@kristinwrites.bsky.social
Poet, Wife, Mom, LongCovid/MECFS Sufferer. Looking to connect and learning to advocate. Cofounder of #CripCoop. EIC, Poetry @epistemiclit.Bsky.social, @whirligiglit.bsky.social. Micropoetry chapbook Lift the Mask available widely. www.kristinhoulihan.com
@janetdafoe.bsky.social
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
@erinmarilee.bsky.social
ME/CFS since 2001 | Passionate about improving med ed, increasing access to care, and finding a cure | Faith, Hope, Love
@irishmecfsassoc.bsky.social
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association NB: Posts should not be considered advice Registered Charity Number 20100254 CHY 22039 #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
@zencoffeebreak.bsky.social
(they/them) aro-ace • non-binary • long covid & ME/CFS • secular humanist • ex-Christian • friend-shaped #LongCovid #TransRights #SmashThePatriarchy
@wilhelminaj.bsky.social
Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
@me-cfs.bsky.social
Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak. I care. My ME/CFS News Aggregator: @me-cfs.mastodon.social.ap.brid.gy Ⓐ💚, (FR/DE/EN, but posts in english) Clinging onto the ledge above the abyss.
@vanadiumzest.bsky.social
we’re still in a pandemic🍋eugenics leads to fascism🍋LC/ME/MCAS/lupus/endo🍋still with her🍋OG khive🍋always punch nazis
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Université de Montréal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter
@erinraeburn.bsky.social
Scribbler of stories, bookworm, nocturnal hermit, nature & whimsy lover, ME/CFS & fibromyalgia+, vaxxed/masked, socially-minded lefty on Wolastoqiyik territory. (New Brunswick, Canada) She/her.
@andrewgiffordphoto.bsky.social
Hello, welcome :) This Invisible Illness: my first long form photography project, about ME/CFS a complex & challenging health condition - like Long Covid. https://linktr.ee/andrewgifford.photography Bristol, UK. 335.42 ppm. He/him/oi.
@thesicktimes.bsky.social
A nonprofit news site chronicling the #LongCOVID crisis. Founded by journalists @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social Website: thesicktimes.org Newsletter: thesicktimes.org/newsletter Donate: the-sick-times.fundjournalism.org
@lizstokoe.bsky.social
Professor and Academic Director of Impact at #LSE | Psychologist | Hon FBPsS | Hon Prof @lborouniversity.bsky.social | @IndependentSage.bsky.social Behaviour Group | Conversation Analyst #EMCA | she/her | own views | #AcademicSky
@whitneydafoe.bsky.social
Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@awlbiste.gay
Your local disabled queer autistic geriatric millennial. She is fine but they is better.
@julialmv.bsky.social
Long COVID patient-researcher @ Scripps Research & Patient-Led Research Collaborative
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@minetodo.bsky.social
Storyteller. Advocate. Stand By ME/CFS! #StandByMEcfs #StillSickStillFighting #MEcfs since 2009
@me-foreldrene.bsky.social
ME-foreldrene / The M.E. Parents of Norway Vi representerer barn og unge med myalgisk encefalomyelitt (ME) og deres pårørende. Vi har et oppdatert, biomedisinsk syn på ME. Alle som ønsker å støtte arbeidet vårt kan bli medlemmer. www.MEforeldrene.no
@karenlhargrave.bsky.social
Co-founder #ThereForME | Calling for an NHS that’s there for ME & Long Covid | www.thereforme.uk Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
@oonaghcousins.bsky.social
@knighthawk899.bsky.social
30's| 🇺🇸💙Resist|♿Disabled |Movies |Video Games |Meme Maker |Disability Awareness♿ Disabled people's needs are not being met in the US right now. Donate here: https://tinyurl.com/KnightHawk899 https://ko-fi.com/knighthawk889 venmo.com/u/Knighthawk899
@froydislilledalen.bsky.social
Psykologspesialist, forfatter, tangodanser, aktiv i debatten rundt kvinnehelse og ME/long-covid
@robll.bsky.social
Woodworker, Science, Architecture, OSINT, Politics, A Multipotentialite. Greatly afflicted by what I'm told is MECFS Dorset Resident
@viralpersistence.bsky.social
fund research and clinical trials for infection associated chronic illnesses now, and furthermore provide clean energy-powered hotel cold on demand for free. medicaid, not medicare, for all. aspiring #burquesky member.
@kitsuzo.gay
VRChat // Googie records // PSHQ Volume 1 of my zine: https://drive.google.com/drive/folders/1FFgyH2FIY9ujE5eF8cNs3vH1BLej7zVc?usp=sharing https://linktr.ee/kitsuzo
@diatoma.bsky.social
Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid
@meforeningen.bsky.social
Norges ME-forening (Norwegian Myalgic Encephalopathy Association) jobber for å bedre situasjonen for landets ME-syke. Facebook: https://www.facebook.com/MEforeningen/
@putrinolab.bsky.social
@rorpreston.bsky.social
Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙 #MECFS #LongCovid #IACC #PAIS 📍 https://crunchme.org/
@emilyesfraser.bsky.social
Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
@ninasteinkopf.bsky.social
Former HSEQ Chief Executive. Have survived Myalgic Encephalomyelitis (ME) since 2010. Patient advocate and writer. www.melivet.com Anti-genocide.
@moriende.bsky.social
24, they/them - hEDS, very severe ME/CFS, MCAS, POTS, all manner of brain things. send me cats and birds. not in the same box, though. this account is COVID-safe. I like rock music and poetry. 🇮🇪 if you don't believe in mutual aid, don't follow me.
@looftsabine.bsky.social
Interessierter Laie Wissenschaft/Forschung - Covid, LongCovid, ME/CFS - Pandemie, Endemie - pro Ukraine "Outbreak" - "Wag the Dog" - "World War Z" and now "Wayward Pines"? Human?
@flissaki.bsky.social
Microbiologist, amateur long covid specialist, POTS, MCAS, ME/CFS, mask-wearer, europhile, outdoorsy, nature lover, (ex-)swimmer. One of #MillionsMissing
@mecfsskeptic.bsky.social
Exploring the history of psychosomatic medicine and research on myalgic encefalomyelitis/chronic fatigue syndrome (ME/CFS). https://mecfsskeptic.com/
@paulkeeble.co.uk
ME since 2017 (Mild), 2019 Moderate , 2020 Severe Long Covid since March 2020 (V Severe) Funcap55 = 1.9 ( (Severe)
@naomidharvey.bsky.social
Zoologist & veterinary research. She/her. 22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️ Patient Expert in ME/CFS, POTS and syndromic Long Covid. Please excuse my typos.
@chromatowski.bsky.social
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing. ME ‘05, LC ‘23, many of their friends along the way. Very severe (FUNCAP 0.8), thanks for your patience.
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@batemanhornecenter.bsky.social
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: support@bsky.app