends POTS, ME/CFS, MCAS, LC, EDS, SjD, AnkSp plus other misunderstood AI conditions.
@cgatist.bsky.social
Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
@nelehelena.bsky.social
I'll "tweet" here about the things I don't like if the other app goes down
@isabelrb.bsky.social
CEO | Renegade Research | Project Director of Remission Biome NBC-HWC, AIP-C @remissionbiome.bsky.social
@katha1970.bsky.social
Here for research and info on #Migraines #MECFS #LongCovid #MCAS #MCS #ChronicPain #MetabolicHealth #Neuroscience #Psychology #MedicalGaslighting, posts German & English, hobby songwriter
@bshuell.bsky.social
Former software developer with myalgic encephalomyelitis, Living a limited life, missing from many places. Aspiring to be well again. Dog Dad. Occasionally bipedal. Twitter/X refugee. #mecfs
@drdanielloy.bsky.social
Ehemann, Jurist. #MECFS. Team #SIGNforMECFS. Team #GOfundMECFS. One of the #MillionsMissing.
@fvrhijn.bsky.social
MD | rheumatology resident #ME due to #LongCovid Nonbinary 🌈🌈🌈🌈 | views are mine.
@sunny-rae1.bsky.social
Consultant Cardiologist, also treating and researching Long Covid. Long Covid Advisory Team @ WHN, #TeamClots, Medical Champion @ Long Covid Kids. Prevention is better than cure. Views my own and not medical advice x
@resiapretorius.bsky.social
Distinguished professor, Stellenbosch University and Honorary professor, University of Liverpool.
@daltmann.bsky.social
Professor of Immunology, Imperial College London. Editor of OUP Oxford Open Immunology. Co-author - Penguin Long Covid Handbook. Discusses: Covid-19, Long Covid, T cells, immunogenetics and HLA, respiratory infection, science policy, arboviruses, C19th lit
@mervetepephd.bsky.social
PhD Microbiologist // Biomineralization, AMR & Biofilms // @remissionbiome.bsky.social team Defend science, resist ignorance https://twitter.com/mervetepePhD http://mastodon.online/@MerveTepe http://post.news/@/mervetepephd Ankara/New York/Tel Aviv
@writebiggs.bsky.social
Reader, writer, sleeper agent Loves history, folklore & growing things ME + expansion packs ADCI network ♿️ | she/her Curtis Brown Breakthrough winner ‘24, Jericho Writers Mentorship, Novelry Octopus winner ‘23. LL Lucy Cavendish Prize ‘24
@vonhatti.bsky.social
Unwell book editor, once actor/cabaret. Fake name, real face. #ChronicIllness #Publishing #Cats #Languages #ComicSongs https://m.youtube.com/@Theheraldpatch
@kimpie.bsky.social
24 | Living with ME, Endometriosis & … | Looking for some connection | she/her ☀️
@aqem.bsky.social
L’AQEM vise l'avancement de la connaissance et la reconnaissance de l' #EMSFC et au mieux-être des #paEM | #Canada #Quebec | www.aqem.ca | IG/X @aqem_sfc #EncephalomyeliteMyalgique #MyalgicEncephalomyelitis #MECFS #pwME #CovidLongue #CovidLong #LongCovid
@icancmeresearch.bsky.social
Interdisciplinary #Canadian Collaborative #MyalgicEncephalomyelitis Research Network (created in 2019). #MECFS #PwME #LongCovid (Account managed by Sabrina.)
@julianlenfant.bsky.social
British/Canadian; Educational Developer/Adjunct Prof. @ Saint Mary's University; CELTA Tutor/Assessor; Doctoral Researcher (AI in Education); MEd Plurilingual Education; Husband and Dad.
@kbishof.bsky.social
🔵 Founder & Pres. @C19LAP https://www.longhauler-advocacy.org 🔵 Pw/ #LongCOVID, #IACCS, #Disability 🔵 Fmr. Firefighter/Paramedic 🔵 Fmr. Educator, Coach, & Dir. of Athletics 🔵 B.S. (ex science & health promotion) 🔵 #StillCOVIDING #COVIDConscious #Mask
@buonsenso.bsky.social
Pediatric Infectious Disease doctor. Fighting to care for children with Long Covid & ME/CFS. My book on my LONG COVID JOURNEY: https://tinyurl.com/4tsvhwat
@anilvanderzee.bsky.social
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS #art2cureME #pwme #millionsmissing
@dialoguesmecfs.bsky.social
https://www.dialogues-mecfs.co.uk Website with videos created by Natalie Boulton & Josh Biggs with a Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of #ME/CFS and a longer film explores the wider context and history.
@erinsandersnp.bsky.social
Proud Mama & Wife | #Disabled ♿️ | #WomxnsHealth Nurse Practitioner & Clinical Scientist | Prev MIT, Stanford | Catalyst | Connector | Healing | #JusticeAccomplice | She/Her
@ruhisleep.bsky.social
Mom, humanist, anti-extractive. I do research - biomedical sciences through the lens of humanities & society with a focus on praxis. Settler on Turtle Island. Better Society 🔄Better Sleep Current focus MECFS & Long COVID research/care/community
@purplespeedwell.bsky.social
Mostly bedridden with #MyalgicEncephalomyelitis, a devastating illness with little funding and no treatment. Toronto, Canada Ally of #pwLC #pwME #LongCovid #POTS #MCAS #MEcfs
@swastrosarah.bsky.social
Speaking up for everyone affected by severe/very severe #ME. Medical science has everything to learn about human biology from the post infection disease ME. #MEKills backstory https://x.com/swastrosarah?lang=en-GB
@birbsarereal.bsky.social
Forty-something retired biologist and ME advocate. Lover of birds and yarn. Former athlete. Wife. For kindness, empathy, inclusion, and accessibility. She/her. Crochet artist; https://www.ravelry.com/stores/stitches-by-sarah
@covidchronicles.bsky.social
Chronicling my journey through purgatory, graphically. Former athlete/composer/writer/woodworker. Saddled with debilitating COVID-induced metabolic dysfunction since Nov 2022. #LongCOVID #LC #MECFS #PEM #SickJokes
@richardvallee.bsky.social
I play language. Mostly irreverent. Debugger. AI. Global warming. Integrity. Health. Science. Chronically ill punk rocker. I think about the future a lot.
@itsmepz.bsky.social
Music 🎶 Film 🎞️ Long form journalism 🧐 Hot Chips 🍟 Happiest by the sea 🌊 Here to hang with chronically ill & socially isolated peeps and advocate for better care for #pwME. Living small with ME on unceded Whadjuk Noongar country ("Australia")