Patient Dreams
Impatient non-patient with #MECFS since 2000. Trying not to get Darwined. Dreaming of becoming a patient with appropriate medical care one day soon.
@markhamillofficial.bsky.social
Believe in yourself! Work hard, never give up & anything's possible! OR: Kick back, relax & aim low: You'll never be disappointed...😜 I IGNORE ALL DMs!
@oonaghcousins.bsky.social
@elizacharley.bsky.social
Actress on Pause with Myalgic Encephalomyelitis 🌍 Florence, Italy <-> Melbourne, Australia 🎙️ Writer, Producer, Actor 🦋Living that Stockdale Paradox life
@karenlhargrave.bsky.social
Co-founder #ThereForME | Calling for an NHS that’s there for ME & Long Covid | www.thereforme.uk Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
@richardvallee.bsky.social
I play language. Mostly irreverent. Debugger. AI. Global warming. Integrity. Health. Science. Chronically ill punk rocker. I think about the future a lot.
@icancmeresearch.bsky.social
Interdisciplinary #Canadian Collaborative #MyalgicEncephalomyelitis Research Network (created in 2019). #MECFS #PwME #LongCovid (Account managed by Sabrina.)
@resiapretorius.bsky.social
Distinguished professor, Stellenbosch University and Honorary professor, University of Liverpool.
@scheibenbogen.bsky.social
Immunologist and ME/CFS researcher @Charité https://cfc.charite.de/
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@sabinehermisson.bsky.social
PD Dr. (religion, empirical education research) mother of Mila who suffers from very severe ME/CFS (Bell 0) https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf Vienna, Austria #CleanAir
@drdanielloy.bsky.social
Ehemann, Jurist. #MECFS. Team #SIGNforMECFS. Team #GOfundMECFS. One of the #MillionsMissing.
@strangerandstranger.net
Author of "stranger and stranger”, letter writer, advocate and fundraiser for biomedical ME/CFS research.
@cyruxime.bsky.social
Energetically compromised (bedridden) by severe #MECFS. All systems operating at minimum capacity & overloaded. In a previous life: comp sci x math, powerlifting. #LongCovid ally.
@naomiwhitt.bsky.social
Writing is my voice from a hidden world. Published in The Daily Telegraph and Open Democracy. Now focusing on my own website. www.alifehidden.com
@simonmcg.bsky.social
Sometimes try to explain and comment on ME researchh, or even contribute to it. And I advocate for more and better research.
@domsalisbury.bsky.social
Ex-atmosphere/ocean scientist. Very ill with M.E #pwME. Patient advocate (when able). Interested in how we live. Open-minded, but always sceptical. Particular interest in calling out shoddy research and bad practice. [UK] https://domsalisbury.github.io
@mikeseumarathons.bsky.social
I run marathons around Europe raising funds for Invest In ME's biomedical research projects to cure ME. 32 countries so far. £51k raised. Next race: #33 Belfast, N.Ireland (04.05.25) www.mikeseumarathons.eu www.justgiving.com/mikeseumarathons
@medidier.bsky.social
Severe ME after covid infection Feb'22. Young dad. Bedbound. 🛌 #MillionsMissing #pwME #ThereForME #GreatestMEdicalScandal #PEM 🇬🇧🇲🇫🇪🇦🇧🇪
@phoebsbo.bsky.social
Life is being autistic and chronically ill with ME and writing about it. Doodle artist. Smorky's human. Scotland. She/her. https://linktr.ee/phoebsbo
@investinmeresearch.bsky.social
An independent UK charity finding, funding, facilitating biomedical research into ME and providing better education and awareness of this disease in UK & Europe (charity nr. 1153730) www.investinme.org
@muellershewrote.com
Owner of MSW Media, host of The Daily Beans, UnJustified, and Cleanup on Aisle 45 podcasts. #Leguminati. Veteran. She/Her Substack: muellershewrote.com Secure contact: [email protected] Signal: muellershewrote.23 Podcast: https://link.chtbl.com/TheDailyBeans
@fishtopher.bsky.social
FIV+ internet cat 🐟animal rescue fan 🐠 spay and neuter your pets https://linktr.ee/fishtopher
@weirdlilguys.bsky.social
wlg fan club 🐈 email for submissions, credit and partnerships: weirdlilguys at gmail • IG: @ catsbeingweirdlittleguys • meme-inspired tees + stickers: weirdlilguys.com 🐱
@onthequeenside.bsky.social
Covering the top #womeninchess players in the world! Same as Women's Chess Coverage on Twitter! Still mainly on Twitter (and lichess blogs!). One post per day here for now.
@maddowblog.msnbc.com
MaddowBlog.com Rachel: https://bsky.app/profile/maddow.msnbc.com Steve: https://bsky.app/profile/stevebenen.com
@maddow.msnbc.com
Mondays at 9pmET on MSNBC MaddowBlog.com From Russia with Lev: MSNBC.com/Lev Ultra podcast: MSNBC.com/Ultra Prequel: MSNBC.com/Prequel
@cbsnews.com.web.brid.gy
CBS News offers breaking news coverage of today’s top headlines. Stay informed on the biggest new stories with our balanced, trustworthy reporting. [bridged from https://cbsnews.com/ on the web: https://fed.brid.gy/web/cbsnews.com ]
@merriam-webster.com
noun | a reference source containing words alphabetically arranged along with information about their forms, pronunciations, functions, and etymologies
@propublica.org
Investigative journalism in the public interest. Headlines and (sometimes literal) receipts. Send us tips: propublica.org/tips
@indivisible.org
Building progressive grassroots power and holding members of Congress accountable. Make a difference in a few clicks: https://linktr.ee/indivisibleteam
@cnn-news.bsky.social
The most recent CNN news for the beautiful people of Bluesky! Fan Account / Not official
@thereisnocat01.bsky.social
Images with no cats. 👀 All content = submissions or with credit to OP. Submissions/enquiries: [email protected] - Buy me a coffee: https://ko-fi.com/translatedcats/
@davidfrum.bsky.social
Staff writer for the Atlantic. Host of the David Frum Show webcast. Formerly ... quite a lot of things. Washington DC and Wellington, Ontario. Reach me via [email protected] DMs open to followers
@bsw5020.bsky.social
Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease. www.iamals.org/als-awareness-month #ALSisHere #SoAreWe
@sunsopeningband.bsky.social
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
@tilmanandris.bsky.social
Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs
@talmandaniel.bsky.social
Curious & exhausted peace seeker, co-host of Post-Exertional Mayonnaise podcast, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
@benhmecfs.bsky.social
ME/CFS patient advocate, Open Medicine Foundation science correspondent. Bedbound. Former: exercise physiology, biochemist in training, athlete-Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
@chromatowski.bsky.social
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing. ME ‘05, LC ‘23, many of their friends along the way. Very severe (FUNCAP 0.8). No unsolicited advice please!
@bshuell.bsky.social
Former software developer with myalgic encephalomyelitis, Living a limited life, missing from many places. Aspiring to be well again. Dog Dad. Occasionally bipedal. Twitter/X refugee. #mecfs