Leonie Potgieter
Fur mamma to Sammy & Twinx
#pwME #PoTS
Supports Invest In ME Research
@mmissingholland.bsky.social
Actiegroep #MillionsMissing Holland wil betere zorg & sociale gelijkheid voor ME-patienten.
@macanders.bsky.social
Mild-mannered author of several novels | ME #pwme | https://henryandersonbooks.com
@helma.bsky.social
Ein freundliches Hallo an alle :) (she/her) "One day at a time. We cross the bridge when we get there" #Chronicillness #Mecfs #Dysautonomie Bibesch Header: Ein Rüsseltier Bibesch Profilfoto: Ein Teil meines Gesichts mit Maske
@sannara.bsky.social
#MECFS #MILLIONSMISSING #MEAwareness #PEM #POTS #MCAS #PostCovid #LongCovid #TeamWissenschaft #GdB https://www.mecfs.de/was-ist-me-cfs/
@mildtin.bsky.social
Usually a lurker, Chronically Online for #LongCovid and other #IACC | Australia
@catkajsa.bsky.social
#pwme #MyalgicE #ME Dream of being alive again, before I die. Brain’s consistently out of order. My cats forever in my heart. … Ukraine/#NafoCatsDivision = @catskajsa.bsky.social
@icancmeresearch.bsky.social
Interdisciplinary #Canadian Collaborative #MyalgicEncephalomyelitis Research Network (created in 2019). #MECFS #PwME #LongCovid (Account managed by Sabrina.)
@gemzme.bsky.social
@sazzi91.bsky.social
creativity, baking👩🍳 tv 💻 nature 🌷 chronically ill; ME/CFS since 2002 🐌 🇪🇺 IG: @sazzi_crafts #MillionsMissing
@jessikafe.bsky.social
ME sufferer from Sweden. Interested in everything that can make us/our situation better. #ME #ME/CFS
@apeskygirl.bsky.social
Tree hugger with ME/CFS since 1992. #MEAction volunteer. Patient Advocate. OMF & Stanford Study Participant. ME/CFS • ND • POTS • EDS • One of the Millions Missing. Former Copywriter and Art Director. Now I watch squirrels and make things.
@cateye0611.bsky.social
#ME #MECFS science & research nerd. Focus: medical neglect & misinformation of/about infection driven severe #ME (Myalgic Encephalomyelitis) 🦠 22yrs 🛏️ 🏠 🤢 ♥️ but 📛: 🚶♂️+🐕, 📚, 🕺🏻💃, 🎶, 🍹, …
@hdesheraby.bsky.social
Life is to be lived and loved. #MyFamily #DownSyndrome #LearningDisability #Autism #MyalgicEncephalomyelitis #POTs #Trichotillomania #FamilyHistory #WeightLossJourney
@jennypen.bsky.social
Accounting lecturer, Mum. Rebuilding life after long covid. Kent lass. Likes: music, dancing, books, cats, maths, sharing the wealth/love Dislikes: long covid, misogyny, climate change deniers #pwme #longcovid #fblc #fbpe
@shelmish.bsky.social
#PWME since 2020. Currently severe - FUNCAP score 1.3 Queer, any pronouns 🏳️🌈🏳️⚧️ Mainly here for pics of dahlias, dogs with underbites and macro bugs 😍 MA in Forensic Linguistics🧑🎓 Love my garden and my elderly pupper
@danwyke.bsky.social
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
@julesahouston.bsky.social
Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights. I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new. #CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
@longcovidadvoc.com
A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time... 💙📚Home to the #pedanticzebra book club. https://www.longcovidadvoc.com/ 🛍️ https://longcovidadvoc.shop/
@grachstephanie.bsky.social
Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers | https://t.co/TkYm2MXvir
@koparafallskid.bsky.social
Movement As Medicine advocate. Follow my writing on Limberation.com Rheumatoid arthritis patient. Previously diagnosed Psoriatic arthritis patient. Probably both! 🤔 Ex-pat Kiwi in Kangaroo land (Melbourne). Arrived (on Earth) at 313.7 CO²
@phoenixme.bsky.social
Bed-bound activist with severe ME/CFS. ME/CFS, chronic illness, #AusPol, #USPol, climate justice, social justice, crochet, cats, sci fi. Views expressed are my own. If I had any spoons, I'd be dangerous. Boonwurrung country, Australia
@allyann.bsky.social
Living with & advocating for ME, POTS & FM, ex-IT. Homebound & at times bedridden. News and Recipe junkie. Living in Millowl, home of the Bunurong people, Victoria, Australia
@mayadusenbery.bsky.social
Journalist, editor, and author of Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick. www.mayadusenbery.com
@jimlebrecht.bsky.social
Co-director, Co-producer, with Nicole Newnham, of the documentary Crip Camp. Filmmaker, disability rights and justice advocate/activist, Co-founder of FWD-Doc.org. #Save504
@putrinolab.bsky.social
@cgatist.bsky.social
Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@abrokenbattery.bsky.social
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos. https://linktr.ee/abrokenbattery
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@ozfish.bsky.social
Retired maths teacher. ME/CFS 35 years. Volunteer staff member on Science for ME international forum, www.s4me.info
@mecfsskeptic.bsky.social
Exploring the history of psychosomatic medicine and research on myalgic encefalomyelitis/chronic fatigue syndrome (ME/CFS). https://mecfsskeptic.com/
@benhmecfs.bsky.social
ME/CFS patient advocate, Open Medicine Foundation science correspondent. Bedbound. Former: exercise physiology, biochemist in training, athlete-Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
@erictopol.bsky.social
physician-scientist, author, editor https://www.scripps.edu/faculty/topol/ Ground Truths https://erictopol.substack.com SUPER AGERS https://www.simonandschuster.com/books/Super-Agers/Eric-Topol/9781668067666
@edyong209.bsky.social
Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him 📷 Canon R6mkii + RF 800mm Edyong.me
@annakwood.bsky.social
Physicist, education researcher, gardener, bird watcher/photographer, chronic illness/ME
@simonmcg.bsky.social
Sometimes try to explain and comment on ME researchh, or even contribute to it. And I advocate for more and better research.
@missingfinland.bsky.social
ME/CFS G93.3 hoito & diagnosointi: 2021 Duodecim https://rb.gy/m9spr 2021 NICE https://rb.gy/h7eok 2021 Mayo Clinic Proceedings https://rb.gy/fd54d
@bmhughes.bsky.social
Concerned citizen • Prof Psych • Writer • Galway • he/him A blog: https://thesciencebit.net/ A bio: https://brianmhughes.com/ A book: https://bloomsburycp3.codemantra.com/viewer/63721f10ee35880001aafadc 📷 https://www.photoblogism.net
@physiosforme.bsky.social
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME Find out more at physiosforme.com
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Université de Montréal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter
@julierehmeyer.bsky.social
Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: [email protected]