@meforeningen.bsky.social
Norges ME-forening (Norwegian Myalgic Encephalopathy Association) jobber for å bedre situasjonen for landets ME-syke. Facebook: https://www.facebook.com/MEforeningen/
@rfh1955.bsky.social
ME/CFS archive, especially RFH 1955. For education, not profit. Relocated from Twitter. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. https://rfh1955.blogspot.com/
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@mecfsskeptic.bsky.social
Exploring the history of psychosomatic medicine and research on myalgic encefalomyelitis/chronic fatigue syndrome (ME/CFS). https://mecfsskeptic.com/
@irishmecfsassoc.bsky.social
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association NB: Posts should not be considered advice Registered Charity Number 20100254 CHY 22039 #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
@emec.bsky.social
Advocacy organization for ME/CFS patients and their carers in Europe
@maosbot.bsky.social
Parent, spouse, Australian, cyclist, Professor of Machine Learning in Oxford. Bayesian ML, Long Covid, photos of dog, AI must be good for humans, https://www.robots.ox.ac.uk/~mosb
@catwesterby.bsky.social
@patientled.bsky.social
Patient-Led Research for #LongCovid! http://patientledresearch.com
@jengovey.bsky.social
I dress up in fancy dress for the charity Invest in ME Research to raise funds & awareness of Myalgic Encephalomyelitis. In a previous life I worked in film. I’m an advocate for good science, treatments & better healthcare for #pwME.
@millionsmissingswe.bsky.social
#MillionsMissing is a global campaign for ME health equality! https://meaction.net #MillionsMissingSweden #MEAction #MECFS #pwME #svmed #MEAwarenessHour
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Université de Montréal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@dialoguesmecfs.bsky.social
https://www.dialogues-mecfs.co.uk Website with videos created by Natalie Boulton & Josh Biggs with a Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of #ME/CFS and a longer film explores the wider context and history.
@cortjohnson.bsky.social
Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
@cgatist.bsky.social
Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
@janetdafoe.bsky.social
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@julierehmeyer.bsky.social
Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
@kunstjonas.bsky.social
Professor of Communication and Psychology at BI Norwegian Business School and the University of Oslo Past Yale, Harvard, UiB. Editor-in-Chief at Advances.in Father. Views are my own.
@flittigline.bsky.social
Spesialpedagog og livssynshumanist. Prøver så godt jeg kan å være et menneskelig safe space. Liker te, bøker og planter. Hun/henne. @janlindso er min Clyde.
@edyong209.bsky.social
Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him 📷 Canon R6mkii + RF 800mm Edyong.me
@jonasali.bsky.social
Something about me, to increase the relative weight given to my posts
@theclutterer.bsky.social
John Clutter from Twitter. Economist, Theologian. Introverted idealist. Trying out new things. ME/CFS and stuff. Skeet!
@erictopol.bsky.social
physician-scientist, author, editor https://www.scripps.edu/faculty/topol/ Ground Truths https://erictopol.substack.com SUPER AGERS https://www.simonandschuster.com/books/Super-Agers/Eric-Topol/9781668067666
@sammydet.bsky.social
Trivelig flåkjeft / Offisell Ølhund / ME-far / Gift oppover / Prosjekthåve / Planleggjar / Lyseblå / Rabulist #Svargubbe #YNWA #Norway Aka: Sammy Myklebust BM/NN/ENG https://sammyomol.wordpress.com/
@foxfoot.bsky.social
Stor tilhenger av faktabasert kunnskap og god forskning, etter 30 år som leder av Komparativ Medisin-Radiumhospitalet, OUS. Nå ME-pasient og -student.
@diplodokus.bsky.social
Engasjert pasientrettighetsforkjemper og kronisk livsnyter. www.diplodokus.home.blog
@jornth.bsky.social
M. Sc. Electrical Engineering, ME and fan of good science. -Cant we agree on following the path of proper science, not defending favorite hypothesis whatsoever!
@beate.bsky.social
Blogger på Rasteplassen. Livet har alltid og til alle tider handlet om å henge i ei liane utfor et stup, med en tiger over og en tiger under, se en mus komme og gnage på liana, strekke ut armen til markjordbærne som vokser der, og nyte smaken. (hun/henne)
@sidsel.bsky.social
Feminist, psykolog, nordlending. SV💚❤️ Skriver om psykologi, helse, feminisme.
@bmkrohn1.bsky.social
Snill og grei, litt sta muligens. Siving med ME. Dvs ligger og later meg hele dagen. Lillestrøm, Norway
@bibliotekaric.bsky.social
Bibliotekar av legning, men ikke lenger yrke. Helsepensjonist. Hagegal og katteelsker. Hun/henne. Mer enn litt sta - eller 'utholdende'. ME-syk siden 2016
@ninasteinkopf.bsky.social
Former HSEQ Chief Executive. Have survived Myalgic Encephalomyelitis (ME) since 2010. Patient advocate and writer. www.melivet.com Anti-genocide.
@kris007tine.bsky.social
Humour, laughs, and sarcasm is my oxygen. Severe ME, one of the #MillionsMissing🩰 #ENDmecfs2025🧬
@ingeborgsenneset.bsky.social
Journalist, forfatter, foredragsholder og influenser. Utdannet sykepleier. Årets gullpenn, NTBs språkpris, Årets mensapris. Ikke bruk det siste mot meg. Booking: rune@brandpeople.no
@froydislilledalen.bsky.social
Psykologspesialist, forfatter, tangodanser, aktiv i debatten rundt kvinnehelse og ME/long-covid
@anilvanderzee.bsky.social
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS #art2cureME #pwme #millionsmissing
@annafryxelius.bsky.social
Nestleder i MDGs Funkisnettverk & 9. kandidat på Stortingslista for Oslo. Dynamisk funksjonshemmet: Går når jeg kan - ruller ellers ♿ Jobb: Fulltids fagsjef i helsefrivilligheten 🌈 She/her