@louise-fox.bsky.social
She/her also comfortable with they/them. Former art therapist. Proud chili pepper parent. Living with severe ME and POTS. Giant nerd. From Berlin.
@craiginwales.bsky.social
Medically retired #nurse. #Buddhist Late stage #Lyme disease. #CIRS #Dog lover. #Welsh. 🏴 #LGBTQ. #Renegade. Politically left wing #PlaidCymru. Dysgwr Cymraeg.
@bshuell.bsky.social
Former software developer with myalgic encephalomyelitis, Living a limited life, missing from many places. Aspiring to be well again. Dog Dad. Occasionally bipedal. Twitter/X refugee. #mecfs
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Université de Montréal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter
@longcovidadvoc.com
A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time... 💙📚Home to the #pedanticzebra book club. https://www.longcovidadvoc.com/ 🛍️ https://longcovidadvoc.shop/
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@ahandvanish.bsky.social
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
@julierehmeyer.bsky.social
Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
@chromatowski.bsky.social
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing. ME ‘05, LC ‘23, many of their friends along the way. Very severe (FUNCAP 0.8). No unsolicited advice please!
@filowenstein.bsky.social
writer + journalist covering health justice, wellness culture, LGBTQ+ stuff + more... https://www.fionalowenstein.com/ The Long COVID Survival Guide: https://theexperimentpublishing.com/catalogs/fall-2022/long-covid-survival-guide/ they/them
@grachstephanie.bsky.social
Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers | https://t.co/TkYm2MXvir
@mvgutierrezmd.bsky.social
Professor & Chair of Rehab Med at UT Health San Antonio | Mom, runner, #LatinasInMedicine, #Physiatry, #LongCOVID
@cmaddis.bsky.social
Asst. Prof. in Machine Learning at UofT. #LongCOVID patient. https://www.cs.toronto.edu/~cmaddis/
@angelamswinca.bsky.social
🦠😷♿️#LongCovid disabled | 📢Chicané activist | 🏠LAX | ⚖️health justice | ✊🏽✊🏾✊🏿racial justice alt text profile pic: tan skinned person in a tan KN95 mask and suit, dark wavy hair with short bangs
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@vladvexler.bsky.social
Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Born in USSR, home is London | Living with ME since 2003. youtube.com/vladvexler (main channel) youtube.com/vladvexlerchat (chat channel) youtube.com/@vladvexlerphilosophy
@danwyke.bsky.social
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
@bmhughes.bsky.social
Concerned citizen • Prof Psych • Writer • Galway • he/him A blog: https://thesciencebit.net/ A bio: https://brianmhughes.com/ A book: https://bloomsburycp3.codemantra.com/viewer/63721f10ee35880001aafadc 📷 https://www.photoblogism.net
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@lisamccorkell.bsky.social
formerly a patient-led research collaborative co-lead, always a co-founder | MPP | she/her | natures 10 in 2022
@workwellfoundation.bsky.social
#Nonprofit clinical #research providing 2-day #CPET #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses. workwellfoundation.org
@benhmecfs.bsky.social
ME/CFS patient advocate, Open Medicine Foundation science correspondent. Bedbound. Former: exercise physiology, biochemist in training, athlete-Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
@mefoggydog.bsky.social
Award-winning #socialenterprise in #UK. Working for #socialchange for the #MECFS community. Linktree - http://bit.ly/408o6LI
@claguenjc36.bsky.social
Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise incl CV/fatigue/mental health/ME/Longcovid/EDI/all views my own she/her
@physiosforme.bsky.social
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME Find out more at physiosforme.com
@cortjohnson.bsky.social
Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
@anilvanderzee.bsky.social
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS #art2cureME #pwme #millionsmissing
@irishmecfsassoc.bsky.social
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association NB: Posts should not be considered advice Registered Charity Number 20100254 CHY 22039 #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
@virusesimmunity.bsky.social
We study antiviral immunity and viral disease pathogenesis. We are developing mucosal vaccine strategies to prevent infection and transmission. #COVID19 #longCOVID #vaccines
@brianvastag.sciencemastodon.com.ap.brid.gy
Occasional science reporter at The Washington Post and elsewhere. Disabled by complex chronic post-viral illness. Living on #Kauai #Hawaii. Sometimes […] [bridged from https://sciencemastodon.com/@brianvastag on the fediverse by https://fed.brid.gy/ ]
@mfairma.bsky.social
ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS. Masking like someone’s life depends on it.
@talmandaniel.bsky.social
Curious & exhausted peace seeker, co-host of Post-Exertional Mayonnaise podcast, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
@wilhelminaj.bsky.social
Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
@twoshaws.bsky.social
#MyalgicEncephalomyelitis #pwME #SevereME #HyperPOTS #MCAS #PEM #PostExertionalNeuroImmuneExhaustion #PostExertionalSymptomExacerbation 😷
@tilmanandris.bsky.social
Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs
@uselesspriest.bsky.social
Long COVID, mild, since Apr 2022 ME / Long COVID diagnosed May 2024
@resiapretorius.bsky.social
Distinguished professor, Stellenbosch University and Honorary professor, University of Liverpool.
@amymooney.bsky.social
Occupational therapist, advocate, and caregiver dedicated to supporting individuals with chronic complex conditions. Offering therapeutic care for those affected by #MECFS, #LongCOVID, #POTS, #EDS, and related conditions. http://www.OT4ME.com
@carolinechristian.bsky.social
Professor #ssu, writer, mother disabled by #hEDS #MECFS #LC; I write a blog called Frozen in Amber about the science of and lived experience w/ #hEDS #MECFS #LC | chronicallycaroline.com
@rfh1955.bsky.social
ME/CFS archive, especially RFH 1955. For education, not profit. Relocated from Twitter. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. https://rfh1955.blogspot.com/
@sunsopeningband.bsky.social
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
@stenhelmfrid.bsky.social
Ph.D. in physics, also interested in mathematics, science theory, and history. Follows research on ME/CFS. Stockholm, Sweden
@itswhitneywitch.bsky.social
Disability Justice Living with ME, EDS, POTS, MCAS, vascular compressions, spinal comorbidities & more Ambulatory wheelchair user Cozy gamer, lazy gardener, hopeful baker
@janetdafoe.bsky.social
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: [email protected]