Pauline
Currently out of order due to Long Covid and ME/CFS
Graphic design student
she/her
@cgatist.bsky.social
Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
@claguenjc36.bsky.social
Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise incl CV/fatigue/mental health/ME/Longcovid/EDI/all views my own she/her
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@grachstephanie.bsky.social
Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers | https://t.co/TkYm2MXvir
@andrewewing11.bsky.social
Research on nano/neuro chemistry, echem, chemical imaging @Univ Gothenburg. Member Swedish Academy of Science. Chair, WHN LC Work Group. Opinions are entirely my own. Take them or leave them!
@binitakane.bsky.social
Long COVID/ME interested lung doctor | Campaigner for race equality, clean air & patient voice | Independent SAGE | Co-Founder South Asian Heritage Month YouTube: @LCCWYCD Enquiries: info@thelongcovidclinic.co.uk Linktree: https://linktr.ee/binitakane
@rthm.bsky.social
RTHM connects you with a digital care team specializing in Long COVID and ME/CFS that provides access to therapies based on the latest research. https://direct.rthm.com/?utm_source=bs&utm_medium=link&utm_campaign=bio&utm_id=profile&utm_term=web&utm_conten
@davidjoffe64.bsky.social
Respiratory and Sleep Medicine Neurobiology and Long Cövid WHN Long Covid Working Group Vice Chair
@betsyladyzhets.bsky.social
editor/co-founder @thesicktimes.bsky.social | journalist covering Long COVID & related crises | she/her/🏳️🌈 email: betsy@thesicktimes.org | signal: betsyladyzhets.25 | https://thesicktimes.org/
@mileswgriffis.bsky.social
Co-founder/editor @TheSickTimes.bsky.social Columnist @HighCountryNews.org miles@thesicktimes.org #LongCOVID
@thewhn.bsky.social
Bringing people, science, and compassion together to solve world problems and protect health. Let's #EndThisPandemic together.
@kprather.bsky.social
Professor UC San Diego, aerosols, air quality, clouds-climate, health, viruses, bioaerosols, public speaker, environmental justice. ❤️ ❤️ gardening, cooking, empathy. https://airborne.ucsd.edu https://kprather.scrippsprofiles.ucsd.edu/
@physiosforme.bsky.social
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME Find out more at physiosforme.com
@pamelarbishop.bsky.social
Was research professor, now disabled by #LongCOVID (12/7/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
@danielmissailidis.bsky.social
Researching the cell biology of ME/CFS since 2016, now also Long COVID and PD. Papers: https://scholars.latrobe.edu.au/d2missailidi/publications
@molbaas.bsky.social
Psychiatrist | Life on hold since Oct. '21 due to long Covid | LC foundation NL | Carpe diem sed non inpensa crastina | Tweets are my own | No medical advice
@icancmeresearch.bsky.social
Interdisciplinary #Canadian Collaborative #MyalgicEncephalomyelitis Research Network (created in 2019). #MECFS #PwME #LongCovid (Account managed by Sabrina.)
@aqem.bsky.social
L’AQEM vise l'avancement de la connaissance et la reconnaissance de l' #EMSFC et au mieux-être des #paEM | #Canada #Quebec | www.aqem.ca | IG/X @aqem_sfc #EncephalomyeliteMyalgique #MyalgicEncephalomyelitis #MECFS #pwME #CovidLongue #CovidLong #LongCovid
@dbkell.bsky.social
Research Scientist who prefers facts to lies. Focus on Long COVID. Free book: http://osf.io/pnxcs/.
@profmarkfaghy.bsky.social
Professor of Clinical Exercise Science - Clinical Exercise Physiologist - Researcher in #LongCOVID - Nature Research Award Winner 2024 - Derby UK
@katboniface.bsky.social
Riverside, CA Equine History Collective Renegade Research https://katboniface.wordpress.com/the-glutamate-boss/
@taraf.bsky.social
Health Equity & Translational health researcher | Improving healthcare services & experiences for marginalized | Part-time research associate | Renegade Research volunteer Tampa, FL 😷🌈☮️📊📚🫂🩼♿️🗣️ #Disabled #LongCovid #PostVax #MECFS #POTS #hEDS #Lyme #AuDHD
@thenicotinetest.bsky.social
The Nicotine Test -- a patient-led research project to evaluate the benefits of the nicotine patch for people living with #LongCovid. #TheNicotineTest #LongCovid #MECFS
@putrinolab.bsky.social
@elisaperego78.bsky.social
#LongCovid | researcher | Covid | health, disability, inequality in present and past | human-environment interactions | big data | medicine history | patient-led research | MA PHD| ≠ MD |
@blomechristine.bsky.social
COVID nerd | Post-COVID & ME/CFS researcher | no MD | http://patient-reported-outcomes.com | Hamburg Center for Health Economics @hche-uhh.bsky.social | derm PROMs | Botschafterin @dagl.bsky.social | DMs open
@kurtzermd.bsky.social
Activist doc vs interpersonal violence violence. Med Dir #TraumaInformedCare GYN Northwestern Chicago. Long COVID Mar ‘2020 #AMWA-PATH #DoctorsForAmerica #MomsDemandAction #LongCOVID Doc TIC gynecology sexmedmenopause.nm.org Posts my own & not employer’s
@kathrynhoffmann.bsky.social
ME/CFS & postakute Infektionssyndrome (PAIS). Prävention & Primärversorgung. - Univ.Prof. und Ärztin - !Alles hier: my own opinion! = Private account Spielt kein Taubenschach!
@oonaghcousins.bsky.social
@tmprowell.bsky.social
Oncologist serving people w/ cancer in #MedEd, #SciComm, #bcsm, & #PublicHealth. Past ASCO Ed Chair. Co-founder HCWvsHunger.org. #LongCovid #MedSky #OncSky Team hope/good trouble/go high💙 https://www.hopkinsmedicine.org/profiles/details/tanya-prowell
@polybiorf.bsky.social
501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
@unitetofight.bsky.social
LongCovid & ME/CFS conference project. We’re a small group of affected people living with LC & ME/CFS, alongside dedicated supporters. #UniteToFight2024 www.youtube.com/@unitetofight2024
@drrebeccaryan.bsky.social
Love everything Gut Brain Axis related. Gastroenterologist POTS, MCAS, hEDS, Long Covid, VCS
@mgalvosas.bsky.social
Cough as a Digital Biomarker and First Digital Therapeutic (DTx) for chronic cough @ hyfe.com, coughpro.com | prev. founder of wandering prevention tech for dementia | interested in Digital Health | my opinions
@drgrahamlj.bsky.social
Consultant Radiologist UK. Medical imaging educator. Founder/Director of radiologymasterclass.co.uk. Investigating links between poor oral health and systemic disease | oral microbiome | COVID-19 & LongCOVID. Oral Health Section Editor - Springer Nature
@ravenscimaven.bsky.social
Raven Baxter, Ph.D. -- Molecular biologist helping people + companies globally learn + share science, for a more scientifically engaged world. iloveraven.com
@jefflubellc19.bsky.social
I am researching treatments for my daughter, who has hEDS, ME/CFS and other conditions, with implications for #EDS, #MECFS and #LongCOVID. I am a researcher, but not an MD.
@doc4care.bsky.social
Recovered from Long Covid in 2022 after 2yrs. Metformin, TLR4 quieting, microclot busting, NRF2 promoting, HIF1a limiting approach. Aiming to understand more about LC/MECFS and happy to try to help others. Medical Director for Renegade Research
@crunchme.bsky.social
CrunchME is a patient-led organisation, creating the evidence and insight base needed to crunch infection-associated chronic conditions (IACCs), including #MECFS and #LongCovid. 📍 https://crunchme.org/
@gaby0605.bsky.social
CEO @weandmecfs Supporting our sons and everyone else fighting with #MECFS and #PAIS
@buechnerronja.bsky.social
psychologist | phd student @UniLeipzig | psychotherapist in training | my research is on psychologization & stigma of Long Covid
@scienceforme.bsky.social
We are an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and the carers, clinicians, scientists and advocates who support us. This account is maintained on a part-time basis by patients.
@alitwy.bsky.social
Living with Long Covid. Doing my bit to support UK healthcare workers with Long Covid. Chair of Supporting Healthcare Heroes UK. Associate Member Long Covid Support. Editor-in-Chief Evidence Based Nursing. Retired Professor of Children’s Nursing. #FBLC
@buonsenso.bsky.social
Pediatric Infectious Disease doctor. Fighting to care for children with Long Covid & ME/CFS. My book on my LONG COVID JOURNEY: https://tinyurl.com/4tsvhwat
@jlerollblues.bsky.social
Covid modeler/research, @TheWHN volunteer, free pathogen newsletter at josepheastman.substack.com, former NASA scientist, renewable energy scientist, atmospheric scientist, ecologist, and modeler of about any system https://substack.com/@josepheastman
@ahandvanish.bsky.social
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
@longcovidpharmd.bsky.social
Pharmacist interested in Long COVID and ME/CFS research Pro-mask, pro-clean air! Substack: https://pharmd.substack.com/
@nitajain.bsky.social
Chronic disease research and advocacy | Founder of Timeless Biosciences | Creator of spooniverse.directory | https://www.nitajain.com/