ME RESPITE
ME RESPITE is a registered New Zealand Charity providing practical support to those with Myalgic Encephalomyelitis (ME) Chronic Fatigue Syndrome (CFS) and related illnesses.
@daltmann.bsky.social
Professor of Immunology, Imperial College London. Editor of OUP Oxford Open Immunology. Co-author - Penguin Long Covid Handbook. Discusses: Covid-19, Long Covid, T cells, immunogenetics and HLA, respiratory infection, science policy, arboviruses, C19th lit
@janetdafoe.bsky.social
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
@sunny-rae1.bsky.social
Consultant Cardiologist, also treating and researching Long Covid. Long Covid Advisory Team @ WHN, #TeamClots, Medical Champion @ Long Covid Kids. Prevention is better than cure. Views my own and not medical advice x
@renegaderesearch.bsky.social
Renegade Research (RR) a non-profit 501c3 decentralized organization pioneering patient/caregiver led research focused on ME/CFS and LongCovid • https://renegade-research.org 💙 Project @remissionbiome.bsky.social • Donate now ▶️ https://tinyurl.com/44azdsxm
@daniellebeckman.bsky.social
Neuroscientist into virology & microscopy. Researcher at the California National Primate Research Center Long Covid Advisory Team: https://whn.global/long-covid-advisor. Cure #LongCovid daniellebeckman.com
@drannanz.bsky.social
Immunologist | Flow Cytometrist Immunometabolism, Infectious Diseases, Immune dysfunction, Long Covid & ME/CFS Senior Research Fellow Liggins Institute | University of Auckland DysImmune Research Aotearoa www.dysimmune.nz 🇳🇿🥝🩸🧬🧪🔬👩🏼🔬
@amymooney.bsky.social
Occupational therapist, advocate, and caregiver dedicated to supporting individuals with chronic complex conditions. Offering therapeutic care for those affected by #MECFS, #LongCOVID, #POTS, #EDS, and related conditions. http://www.OT4ME.com
@mvgutierrezmd.bsky.social
Professor & Chair of Rehab Med at UT Health San Antonio | Mom, runner, #LatinasInMedicine, #Physiatry, #LongCOVID
@weselymd.bsky.social
Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, Dementia, Delirium, PICS. Fighting misinformation. Posts my own. Still learning.
@richellesepulveda.bsky.social
Long Covid, MECFS, ADHD, etc. Patient-led research is my jam. A bit obsessed with GIP.
@drclairetaylor.bsky.social
@remissionbiome.bsky.social
Community Science Project http://RemissionBiome.org
@cgatist.bsky.social
Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
@claguenjc36.bsky.social
Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise incl CV/fatigue/mental health/ME/Longcovid/EDI/all views my own she/her
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@grachstephanie.bsky.social
Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers | https://t.co/TkYm2MXvir
@andrewewing11.bsky.social
Research on nano/neuro chemistry, echem, chemical imaging @Univ Gothenburg. Member Swedish Academy of Science. Chair, WHN LC Work Group. Opinions are entirely my own. Take them or leave them!
@binitakane.bsky.social
Long COVID/ME interested lung doctor | Campaigner for race equality, clean air & patient voice | Independent SAGE | Co-Founder South Asian Heritage Month YouTube: @LCCWYCD Enquiries: [email protected] Linktree: https://linktr.ee/binitakane
@rthm.bsky.social
RTHM connects you with a digital care team specializing in Long COVID and ME/CFS that provides access to therapies based on the latest research. https://direct.rthm.com/?utm_source=bs&utm_medium=link&utm_campaign=bio&utm_id=profile&utm_term=web&utm_conten
@davidjoffe64.bsky.social
Respiratory and Sleep Medicine Neurobiology and Long Cövid WHN Long Covid Working Group Vice Chair
@betsyladyzhets.bsky.social
editor/co-founder @thesicktimes.bsky.social | journalist covering Long COVID & related crises | she/her/🏳️🌈 email: [email protected] | signal: betsyladyzhets.25 | https://thesicktimes.org/
@mileswgriffis.bsky.social
Co-founder/editor @TheSickTimes.bsky.social Columnist @HighCountryNews.org [email protected] #LongCOVID
@thewhn.bsky.social
Bringing people, science, and compassion together to solve world problems and protect health. Let's #EndThisPandemic together.
@kprather.bsky.social
Aerosols, airborne, air quality, clouds-climate, health, viruses, bioaerosols, public speaker, environmental justice. ❤️ ❤️ gardening, cooking, empathy. https://airborne.ucsd.edu https://kprather.scrippsprofiles.ucsd.edu/
@physiosforme.bsky.social
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME Find out more at physiosforme.com
@pamelarbishop.bsky.social
Was research professor, now disabled by #LongCOVID (12/7/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
@sunsopeningband.bsky.social
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
@danielmissailidis.bsky.social
Researching the cell biology of ME/CFS since 2016, now also Long COVID and PD. Papers: https://scholars.latrobe.edu.au/d2missailidi/publications
@molbaas.bsky.social
Psychiatrist | Life on hold since Oct. '21 due to long Covid | LC foundation NL | Carpe diem sed non inpensa crastina | Tweets are my own | No medical advice
@icancmeresearch.bsky.social
Interdisciplinary #Canadian Collaborative #MyalgicEncephalomyelitis Research Network (created in 2019). #MECFS #PwME #LongCovid (Account managed by Sabrina.)
@aqem.bsky.social
L’AQEM vise l'avancement de la connaissance et la reconnaissance de l' #EMSFC et au mieux-être des #paEM | #Canada #Quebec | www.aqem.ca | IG/X @aqem_sfc #EncephalomyeliteMyalgique #MyalgicEncephalomyelitis #MECFS #pwME #CovidLongue #CovidLong #LongCovid
@dbkell.bsky.social
Research Scientist who prefers facts to lies. Focus on Long COVID. Free book: http://osf.io/pnxcs/.
@profmarkfaghy.bsky.social
Professor of Clinical Exercise Science - Clinical Exercise Physiologist - Researcher in #LongCOVID - Nature Research Award Winner 2024 - Derby UK
@katboniface.bsky.social
Riverside, CA Equine History Collective Renegade Research https://katboniface.wordpress.com/the-glutamate-boss/
@taraf.bsky.social
Health Equity & Translational health researcher | Improving healthcare services & experiences for marginalized | Part-time research associate | Renegade Research volunteer Tampa, FL 😷🌈☮️📊📚🫂🩼♿️🗣️ #Disabled #LongCovid #PostVax #MECFS #POTS #hEDS #Lyme #AuDHD
@thenicotinetest.bsky.social
The Nicotine Test -- a patient-led research project to evaluate the benefits of the nicotine patch for people living with #LongCovid. #TheNicotineTest #LongCovid #MECFS
@putrinolab.bsky.social
@elisaperego78.bsky.social
#LongCovid | researcher | Covid | infectious disease | health, disability, inequality in present and past | human-environment interactions | big data | medicine history | patient-led research | MA PHD| ≠ MD |
@blomechristine.bsky.social
COVID nerd | Post-COVID & ME/CFS researcher | no MD | http://patient-reported-outcomes.com | Hamburg Center for Health Economics @hche-uhh.bsky.social | derm PROMs | Botschafterin @dagl.bsky.social | DMs open
@kurtzermd.bsky.social
Activist doc vs interpersonal violence violence. Med Dir #TraumaInformedCare GYN Northwestern Chicago. Long COVID Mar ‘2020 #AMWA-PATH #DoctorsForAmerica #MomsDemandAction #LongCOVID Doc TIC gynecology sexmedmenopause.nm.org Posts my own & not employer’s
@kathrynhoffmann.bsky.social
ME/CFS & postakute Infektionssyndrome (PAIS). Prävention & Primärversorgung. - Univ.Prof. und Ärztin - !Alles hier: my own opinion! = Private account Spielt kein Taubenschach!
@oonaghcousins.bsky.social
@tmprowell.bsky.social
Oncologist serving people w/ cancer in #MedEd, #SciComm, #bcsm, & #PublicHealth. Past ASCO Ed Chair. Co-founder HCWvsHunger.org. #LongCovid #MedSky #OncSky Team hope/good trouble/go high💙 https://www.hopkinsmedicine.org/profiles/details/tanya-prowell
@polybiorf.bsky.social
501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
@unitetofight.bsky.social
LongCovid & ME/CFS conference project. We’re a small group of affected people living with LC & ME/CFS, alongside dedicated supporters. #UniteToFight2024 www.youtube.com/@unitetofight2024
@drrebeccaryan.bsky.social
Love everything Gut Brain Axis related. Gastroenterologist POTS, MCAS, hEDS, Long Covid, VCS
@mgalvosas.bsky.social
Cough as a Digital Biomarker and First Digital Therapeutic (DTx) for chronic cough @ hyfe.com, coughpro.com | prev. founder of wandering prevention tech for dementia | interested in Digital Health | my opinions
@drgrahamlj.bsky.social
Consultant Radiologist UK. Medical imaging educator. Founder/Director of radiologymasterclass.co.uk. Investigating links between poor oral health and systemic disease | oral microbiome | COVID-19 & LongCOVID. Oral Health Section Editor - Springer Nature